Hi everyone!
Thank you for your support on my post from yesterday! I've had my urine results back and wondered if you wouldn't mind taking a look at them alongside my blood results?
Ranges are with the results
I dont have any diagnosis and the blood results were a coincidental finding. My creatinine always has been a little high (highest recorded at 103) my urea and gfr have been ok.
Thank you!
That ACR is fine, vit D is very low.
As mentioned before, creatinine is directly related to eGFR so if your eGFR is what it is now it must have been worse when you had a creatinine of 103. The higher the creatinine, the lower the eGFR. You might not have been told about it, folk frequently aren't by their docs for some strange reason.
Run 93 creatinine through the NHS eGFR calculator / female / 34 /Black .. and you get an eGFR of 73. Make creatinine 103 and eGFR drops to 64. That's just above stage 3a CKD (60)
You need to follow up on what's going on - what reason for the low eGFR.
Thanks for your reply!
Vit D is being treated with weekly high dose 
I'll try and get in touch with my GP next week to see what we need to do next
I ran your figures through an NHS eGFR calculator, see edit in post above. Don't go mad on vit D, it's not good for you to be high out of range either.
Don't take any kind of "wait and see" from the docs. You hear it here all the time: folks function not being acted upon and it just declining for lack of action. CKD is serious (if treatable to a degree) and the faster you get to grips, the better. Dunno how old you are but preservation is the name of the game so if your young you a longer time to stretch your function out. Not that that's a bad thing!
There's a poster called Savreen1 just on with very low vitD like you (21). That can be a kidney related thing and cause a thing called parathyroid hormone to rise (which hers has) which isn't what you want. Your GP doc might not be measuring for this.
You might want to start reading around here and start broadening your knowledge so you can assess your medical carers. They aren't necessarily.to be relied upon.
Thank you
I'm 27 (female)
I'll be in high dose vit D for 6 weeks, and then will have a follow up blood test.
I'm having a thyroidectomy next month due to a large goitre, but with normal function. Dr's decided on a wait and see approach for that for 6+ years and it's grown so we are taking action now.
A previous GP also thought a wait and see approach on my pernicious anaemia was a good idea so that was left untreated for a number of years too so I am out of patience for that approach!
Do you think im looking at a mild/early stage CKD based on these results?
I wouldn't be the one to say. Someone could be lifting big weights on a serious basis, raising their creatinine, lowering their eGFR and there's nothing wrong with their kidneys.
But an eGFR of 64 (based on that 103 creatinine) is quite a way down and along with another low reading of 73) makes it unlikely for it to be a one off, to my mind. But the only way to know for sure is to dig down. You could get yourself a nephrologist (indeed, ought to). Someone whose 5 years into a consultancy rather than 20 years in might be best!
Something is going on, benign or not and first thing is to establish what it is.
Wait & c means u the patient can wait & c, as for the Dr - he’s playing golf this week / a full 18 holes - your health can wait. Wait & will see you later. i think it happens though not as blatant as that & mostly because the dr does not know the correct course to take. It takes time, research & action.
I work in the manufacturing industry - I'm an engineering manager. In my game the metrics are clear: we're producing product or the line is broken down. We are making the correct quality or we are making rejects. We are delivering on time or there are empty shelves in the supermarkets and supermarket buyers baying for blood on the phone.
Whether running to keenly observed KPI's (key performance indicators) or something less formal makes no odds - everyone knows there is no room for failure, for failure means your neck is on the line if things go wrong. There is no place to hide.
I don't suppose that if your neck wasn't on the line you would be as motivated. There ain't nothing like extracting tip top performance from anyone .. than trouble landing on their head for poor performance.
No pressure to perform at tip top then how tip top performance? Seems to me the only stick a doc might face is gross misconduct/ gross negligence.
Human nature is human nature and docs are humans first
A poster named userotc posted this in another thread
"Page 3 states: "patients with vitamin D resistance tend to have lower initial estimated glomerular filtration rate (eGFR) and Page 4: "Best clinical practice supports vitamin D supplementation with either ergocalciferol or cholecalciferol for patients with CKD".
