Log in
Myositis UK
314 members220 posts

Annual Patient Conference videos (USA)

The Myositis Organization (a US based forum) has links on the front page for the annual Myositis Patient Conference. The presentations are on YouTube, so easy to watch. Some are just the screens used in the presentation and some include the video of the presentation as well. There is much good info in there but you have to remember they all seem to LOVE IVIG as a first line treatment and I know MY Dr. said no, it's too expensive and too short term. There are good ones on diet and exercise as on the YouTube channel there are others from past conferences as well. The newest one on NAM (both antibodies) was really interesting. Have a look here myositis.org/ but always keep in mind it is US based.