Autoinjector: Got a letter from Shared... - My MSAA Community

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Autoinjector

Christopher04 profile image
18 Replies

Got a letter from Shared Solutions saying not to use the injector I have been using for years. Is there another to use with Copaxone 40mg? Read about the WhisperJect but not sure it can b used for Copaxone. Anyone know or is using it? Thank you all!

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Christopher04 profile image
Christopher04
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18 Replies
SGL33 profile image
SGL33

I believe this happened because people were using the Copaxone injector with Glatopa (generic). I have heard that the Whisper Ject for Glatopa isn’t very good. The manufacturer of the injector isn’t making the Copaxone one anymore either.

My neuro tried to get me a Whisper Ject just to see if we could and for the future once my Copaxone one breaks but it wasn’t approved.

But it is a moot point now, my insurance won’t cover Copaxone anymore, even with the co-pay assistance. I’ve been on it for 6 years and it has worked great for me, it is also my first and only MS drug since being diagnosed. I’d switch to Glatopa, but my skin really needs a break and I am having more and more lipoatrophy.

Probably switching to Vumerity next. Anyway, I hope that helps.

Christopher04 profile image
Christopher04 in reply to SGL33

Anymore switch to pills after being on shots for 10 or more years?

bxrmom profile image
bxrmom in reply to Christopher04

I switched from Copaxone that I had been on from the very start in 2006. My skin couldn't do anymore injections so I switched to Tecfidera in 2019. I am now on the generic of Tecfidera because my insurance woulnd't cover the name brand. I have been doing good on it. My Lymphocite count is on the low side and if my next recheck is low again I will have to switch to somethig else. Wish I knew what caused the levels to be low.

AquaZumbaFan profile image
AquaZumbaFan in reply to Christopher04

I switched from the intramuscular injection of Avonex for probably 18 1/2 years to Aubagio may 2021.. if we did the calculations right I think I had about 960 intramuscular injections in that period of time. I was so glad to get off the shots. I have since switched to the generic form last summer and haven’t had any real problems.. I’m getting ready to go to Neuro for my check up in a couple of days. I still wait for the other shoe to drop. And they’ll make me do something different..

LHermitte profile image
LHermitte in reply to SGL33

I'm sorry to hear this news. There was one year when I had to be on Glatopa, as insurance wasn't covering Copaxone at that time. My neuro doesn't think it's an effective substitute for Copaxone, which has - for the 20+ years I've used it - been an excellent med. Glad I can take it again, and I hope Vumerity works well for you.

Christopher04 profile image
Christopher04 in reply to LHermitte

My neuro saysthe same.

LHermitte profile image
LHermitte in reply to Christopher04

That's interesting - thanks for sharing! We could always use new meds with this disease, especially given all the different side effects involved. Copaxone's been my real ally for decades now.

Cwright170994 profile image
Cwright170994

I've used one called csync autoinjector when I was on copaxone, but I think that's been taken off the market now too (for some reason)! I was on ocrevus when that got done 😕 I briefly tried kesimpta, but I decided to go back on ocrevus. The kesimpta is one that is built into an autoinjector.

ByeByeMS profile image
ByeByeMS

Copaxone was a great first DMD for me. I would only use an autoject Copaxone recommends. Just ask Shared Solutions what to use

agate profile image
agate in reply to ByeByeMS

I agree--you'll need to check with Shared Solutions. If there's a new and supposedly improved autoinject device you should be using, they should definitely send it to you ASAP. I've had some bad experiences trying to use different autoinject devices. In fact, this time around with glatiramer (the last 3 years) I gave up on those devices in general and just did the thigh injection sites for all of the shots, which I could do with the manual syringe method. This was all right so long as I was careful to rotate the locations where the needle went in on the thighs, making sure that no one location was used more often than once a week. I was also able to do the abdomen shots manually but gave up on them because I was having injection site reactions that were uncomfortable to put it mildly.

Christopher04 profile image
Christopher04 in reply to agate

I did contact them and was told there isn't a replacement. Thanks for answering. Maybe Teva will come out with a pen type injector

agate profile image
agate in reply to Christopher04

Have you thought about trying the shot without the autoinject device, or is that how you're managing now? I found that it was actually easier except that I had to give up on the arm sites and the hip sites because it was too hard to reach them. I had a couple of bad experiences with the autoinject devices. For instance, once it popped open somehow and the whole syringe went flying across the room, spewing medicine out. Ruined that syringe through no (known) fault of my own.

Christopher04 profile image
Christopher04 in reply to agate

Yes that is what I am doing now. Thank you for your reply.

itasara profile image
itasara

I was on coaxone using the injector that came with the medication for 12 years. After 12 years and having always had a mild form of MS I came off all medication having to do with MS. I have been off for five years. I had no problems using the Injector. I have thin arms so after about nine years, I rescheduled my arms to be done once a month and I use my abdomen twice a month instead of once a month. I had a schedule I worked out and it was all good. Never had any issues with injections. I hope I do not have to go on any NF medication’s. I am over 75 now. However, if I have to go back on a medication, I think I would go on a pill instead.

oudie profile image
oudie

I found the phone number for my Whisperject if you want to ask. 1-877-446-3679. (1-877-4-INFO-RX)

Christopher04 profile image
Christopher04 in reply to oudie

Thank you

OSU13 profile image
OSU13

Hi Chris:

I was on Copaxone for over 20 years. I used the auto inject in the end of using the drug. The Whisper Ject is just another form of the auto ject. using it is just another form of the same thing.

LHermitte profile image
LHermitte

I wish I had an answer for you, Christopher. I've never used an auto-injector for my Copaxone, as I've managed pretty well without one. I hope you find one that's compatible.

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