I was diagnosed with polymyositis just over twenty years ago.I was taking methotrexate and steroids at varying doses for most of that time,as well as trying different medications for osteoarthritis.I also have fibromyalgia.
Early last year I began to get severe breathing difficulties which in turn caused me to start having bad panic attacks.after blood tests and chest xrays I was advised to stop taking the methotrexate,and that it was known to cause problems with long term use.at around the same time I was advised to gradually come off the steroids as long term use of them was putting me at risk of diabetes. I have now been off both steroids and methotrexate for over a year. I have gotten weaker and weaker.and still suffer the panic attacks,which are really debilitating.I am completely dependent on my wheelchair,and I am so depressed if it wasn't for my brilliantly supporting family I couldn't go on. I have become less and less satisfied with my local hospitals rheumatologist,and my pain management consultant has asked my g.p to refer me to another hospital rheumatologist dept.
I would love to hear if anyone else in the group has had similar experiences,and if anyone knows whether steroid withdrawal could have anything to do with the panic attacks.l would be so grateful for the group's advice.