New here

[Marci671]

Hi everyone! I’m new here and wanted to introduce myself. My name is Marci, I’m 53, I have stage 3 kidney disease. Diagnosed in June. Still a little freaked out about it. I’m going to see a nephrologist later this month. Hopefully he can give me better insights. I also have angiomyolipoma of the kidney. Not known if this has any bearing on the disease. So many unanswered questions. Anyway just wanted to say hi!

[orangecity41 NKF Ambassador]

Welcome to the forum. You will find support and information here. There is much sharing and caring.

I was diagnosed at CKD 3b, 4+ years ago. I am age 79 and have been on a CKD diet prescribed by my GP. It has slowed down the progression according to the eGFR tests. Your Nephrologist should prescribe the correct treatment for you.

[Jayhawker]

Welcome🐶 Be sure to take a list of questions with you to your first appointment with the nephrologist. Frankly, I was so stressed out about the possibility of CKD when I went to my first appointment that I just sat through it mute saying virtually nothing. Definitely not the best use of the nephrologist’s time or my time🐶😢

Jayhawker

[Marci671 in reply to Jayhawker]

That’s a fantastic idea. My mind is all over the place because of this. Thanks for the help.

[Hidden]

We all panic initially. Four years on and I'm still dealing with the expiry date I was given, now passed!

The reality is at stage 3 and seeing a specialist will give you the right tools to deal with this.

Down under we don't get that luxury of seeing a specialist until it is next to too late. Ambulance at the bottom of the cliff mentality. I'm all about preserving what function I have before getting to the cliff edge, or below.

I have come to learn I have a decease not a death sentence. With changes to your lifestyle and diet it becomes manageable The secret to it all is to try and maintain a stable GFR.

Kidney function decreases with age so consider your GFR against the norm for your age group.

[HealthBuddyMelissa]

Hi, Marci! Welcome to the forum. Here is an article for you to read, and it may spark some questions for you to ask the doctor when you go. ncbi.nlm.nih.gov/pmc/articl...

[shpar]

Hi Marci! Welcome to the forum. I’m also relatively new. I was diagnosed when I was 27. I’m 30 now in Stage 4 and while it is daunting at times, just know that you’ve got a whole community here that you can ask questions to. Stay strong! And let us know if we can help in anyway!

[Marci671 in reply to shpar]

Thanks so much for the support!