MS and stress: Hello my friends...i pray... - My MSAA Community

My MSAA Community

9,653 members21,534 posts

MS and stress

jackiesj profile image
19 Replies

Hello my friends...i pray all is well but as life shows opposition there are some of us digging out. I know you are there...hiding with the screen. I see you all and feel the joy happiness or sadness pain agony. we all share a world with many opposites...which gives us choice and compassion. MS has its life and yet the world continues to move..when stress appears set your sites on what you CAN do not what you CAN'T do. OFTEN i find myself scrapping the chalk board and forget breathing. I am sad,,so the opposite is surely to come in happy...wait for that moment. i miss you all.

Written by
jackiesj profile image
jackiesj
To view profiles and participate in discussions please or .
19 Replies
twooldcrows profile image
twooldcrows

thank you for this is truly all of us at any one moment in time ...yes we do have to keep moving and to go on for what WE need to do or won't to do ...thank you for writting this for i know some always worry about what others may be thinking about what we are doing or not doing ...for this is for us to decide and don't let others dictate for us ..

carolek572 profile image
carolek572CommunityAmbassador

Well said, jackiesj 🤗

kycmary profile image
kycmary

Hi Jackiesj Sounds like life is NOT being very good for you at this time. Understatement I am sure I pray that Father God will hold you in His arms & comfort you. May His peace surround you & His light impower you.

Xvettech profile image
Xvettech

I’m waiting too

CatsandCars profile image
CatsandCars

Definitely waiting - having a hard with multiple health problems that are taking their sweet time! 😠 More appointments than I can fit into the schedule. Dealing with treatment resistant depression. Knowing stress and untreated depression drive MS progression...does not help the stress or the depression!

I wish you the best, jackiesj. I will try to look at the appointments completed instead of al the ones ahead! Thanks for the reminder. ❤️

Xvettech profile image
Xvettech in reply toCatsandCars

Definitely seeing what’s already done counts as wins! Focus on that! I wish you get it all sorted out and start feeling better!

CatsandCars profile image
CatsandCars in reply toXvettech

Thank you! ❤️

Xvettech profile image
Xvettech in reply toCatsandCars

Your welcome ❤️

Cwright170994 profile image
Cwright170994

Good morning 👋 I reasoned with my diagnosis by telling myself that, if there was something up there playing God or whatever, they must have quotas to fill. And if they have quotas to fill, what's ruling over them? It has to give people incurable diseases, and so they give them to people who they know are strong enough to live with it. That's what keeps me going, like I'm "throwing a tantrum" just to show whichever being thing that they won't break me (if you get where I'm coming from). I like to make notes about things, such as appointment dates with where I'm at and maybe who I'm seeing. I've got a routine of what medication I take daily and when, just so I know what to tell Drs and nurses when they ask if I'm in a clinical setting. I'm nearly 10 years since being officially diagnosed. I'm keeping myself busy by doing my bit to help make disabled people's voices heard. To help get us get out and about and safely into places that we wouldn't have been able to do beforehand. That's what's keeping me going. Fight the man 💪 be that strong b-word 💪 never lose sight of making a better world for people like us 💪 give tips, tricks, and pointers to what they're able to do to make life that little bit easier.

I'm looking at becoming a "Buddy" with Shift.ms, just so I can officially do that. I wanted to be a nurse. Nearly passed the last exam of my 2nd year before I broke down after getting my clinically definite diagnosis a few months prior. I still want to help people, it's just in a different way than I planned.

I hope, and believe, you can do everything you want to do. Even if it's just baby steps, you'll get there... eventually 🫂

Greentime profile image
Greentime

🤗

Amore55 profile image
Amore55

Jackie, I really hope that you can find some joy in your life. Maybe just look up at the stars on a clear night and find the vastness of the universe amazing. You are part of it. You are an amazing person and you deserve to have joy and happiness in your life every single day. I’m sending you a special hug and a big smile 😃. Kelly

KGrayiskindaok profile image
KGrayiskindaok

Hi, You are not alone. I thought I’d share some thoughts that have helped me get through some horrible, hard times.

1- Don’t waste your precious energy worrying about tomorrow. We have no control of tomorrow only today. Do the best you can today. Reach out for help even if it’s uncomfortable as much as you are able and realize we can only control now/today. Then let the future take care of itself.

