Painful days and painful nights - Neuropathy Support

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Painful days and painful nights

franklin1970 profile image
3 Replies

We’re all on our own journeys on this website in this group all of your journeys may be different or similar in some ways but we all find ways to get through the day. We listen to each other we talk to each other we give advice to each other were supportive to each other we pray for each other or can most of all we’re all equal here nobody puts us down on this website because the people on here are all equal.

Remember it’s ok to cry when pain is Bad, and it’s OK to have a breakdown here in again as long as we all get back up. We all have To stay positive and look for optimism and everything laughter fun spending time with love ones or friends. What I’m trying to say is make the most of every day every moment as tomorrow is never promised and it’s either we fight it or we let it beat us so we are on here because we’re all tough like Buffalo and the lord is watching over us.

Lately I haven’t been on here a lot I had the fluoroscopy done on my knees it didn’t work so am I any cabs are popping out constantly. I’m taking flexoral for my Neuropathy 3x day and it’s helping a little, but I’ll keep doing leg ups every day and painful yes! I can’t do push-ups sit-ups crunches can’t lift over10 lbs. My outer abdomen from my sternum and my pelvis is pushed out with only a thin layer of tissue protecting my internal organs so I been wearing an abdominal binder for 6 years and I will always look pregnant as the way my stomach has pushed out and the bloating. I am sad I can’t have any surgeries to fix me. I cried in the surgeons office when he told me I won’t survive the surgery and I just have too many things wrong and my abdomen is full of scar tissue from trauma and surgery. My insides are a mess. I get small blockages ( Movantik) I take for that. I haven’t been anywhere as my legs are so swollen and pain from my knee caps popping out. I walk around the house I’m in pain but still do it as it’s good. I feel tired a lot lately ( fighting fatigue body fatigue) and so I been resting a lot. I talk with all you wonderful people and we all help each other. So may the Lord bless each and everyone of you to have a wonderful day pain-free and to enjoy the day and enjoy each moment make good memories laugh and have fun laughter is good medicine. So you’re always in my prayers I asked the Lord to mend you all and Soothe your pain mentally physically emotionally and most of all keep you in the light of the Lord so that he may watch over you and protect you with his loving warmth and grace he will watch over each and everyone of us amen 🙏

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franklin1970
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Karjade profile image
Karjade

Thank you for such an inspirational post. You are very brave unlike me! xxxx

franklin1970 profile image
franklin1970 in reply toKarjade

Don’t doubt your own strength as you’re strong 💪🏼 in your journey and life. I get darned scared , but then I pray to the lord and my mom. You’re awesome 👏 and when you deal defeated 😕 or you can’t take it anymore, just give your worries to god and he will always watch over you and help you through your pain. I haven’t been able to do much, but I sit on a stool to set up coffee and I clean kitchen do dishes and I am in pain so I listen to music while I do it. Both my knee caps popped out again and with the pain of that and I get aweful Charlie horses and burning and cramping my feet. I just rest after any task. I rest when I really in pain. When you are sleeping 😴 you can’t feel the pain. May the lord bless you amen 🙏

Karjade profile image
Karjade in reply tofranklin1970

Thank you xxxx

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