Polymyositis fighter 💪🏿

[TAKURA]

Hi Guys, my name is Ronald,am 34 was diagnosed with polymyositis 2yrs ago and have been on and off prednisone and methotrexate medication.

With lots of continuous Physcio therapy.

I’m glad to be part of this Group. I will be happy to answer any questions and share my experiences

[periwinkle62]

Hi I'm newly diagnosed - I was told dermatoyositis but the notes say polymyositis with likely antisynthetase syndrome (so who knows, but I'm still having lots of tests). It has caused some lung disease. Can I ask what dose of prednisone you are on and are your symptoms controlled with your meds? They tapered me down to 10mg but I think they will end up increasing it or adding something like Athioprine.

[Lisalou19]

Welcome Takura, these illness is very rare. Can you tell us about your early symptoms? And how you was finally diagnosed? Thank you x

[maidee]

Hello Ronald. Nice to see fellow countrymate on here. To second whats been asked above. How do you feel and how was your diagnosis process and how long did that take. 34 is young for poly and I was dxed at 28 afyer a long illness till I couldn't walk or swallow

[TAKURA in reply to maidee]

Warming to have people around me who care and support us

[TAKURA in reply to TAKURA]

Which town are you located? Who is your physician and how are you feeling now?