2- (Per Neil DeGrasse Tyson) You were selected to live at odds of 1 of 400 trillion. Enjoy this incredible gift of life as best you can: Sunsets, sunrises, the smell of oranges, green peppers, beautiful music, furry animals, etc. How lucky we are!

3- Nothing in nature stays the same for very long. Things will change.

4- Distract yourself. Watch a comedy, look up some good jokes, find some new favorite music, smile and or compliment strangers. It feels good and helps pass the time.

I wish you the best😊🌷

309Ygi profile image
309Ygi

I understand , I live alone in my camper . Can’t hardly afford to live . I don’t have a double income or someone to support me . It’s me and god at this point . I do understand.

Irishgirl76 profile image
Irishgirl76

This season we celebrate Lent. It’s about all the difficulties and the cross and new life. We can celebrate this to multiple sclerosis in many ways I feel as a good advocate. We have to continue to inform our providers, our social workers and all those who support us emotionally. Thank you for sharing.👍

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Those of us that are experiencing the ups & downs of adjusting our body reactions to ms; after 7 years I've started recognizing an episode coming on & adjust my mood to react to the episode a little less stressed.

AquaZumbaFan profile image
AquaZumbaFan

Jackie, that is good advice.. especially for me for this week. My beloved 16 yo 4 month dog was diagnosed last week with a very aggressive colo-rectal cancer.. it is just a matter of time but his body and mind are still strong.. I had help last week diapering him.. he’s still 53 lbs and now that he’s taking a little prednisone, he can move out.. it pretty much takes two of us to get the job done.. there has been plenty exiting his sweet body and if he’s not wearing protection.. he keeps trying to clean it up.. anyway .. I am going to be left alone with him totally unable to diaper him by myself ( not enough feeling in the hands and balance sucks) but I won’t allow him to be euthanized yet because he is not exhibiting any pain, he is still joyfully eating, drinking and trotting down the lane.. anyway!! I cannot worry about how I felt I was failing him for not being able to diaper him.. just keep celebrating each moment until we just have the memories.. I am really hoping that the sadness lifts and the joy emerges soon for you-

jackiesj profile image
jackiesj in reply toAquaZumbaFan

I hope i have access to doggy heaven one day...

AquaZumbaFan profile image
AquaZumbaFan in reply tojackiesj

Me too.. I feel certain that God wants us to be happy and would never want us to be in heaven without our beloved pups.. It will be a wondrous site one day… it’s time for us to rewash our windows too! And it’s actually time for me to refill our… The have been crazy eating us out of house and seed.. beautiful reds and yellow colors will be emerging very soon.. We have lots of woodpeckers that come as well and of course, other wild birds… thinking nothing but good thoughts for you

jackiesj profile image
jackiesj

Replying to myself. I love you all. it is finally down to me and the Lord. No friends here and family far away. reported husband to whom i could. got the window clean so i can see the birds and almost green rose bush. hobbies await so rely on scriptures and you tube. my 96 yr old mom had a stroke, but really did recover fully, turned off any news....my little pup daily shows signs but we comfort each other..Good counselor from bed....in opposition we learn who we are and learn compassion and prayer. i do not accept abuse and boundries are right and true. I am thankful to be able to do many things like standing after a long hall...swallowing is a bit perplexing. Jackie you may not like this but you are here and still breathing. Easter comming...garden of Gethsemane . Even Jesus friends fell asleep. He also said....if it be thy will let this cup pass...what happens after that is a true miracle for us.

Not what you're looking for?

You may also like...

Stress and MS

MS + Stress = Never a good thing! Holidays+ MS + Stress = Could be even worse! It could bring on...
Jesmcd2 profile image
CommunityAmbassador

How to Forget Stress and MS!

Can I tell my community fam about my week. We go through days realizing in spite of pain,...

MS Medications Life Stress etc: Cognitive issues

Life: finally a lock on my door trying to do the best for me. Only comming int o the rest of the...
jackiesj profile image

Summer flew....hot! MS heat and blessings...

I miss you all.Ive been day to day like all but the memories you have blessed my life with i truely...
jackiesj profile image

The Life We Face With Progressive MS

Before we get the MS diagnosis, we know something is wrong with our bodies but don’t have the...
2468642 profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.