I don't know what to write.: I was... - My MSAA Community

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I don't know what to write.

NicoleWard529 profile image
14 Replies

I was diagnosed in 4 and a 1/2 almost 5 years ago and don't know exactly which type of MS I have, but the symptoms are so different all the time. I wouldn't know where to begin without places like the MSAA being willing to help out and lend a hand when needed. I'm so glad that my physical therapist directed me to you and I hope to get a lot out of this relationship.

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NicoleWard529 profile image
NicoleWard529
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14 Replies
Xvettech profile image
Xvettech

hi & welcome. So glad you found us! This is a great place full of great information and support!

Helpmeup profile image
Helpmeup

Hi NicoleWard529, and welcome! Glad to hear you found us through your PT. This is a great forum to share, to ask questions, to vent if you need to, or have a laugh. There's also lots of good info here from people who are living M.S. every day and really understand what you are dealing with. 🙂

Kit10 profile image
Kit10

hello and welcome

falalalala profile image
falalalala

Welcome!

SageAJ profile image
SageAJ

New here as well & have wonky symptoms .. or so I thought. Diagnosed 5 years ago & still feel that I am too young for this

carolek572 profile image
carolek572CommunityAmbassador

Welcome to this forum, NicoleWard529 . We are all here to support one another. You can visit mymsaa.org for resources on managing ‘ms’. I look forward to hearing more from you. Keep Smiling :-D

JSSimp profile image
JSSimp

Welcome to the group. This group has been a great support and blessing for me for 4yrs. Daily I can’t wait to read what everyone is saying daily when I wake up after reading my Bible. Often it could be 12am and I read a post that carry me through those days of hard times. It help prepare me for my day when it gets challenging often🙏🏾

CatsandCars profile image
CatsandCars

Hi, Nicole Ward529. Welcome to the group. I had MS for 21 years prior to joining this forum, but it has made a world of difference for me. I still feel like death warmed over and have a lot of anxiety about the future, but I feel so much more connected and part of a community. When I'm worried or have good news, it's great to share that with people who care. I have also learned so much from the articles and resources people have posted on here. The resource that has been so empowering as to be life changing is Aaron Boster's YouTube videos on MS. A lot of content on YouTube is sketchy at best, but Dr. Boster is legit. He runs an MS Center in Ohio, and he has a gift for explaining what you can do to manage your MS and why it's important. If you like the videos, be sure to sign up for his newsletter as it tells you when his monthly "Ask me anything" live stream will be.

m.youtube.com/channel/UCkQo...

Jer29-11 profile image
Jer29-11

Hi and welcome to the group. So glad you were directed here ☺️🩷

bxrmom profile image
bxrmom

Welcome to the group NicoleWard529 , sorry for the reason. There is a great group to ask questions, vent, celebrage, and more! Look forward to getting to know you.

sashaming1 profile image
sashaming1

Do you have a Neurologist that specializes in MS? He or she could help answer some questions.

Biggums profile image
Biggums

Greetings NicoleWard529. There are four types of MS. Relapsing Remitting is the more common. You have Progressive which continually keeps progressing. You have Secondary progressive. The other slips my mind. Your neurologist should be able to tell your which you have. They generally monitor you for about a year before they classify you.

falalalala profile image
falalalala

Welcome!

Cwright170994 profile image
Cwright170994

Not a doctor, but a fellow MSer. With symptoms coming and going sporadically, I suspect you have the relapse-remitting form. Next time you see your neurologist, ask them to confirm which form it is 🫂

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