In other words low vitd contributes to low eGFR
I m CKD 3b and have low Vitamin D and taking D3 Cholecalciferol . Agree also with your post referencing finding a doctor with more current experience
Any amount of protein in the urine will eventually lead to more and more which is damaging to the kidneys. If I had known this at your stage, I would have started treatment before you find out another way that your protein is higher. I take a small dose of lisinopril now...had I would have taken it five years ago, I would not be at this lower stage. Again, microalbumin turns to MACROalbumin.
How does anyone ever get help if PCP ignores blood work?
Does regular urinalysis pick up protein in urine? Does drinking too much water before urinalysis effect findings?
No they have to specifically test for it. They have now started to in Japan but not in US. All diabetics should be regularly tested too but are not. The 24 hr urine is the gold standard regarding testing for total protein etc.
Always remember that your creatinine and eGFR go "hand and hand." A good rule of thumb is to stay hydrated daily. Even for me, and I have had a transplant, if I don't drink enough during the day it will raise my creatinine and BUN. My nephrologist doesn't check my eGFR. Lab just reports that it is >60.
So with no diagnosis yet I would ask your doctor to repeat your labs. If my labs were out of the ordinary my nephrologist would repeat my labs 2 weeks later.
Remember too, that a CKD diagnosis does not come from a single blood test, rather from a trend over time
To me, the most important thing you can do is stay hydrated, no added salt, reduce amount of protein you eat, etc. You can look at the NKF website kidney.org/nutrition This site will give you ideas on how to change your diet if you are concerned that you will be diagnosed with CKD.
I've read where any protein in urine is an automatic CKD diagnosis... especially if the creatinine is elevated as well. Protein is the speed of the train when it comes to progression of CKD, so it needs to be treated early.
That is YES and NO. Dehydration can cause all kinds of problems including putting added stress on your kidneys causing some protein to be in your urine. If you do strenuous exercise and even the next day go to do your labs - can cause more stress on your kidneys and you will see protein in your urine. This is very true for me.I have had a transplant 22 years ago. I never have protein in my urine unless I am dehydrated. I was sick last week and had to have my renal labs run Friday. My creatinine is usually stable at 0.9 and BUN < 20. My BUN was 34 and my creatinine had jumped up to 1.2 and I had protein in my urine. BUN shows I was dehydrated since it should have been less than 20.
Everyone is different and our bodies react differently to stress.
Have you looked at kidneyschool.org
I lifted weights and ran marathons etc carried around my water bottle and chalked the protein up to that but that could not have been farther from the truth. Better to error thinking you have CKD than not. Wish I had.
You don't have to be sarcastic about it all. You would be surprised how little can cause stress to your kidneys?@#$Do you know what caused my CKD? When I was 9 years old I had strep throat. About 3 months later I was in the hospital with nephritis. 30 years later I was in ESRD. Ya, life is not always fair!
Anne, There was no sarcasm intended. And I am sorry that my comment upset you. Regards. Rox
Please realize that all of us that are Ambassador's for the NKF are volunteers. We are not medical experts but are just trying to help others with CKD. We answer questions from what we know and from what we have experienced. And yes, we did take some classes from the NKF and refresher classes.So, you have not been diagnosed yet...but I was trying to help in what I said. Hope you can except for what it was meant - trying to help.
I was diagnosed in 1991, and have learned how different we all are - in the cause of our CKD and our symptoms. I have also learned that stress on our kidneys is never good. And no, you do not need to be a marathon runner or lift weights for it to be too much for your kidneys.
Having CKD is stressfilled ...we all just do what we can or think is right for us, and hope for the best. I appreciate all input and concerns. We are all on the same team here.
Check out kidneyschool.org
blood in urine
Blood in urine
update to my previous post about blood in urine.
Elevated ACR levels. Can someone help me interpret lab results, please? Feeling very scared.
My Latest Blood/Urine tests Have disappointed Me! More Questions!
