I'm struggling : Hi, this is the 1st time I've... - Neuro Support

Neuro Support

2,173 members585 posts

I'm struggling

Kittycat2013 profile image
0 Replies

Hi, this is the 1st time I've posted about this particular problem. Last year I had Micro Vascular Decompression Surgery to treat Trigeminal Neuralgia. On the good side, it's cured me from that awful illness. But it came with a very high price. I leaked Cerebral Spinal Fluid many times after the stitches were removed and unfortunately I contracted Meningitis and a Staphylococcus infection within the Fluid. I was in the High Dependancy Unit for 2 weeks, where I also caught covid. Unfortunately I already have been suffering for many, many years from Chronic Migraine, Fibromyalgia, Asthma, Eczema and Systemic Sclerosis and in turn depression and anxiety.

I tried to take my own life in 2021 and very nearly succeeded. Since I've been out of hospital, basically all of this year I have suffered extreme anxiety and my moods aren't just low, I go to very dark places and it's been nearly impossible to stop myself from reaching for those pills again. I've had my antidepressants dose increased recently and about to start cbt.

I just need to talk to someone who has had a similar experience and understands how I am feeling. I feel like a total different person too, even down to taste changes. The Fatigue is so so awful.

I have a loving family, but I nearly got into an argument with my sister earlier this week. She wanted me to go over to our mum'sto sort out a lot of paperwork. I said i was too fatigued, but didnt actually have a migraine. But because she still defines me as 'just a chronic Migraine Sufferer '. I was having to justify my pain - both mentally and physically. Life is just unbelievably hard, and I don't like the new me.

Written by
Kittycat2013 profile image
Kittycat2013
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Memory problem and sleepiness on gabapentin?

Hi there I take gabapentin three times a day, 400mg in the morning, 400mg in the afternoon, and...
Hopesearcher profile image

Hello, new to the group but not to the pain.

Recently I was diagnosed with amongst other things a complex migraine with neurological and...
Daesin profile image

Peripheral nerve pain

There are many serious problems on this site. I have just a little suggestion for the possible...
Hobbledehoy profile image

Awaiting diagnosis... Frightened!

My husband has been suffering neurological impairment over the last year, sadly declined recently....

Hot flushes caused by neck

Hi folks. I kow this is going to sound weird, but here goes. I`ve had neck problems for 25 + years...
catsmummel profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.