Renadyl

[Yankees28]

Hello,

Has anyone used the kidney supplement Renadyl. If so did you find that it helped your kidney function. Thanks

[HisLittleOne]

I just started using it so don’t knew yet. Would be interested to know if others have anything to report about it as well.

[Hidden in reply to HisLittleOne]

I just started too; keep everyone posted!

[Starcatty in reply to Hidden]

Sandracee......let us know how you are doing after taking this.......

[Hidden in reply to Hidden]

Oops, wrong reply, not taking this, sorry.

[WildIris]

There is research that supports the finding that probiotics, prebiotics and symbiotics benefit late stage renal patients, particularly lowering uremic toxins. ( ncbi.nlm.nih.gov/pmc/articl... ) the summary of this review study from 2022 also says "The comprehensive comparison of the effectiveness of different supplements are lacking". Renadyl is about 5 times more expensive than other probiotics and has a lot of 5 star reviews from CKD patients. Personally, I am going to try a prebiotic supplement again, mainly for digestive issues, but not renadyl. I already take one expensive supplement for kidney health, a keto-acid, but that one has a lot of science behind it.

[Yankees28 in reply to WildIris]

Could you share the name of the supplement you take? Thanks

[Citygirl76 in reply to Yankees28]

Yes I'd love to know too.

[Citygirl76 in reply to WildIris]

I'd love to know name as well!

[WildIris]

I haven't decided on a probiotic yet. The ketoacid I take is called Albutrix. The company was started by Lee Hull who has CKD and wrote the book "Stopping Kidney Disease" that is mentioned pretty often on this Forum.

[Yankees28 in reply to WildIris]

Thank you. Yes I have heard of him. Do you feel the supplement is helping? Thanks

[WildIris]

I think so- my eGFR has been going up so I think the whole plant-based, limited protein diet is working. I don't really have any specific symptoms. I only take about half the recommended dose. I would probably take the full dose and be even more careful with protein if eGFR started going down again. It costs about a dollar a pill in the U.S.

[Jumbo1]

Nothing could restore kidneys function. I wouldn't be on dialysis if it could.

[Hidden]

Eating plant-based I raised my gfr from 14 to 43 so it is possible.

[RonZone]

My neph suggested a kidney vitamin, Rena-vite which I've been taking for about 2 years. I have no clue if it's helping or not, but hey, it was worth a try. It has a combination of B vitamins: vitamins B1, B2, B3, B5, B6, B7, B9, and B12.

[tdr1013]

Dadvicetv did a YouTube segment on Renadyl and how much it improved his numbers. It was recommended to him by his healthcare team of doctors. It is a reputable and award winning company..

[Kidney1127 in reply to tdr1013]

Encouraging to read about Dadvice.My dietician that works at a major cancer center recommended I take Renadyl. My Neprologist okayed it. I began taking it over a month ago. My gfr has gone up 10 pts. It can't hurt. Would love to see my creatinine go up, as gfr always fluctuates.

[Missy1950]

I have been on Renadyl faithfully for over 7 years. My GFR has not gotten any worse. Steady at 50-58. I will continue always. Sometimes I will look for another Probiotic with the same 3 that Renadyl has but can never find one.

[Reese4]

Missy1050 It's interesting to see your GFR has remained steady for 7 years. I'm trying to figure out why I've been stage 3A for at least 16 years according to all of the test results I have going back to 2006. Before that there were no results for GFR. Also I find it interesting that neither of the doctors I've had in that time span told me I had CKD until the end of last year. Other than creatinine being 98 all the other tests that denote kidney problems are normal. As I've been reading through the posts on this forum I'm overwhelmed by what some are faced with and filled with compassion. This is a wonderful resource for people in need of support.

Thank you Yankees28 for your question about Renadyl, I'm going to look into it. Whatever helps!

[Blackknight1989]

Folks eGFR is tremendously inaccurate and kidney nephrons do not regenerate so just because numbers up doesn’t mean you suddenly regained kidney function. Simply it means the nephrons you have REMAINING are less burdened by toxins. For example, the reason protein in urine is so devastating is because the protein molecule is larger than the kidney nephron molecule. This when passed through the kidney it’s like bumper cars and the protein molecule literally wipes out more kidney nephrons. Once gone they are gone forever and unlike skin or liver cells they cannot be replaced by the body yet. There is some encouraging research in these areas using stem cells but it’s in its infancy.

I really promise I’m not trying to be a jerk only to ensure we all understand this is a progressive, worsening disease that if we live long enough most likely leads to dialysis and transplant at least until researchers find a better way to treat ESRD. Hope is wonderful but false hope is debilitating. I have spent several years helping other newly diagnosed CKD/AKI patients. I have seen some really inspiring and unfortunately some extremely sad extremes. But one consistent thread is that when patients take control of their health by educating themselves to be their own best advocate, that is when patients do the best. Plus, no one will ever be a better advocate for you than you, no one. In order to help all CKD patients I assert that you encourage and help them self educate. If in the US start with NKF or AKP or NIDDK. Become smarter on CKD than any other member on your care team. I have had a couple different and scary experiences where I may have lost all remaining kidney function due to medical professionals ignorance in prescribing an injectable NSAID for pain and the doc of course thought I was WRONG until I got one to reach out to my nephrologist who almost had a stroke.

All of us know that the patient population is terribly ignorant on all things CKD but so are the non-nephrologist/urologist. As such if you as the patient is also ignorant than who will protect you from mistakes and malpractice that may destroy you remaining kidney function. Absolutely no one and that should scare the s#%t out of you.

Anyway, all just my opinion and experiences and certainly not gospel or even a good book…lol! I wish all the best in their CKD journey.