I am a 59 year old male living in london. I was formally diagnosed with Dermatomyositis in February 2017 having been admitted to The Royal London Hospital in a state of total collapse. After a two week stay under the consultant Dr Stephen Kelly and his superb team I was released back into the world to continue my slow but steady recovery. Since then they have managed to put the brakes on the inflammation but my plan to start an exercise program has been hampered by the PE's I developed on my lungs whilst laid low. Having said this my well being is much improved and I am slowly coming to terms with the long term implications of my disease. From what I have been told and read so far there are hardly two Myositis cases alike; all have commonalities but differ greatly in intensity and secondary symptoms.
It has been a traumatic but interesting journey for me so far with some dreadful times offset by a number of amusing episodes that I will share with you at a later date.
Kind regards, Colin.