Hello to all and my prayers and good thoughts are with you all....i with now progressive have had strange weeks and its the uncertainty of doing not doing uncontrolled pain etc. With spouse life i have tunneled into where i feel safe if i can move my body. Its when i am in bedstricken and i have to try to block out to survive to get past. I want you to know for sure your words are a blessing to me. you sharing life is a great gift. I realize that my spouse i s a sad mad person and wants me to be on the same plane. my daughter was wise and came right out and said...mom we have known for 20 years what you go thru....you dont have to....in saying that it weirdly gave me permission to be at peace in my heart.Dont let people bring thier misery on you....fight a battle like MS with the tools of hope joy and true friendship.Thank you all for that. two grands start college... joy..they love grandma letters. me addie mae and mrbuster....TY!
Hello Peeps...Is summer almost gone? MS ... - My MSAA Community
Hello Peeps...Is summer almost gone? MS seems worse at those weather times.
Hang in there, friend. Lifting up a prayer for you. And what a blessing to have grandkids in college!
Love your post, jackiesj ! You can control yourself, your thoughts and your actions. You are a kind and gentle soul. Thank you for the reminder. 🤗
and sometimes you need to walk away
So true, jackiesj 🤗
I agree! The weather certainly IS worse at this time of year, compared to previous years 🫣 we've barely had summer here, in north west England! I'm happy my husband understands the shite that my body's doing to my brain, and doesn't complain when I switch the heating on on cold days like today ❤️ he understands that I may not have the energy to do much on some days, which is definitely better than what your husband wants of you! At least your daughter has recognised that you have good days and bad days, and doesn't put strain on you 🫂❤️
yes you know what you need and what makes it better for you and you are the only one that can make those work for you...love and much happiness in life ..
I love this...
This weather is very weird This year
It's good to hear from you. I wish you the best.
thx for sharing with us🤗. you have a difficult road. i had a "friend" years back. we got close during a particularly horrible time of my life. i didn't notice until things started improving for me that she loved for me to suffer. whenever i mentioned something sad or stressful, she had endless words, but every time something good happened, she'd listen, pause for a beat, then change the subject. eventually i had to cut her out of my life. luckily that just meant not ringing her anymore as i'd moved away. i'm sorry your spouse is so wretched. we defo don't need negativity!! it's hard enough to fight every single day against chronic illness. pain makes everything worse and it's heartbreaking to not be able to do things, especially simple things. i remember a relapse when i couldn't clean my teeth well because i had trouble holding anything in either hand. i used to cry every time i cleaned my teeth. i'm trying to imagine how much harder that would've been if i had someone carping on at me all day.
i'm sorry you're going through this.
Electronic Monitoring
Interesting Time in My Life 
Its been awhile...
