Hello.I have severe dermatomyositis. I have been diagnosed 2 months ago. I have severe weakness in leg muscles to the point where I cant walk without help.
I am very confused and scared. I have liver and kidney infections and recently been told that I may have lung disease which is extremely worrying.
I want to see a private dermatomyositis specialist in the UK. Any suggestions? I really appreciate any help and support
Join myositis community forum on FB , you get a lot more replies
Hi if you go on the Facebook community they have files ,which gives all the myositis is consultants in the uk . That might help
Hi Nagjo2010, just seen your post and wondering how you are doing now?
Did you manage to see a Private Dermatologist? If yes, I hope he/she was able to help you going forward!
Like your good self, I have Dermatomyositis, I have lived with this condition for over 6 and half years now, my condition has worsened. It is still very active. I have tried several drug treatments. Presently on Prograf.
I also get worn out doing the simplest task and do require a walking stick and on other occasions, I have to use my wheelchair.
I do hope that you are making a good recovery.
Stay Hopeful 👍
Polymyositis 
Just been diagnosed 
