New Study Proving EBV is a Factor in MS - My MSAA Community

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New Study Proving EBV is a Factor in MS

Raingrrl profile image
8 Replies

science.org/doi/10.1126/sci...

This is the link to the study. It could open the door for more targeted treatment. Obviously tons of people get EBV and don’t end up with M.S. That’s why I’m saying it is a factor. Other factors come into play too.

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Raingrrl profile image
Raingrrl
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kdali profile image
kdali

TY! Targeted B cell therapy for specific EBV altered/rogue/disregulated B cells 🤔 Sounds like 30 years away, but I'm also a big fan of none of today's babies going through this, so I hope this goes somewhere. Also sounds much safer than the antiviral treatments available for HIV, which few are privy to.

Now I want a saliva swab during a relapse! (Curiosity only, it wouldn't change a thing)

I read comments from someone in the trial online and found it interesting that they took her samples while in a relapse and then while stable. I hope more on this research gets published.

Raingrrl profile image
Raingrrl in reply tokdali

I got the link from someone on Reddit that is participating in the trial. Funding going forward is a huge unknown right now, so who knows when more studies can be done. 😡

Amore55 profile image
Amore55

I know that I had it twice in high school, although my understanding is that once it is in your system it never really leaves. If I am wrong, forgive me, but that is what my doctor told us at that time. Of course, that was in the time when dinosaurs roamed the earth!

Raingrrl profile image
Raingrrl in reply toAmore55

Amore55 … it does stick around just like like remnants of the JCV virus that can cause PML and remnants of chicken pox that can cause Shingles.

Tazmanian profile image
Tazmanian

As far as I know I never had EBV and I still got MS

Raingrrl profile image
Raingrrl in reply toTazmanian

I don’t recall ever having it either but I’ve not been tested so I don’t know for sure.

Tazmanian profile image
Tazmanian in reply toRaingrrl

Not knowing doesn't really make a difference

Irishgirl76 profile image
Irishgirl76

Hi, not sure what EBV IS? Talk soon.🌻

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