Time wasted now I getting proper care a... - Neuropathy Support

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Time wasted now I getting proper care at the hospital and through Homecare Nurses

franklin1970 profile image
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Well now it seems like things are starting to get done I’m going to the hospital on this week and And I’m going to a group session 1st all of us have lymphedema and will be getting treatments also I have Homecare nurses that will be coming in and they’re going to fit me for wheelchair I will also get a shower cI’ve been journaling my insulin my blood sugar is what foods I eat and I’m honest with myself and this way I know what makes my sugars go up but since I’ve been on the Enslin on my sugars are dropping between 6.4 and seven point no so I’m doing really good chair in my bathroom because it is very painful to take showers climbing in and out of the tub as one time I am got dizzy in the tub fell and passed out hit my mouth on the edge of the tub and it was bleeding and then I hit my head on the counter cub-board and had a another and injury. Now I feel blessed Because things are looking up as now I’m going to get the care I need and apparently they said I need a lot of it.

The good Lord is watching over me and my husband’s been just a godsend and my daughters as well my family and my pain doctors are so awesome and my GP at least finally got me after over two months into the lymphedema Cris clinic. I have a long road ahead of me just like I love you and it’s to save my life and I want to live a pretty good life and I think life is still good the Lord is protecting me is around me I feel his warmth and his love. And then with home care nurse is coming in and helping me this is going to make life a lot easier they’re going to give me occupational therapist they’re going to do everything they can to help my legs and help me overall with everything there even when I am finding taking insulin at three different injections a day and it sometimes is overwhelming but I absorb it I breathe and I give myself a positive optimistic outlook and I fight and I try. I would rather try the not try it off because if I had I don’t have the option if I don’t try and I give up I will die. So knowing all these things I got the closure I needed to know why my body was going through what it was now that I’ve gotten all my diagnosis. I hope all of you are having a wonderful day and making the best of your journeys and may the Lord bless and protect you every day and always and if you fall remembered to reach up and he will grab you and he will help you as he has done for me over and over. All of you have a wonderful day filled with love and joy much support much positivity doing happy things little bit of exercise whatever you can handle because at least you tried and you did a little bit is better Then none. I’m suffering from severe and I get a change in burning in my leg still and they’re so dry and itchy I’ve tried every lotion out there and nothing works but the nurses are going to take care of that. So lotta work ahead of me I’ll do the best I can I’ll listen to the nurses and the doctors and specialists and do everything I can on my part but lately I’ve been tired a lot. Still having kidney pain and even all the infections gone but I do have a growth on their last year it was benign and this year as far as I know well they told me I had no growth inside my stomach etc. I’m finding the new payment is sent to be good I’m stable but still in pain but stable and feeling human I feel like really really fatigued sometimes and just want to sleep and then I feel very energetic at times all I know is if we help each other talk to each other support each other and just be there for each other we can help each other amen 🙏

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franklin1970 profile image
franklin1970

Gm Granny B! Your so right and yes I am not looking forward to the long road ahead and they giving me a shower chair. I have bars up on bathtub the wall and on wall by toilet so the shower chair will be greatly appreciated as I can’t get in shower on my own just to get my legs into tub for a shower and scrub down and put in lots of pain dizzy nausea and my legs are burning and itching cramping etc. I just feel like my body is really slowing down and I fighting the body fatigue and pain and sluggish muscles etc. Hard to get dressed and do my hair and makeup which is eye shadow and mascara and I feel so good all dolled up. Last night I suffered throughout off and on burning feet and legs and arms right hand goes numb all the time so I woke up and my kidney hurts so bad. It’s still hurts everyday. I know now there’s no pill that’s gonna cure our pain, but it just helps us get to have some sort of pain relief. Winters hard I love it but my bones don’t lol 😂 I love the warmer weather listening to nature and all its beauty and the sounds of birds 🐦 and just that fresh air. Nature is therapeutic and helps relax your mind body and soul amen 🙏 Mottsie May the lord watch over you and protect you always god bless you amen 🙏

franklin1970 profile image
franklin1970

Yes ty dear. You have a wonderful day and do fun happy 😊 things Mottsie. Take care!

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