The Myositis Organization (a US based forum) has links on the front page for the annual Myositis Patient Conference. The presentations are on YouTube, so easy to watch. Some are just the screens used in the presentation and some include the video of the presentation as well. There is much good info in there but you have to remember they all seem to LOVE IVIG as a first line treatment and I know MY Dr. said no, it's too expensive and too short term. There are good ones on diet and exercise as on the YouTube channel there are others from past conferences as well. The newest one on NAM (both antibodies) was really interesting. Have a look here myositis.org/ but always keep in mind it is US based.
Annual Patient Conference videos (USA) - Myositis UK
Annual Patient Conference videos (USA)
Written by
MAuk
To view profiles and participate in discussions please or .
Read more about...
Not what you're looking for?
You may also like...
Inclusion myositis conclusion
Can any one give me some advice I have been diagnosed with inclusion bodily myositis any please...
Can my GP help with tests?
new doctor (my old one referred me) and I wondered if they might be able to do some tests now to...
IBM people, please post
started a new site and it took some time to get used to it as well. I am still learning. Since I...