consultation: went to hospital the other week to... - Myositis UK

Myositis UK

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consultation

RajSangha profile image
8 Replies

went to hospital the other week to sign consent forms and have a chat, got to admit I've got good a good team looking after me, been reducing the prednisolone by one tablet a week on 35 this week been complaining about the pain in my legs and difficultly walking struggling a lot getting tired and spending time in bed don't want to do anything, also been tested for anti jo-1, two hospital appointments this, month. Staring physiotherapy again next month. Does anybody know about the process of pip. ps I think I need a good drink lol

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RajSangha profile image
RajSangha
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8 Replies

Sorry to hear that you've been feeling worse, I can't offer any advice about any treatment as I don't know anything! I would imagine physio would help and having that extra person offering you some consideration and care might give you a boost.

Let us know how you get on and good luck

Raj. What is pip. Mary

RajSangha profile image
RajSangha in reply to

its the new disability forms

in reply to RajSangha

Oh! Bet it's a nightmare to fill out. Perhaps someone at the Citizen Advice could help. Mary

RajSangha profile image
RajSangha in reply to

the forms are filled out just waiting for a response its been over a month now waiting for an appointment to have assessment

Hi Raj, sound as though you are getting good care, stay with it once the flare has been controlled things will get a little better. glad you have applied for PIP and hope you have a good out come from it.

Jo-Goode profile image
Jo-GoodeAdministrator

Myositis UK have a benefits advisor for members

RajSangha profile image
RajSangha in reply to Jo-Goode

thank you for that info Jo I will contact them tomorrow hospital appointment this afternoon

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