SYMPTOMS STAGE2

[Rose568]

Hi I'm wondering if anyone has any symptoms with stage 2 CKD. I'm having test for this and feel very very worried. Thank you

[jodaer]

Mostly in stage 2 there aren't any symptoms. What tests are you getting?

[whats]

Some fraction of people might have foam from protein in urine at stage 2, but kidney failure is well known for being symptomless until its fairly advanced. Also, your life doesn't have to change much at stage 2, where I am, but if you want to help your kidneys as much as possible, you should read up about lifestyle changes. That is, of course, if it turns out you do have it. Hope the tests turn out good!

[Rose568 in reply to whats]

Thanks for the response, would you get nausea, excessive urination with an egfr of 81?

[lowraind]

Even if you are diagnosed with Chronic Kidney Disease, you should be concerned, but not worried. There is much you can do to take control.

I was diagnosed in 2017, made changes in diet and liquid intake. My egfr was 36. Since then, it has been 54.0, 54.7, 48.4, 54.3, 61.2, 53.9, 42.9, etc. My Nephrologist as concerned that, at my last blood test, it was 42. I tightened the reigns again and brought it back up to 50.

I wish I could be religious about my diet control and liquid intake. Unfortunately, actual life does get in the way. I totally agree with, "if you want to help your kidneys as much as possible, you should read up about lifestyle changes".

[Tr33cy in reply to lowraind]

That’s impressive on how you can get your numbers up by diet and liquid intake! I’m newly diagnosed stage 2 myself. What do you do? Do you have a link or reference to the regimen you use? I have the foam in my urine occasionally and it always upsets me to see it; if you had that too, does that improve when your eGfr numbers increase?

[lowraind in reply to Tr33cy]

Once I was diagnosed, I spent many months educating myself about ckd. This site and the many members who share their information helped much. I also worked on collecting recipes that are supportive of kidney health. When I was cooking a particular meal, I would do searches on that meal, followed by ckd. I was able to collect many recipes that way. These sites may be helpful:

National education, support and advocacy organizations:

• DaVita Kidney Disease and Dialysis Forums is well known for their recipes but they also have a forum for patients too.

• Renal Support Network provides many support and advocacy services including a phone support line.

• AAKP is a comprehensive resource focusing on the quality of life for kidney patients through education, advocacy, patient engagement and the fostering of patient communities.

• National Kidney Foundation provides a portal for patients too.

It is a lifetime commitment, so I often go back to searching for information. Knowing what you should and should not eat/drink becomes part of your memory bank.

[Tr33cy in reply to lowraind]

Thank you for the awesome idea on putting ckd at the end of a recipe!! Genius lol. Thanks for the info it’s greatly appreciated.

[jessica_d in reply to Tr33cy]

That's a great list of resources  lowraind 👍

I also wanted to add  Tr33cy that you may also find CKD LifePlan useful to get daily support learning about your CKD, and getting your questions answered.

CKD LifePlan is a new personalized digital education program for those with CKD. It's perfect for those who want to learn about their condition, and confidently collaborate with their doctor. It was recently featured on The Warriors Quest Show here: youtube.com/live/nGLcMeLabu...

The program will provide you with CKD patient education that’s personalized to your life, and 1:1 support from a Guide to navigate your journey with CKD - all at zero cost.

From the description in the video:

CKD LifePlan is: 100% free; requires no passwords or downloads, and, you can receive the entire program via text, or email.

You can get started in 5-7 minutes using this link: join.ckdlifeplan.com/warriors

How it works:

Step 1: Click join.ckdlifeplan.com/warriors , and take 5-7 minutes to fill out the interactive questionnaire where a Guide will introduce the program, and you'll tell them know what you're interested in.

Step 2: Next, your personal Guide will reach out to you with an email, and text message with a personalized education program, created just for you.

Step 3: Your Guide will provide engaging video-first education, tips, and support that's tailored to your life with CKD.

😊 I hope this is useful. Let me know what you think!

CKD LifePlan

[Tr33cy in reply to jessica_d]

Thank you so much Jessica, this looks like it will be a great resource!! 🥰

[jessica_d in reply to Tr33cy]

No problem. I just edited the link to the Youtube video above as a it looks like it wasn't showing up. I'd love to hear your thoughts on the program.

Good luck with your test!

[Tr33cy in reply to jessica_d]

I am stage 2a, so I didn’t appear to be in the stages that the program was designed for. Nevertheless, I’ll check it out and see if I can still participate. Either way, thanks tons for sharing!

[orangecity41 NKF Ambassador]

Here is a link to information on kidneys from Medicine Plus. medlineplus.gov/ency/articl...

[renegade70]

in stage 2 i was getting attacks of gout.