NKF Patient Registry

[MarissaA_NKF]

The National Kidney Foundation (NKF) has launched the first-ever interactive kidney disease patient registry in the United States. The NKF Patient Network will provide a community platform for patients like you to manage their kidney disease while also gathering comprehensive data for scientists working on cutting-edge treatments and maybe even a cure.

The NKF Patient Network platform offers a secure portal for patients to contribute their health information and experience, find out about the latest clinical trials, treatments, education, tips for good health, and a community of other patients dealing with kidney disease. People can choose to manually enter information or link it, with your permission, to electronic health records (EHR).

The NKF Patient Network will become an important tool for scientists around the world working on the next treatments to improve outcomes and save lives. The data collected goes beyond numbers on a spreadsheet – researchers want to hear a patient’s experiences living with kidney disease.

Benefits of joining the network:

•Become part of research projects;

•Patient voices will be heard by scientists and doctors studying the disease;

•Individualized patient education unique to your stage of the disease, symptoms and treatments;

•Support from a community of people like you;

•Information on how to join the latest clinical trials; and

•Health tips based on the most recent studies.

To join and learn more about the NKF Patient Network visit: kidney.org/nkfpatientnetwork

Please note that the NKF Patient Network is only open to those residing in the United States.

Need help? Contact the NKF Cares Patient Help Line toll-free at 855.NKF.CARES (855.53.2273)

[Kbristow]

I have heard about this network and have registered. I like that scientists will be looking at this data for their studies. If this grows to have a large database we could have good data on what's happening with kidney patients.

[LeesKees_NJ]

I just registered, thank you!

[MarissaA_NKF Partner in reply to LeesKees_NJ]

That's great! I hope that you have a good experience with it. If you need anything else, feel free to reach out to me!