Spaceodessy

[spaceodessy]

Hi im tony i have ckd. Stage5. 11percent gfr. Due to have. Hd. Dialyasis. Feeling low in my mood. And fed up. Will i feel better.

[Jayhawker]

Hi, Tony🐶

There are several people in this forum who are receiving HD dialysis, some for 15 years or longer. I’m sure others will respond soon.

I’m not yet on dialysis but plan to use PD dialysis when the time comes...

Jayhawker

[spaceodessy in reply to Jayhawker]

Thanks for replying. Feel better talking to somebody in the same boat.

[Hidden]

Hi, yes there are a number of folks here who are on dialysis, however there is another community called Kidney Dialysis where you might get more responses and even faster. Nothing says you can't be in two communities.Best of luck.

[Hidden]

Sorry to hear your suffering hope you find the answers your looking for on these fabulous forums . They’ve been a life line for me , I made some nice friends in common too Just been nosy here 😊 are you a Bowie fan

[spaceodessy in reply to Hidden]

Thanks for replying. I like all kind of music.Bowie to elvis presley. It helps. When somebodys. going through the same health issues Take care

[Darlenia]

Hi Tony. My husband went on emergency in-center HD dialysis almost one year ago - in June. He was near death at that point with incredibly high blood pressure, little energy, and more. After he started dialysis, he felt (and looked) much better. We later checked into getting him a kidney transplant at which time we were told to transition to at-home PD since it's easier on the blood vessels. But yes, dialysis indeed made him feel better and saved his life. And he continues to run his business today at age 71. There are many good forums that you can find to help you navigate the "ins and outs" of dialysis. If you're on Facebook and like good conversation with other men on dialysis, you may want to check out "Kidney Warriors: Men's Support". I believe they "zoom" together regularly and membership spans both the US and the UK. (I understand the comradery is outstanding.) Let us know how things turn out for you!

[KidneyCoach NKF Ambassador]

Hi Tony. YES! You will feel better. It may take an a few weeks but you will find a new normal. You may want to try this bookHelp, I Need Dialysis! On Amazon for under $10. If you can't afford this let me know I will send you one.

Also check out

Kidneyschool.org

FreseniusCare

NKF.org

AAKP

Davita

I've been doing this 19+ years. You will go through the stages of grief until you find your new normal. I'm here if you need to talk. Send me a private message.

Blessings

[spaceodessy in reply to KidneyCoach]

Thanks for replying. No energy. Feel stuck. Due to have fistula. As my gfr is 11. How did you feel before dialysis. How are you now. Look forward to your reply. Tony

[KidneyCoach NKF Ambassador]

I felt helpless and unable to get around due to fatigue. Once I started nocturnal home hemo it changed dramatically. I went out and got a job and worked nearly full time for 7 years. We also owned a farm.I feel much better now. It is a lifestyle change, but it does get better.

Blessings

[spaceodessy in reply to KidneyCoach]

Thanks for replying. i dont think my family realise. how tired you feel. Everybody seems to be living their life. And youare walking around like a zombie. Putting on a smile. Mornings are the worst. You feel soso tired. Does anybody have any tips on my journey with stage5. CKD

[KidneyCoach NKF Ambassador in reply to spaceodessy]

People who have never been anemic don't understand the lack of energy. Over the 4th I was making salad, cutting up green onions and apple and had to stop every few minutes as my arms were too tired. THAT is fatigue. IF we had cancer people could get it, but they know we live for years so we aren't offered the same amenities or courtesies. This is NEW, DIFFERENT LIFE. We can still work, attend school, travel, move, drive. If impacts each person differently.Clinics, if you do in center you have to provide your own blankets, pillows, drinks,. They offer nothing.

Cancer clinics they bring warm blankets, pillows, drinks, snacks, even socks sometimes.

Been at this nearly 20 years, 14 arm accesses, many catheters. Done in center, home hemo (nocturnal, extended), PD. I have experience

[spaceodessy in reply to KidneyCoach]

Hi hope you are. Ok. Had fistula done. Waiting to start dialysis. No energy. Is this normal

[KidneyCoach NKF Ambassador in reply to spaceodessy]

Anemia and low iron stores are common. Once they start maintaining these and get extra fluid off your body you will feel better.