Tysabri Infusions

[Marz91]

Good Morning & Happy Sunday Guys!!

Just an Update! My daughter Melani Grace is now 9 months & time is flying by! But after meeting with my Nuerologist, I've got to start treatment again next month. I was previously had the Ocrevus Infusions and now changing over to Tysabri. At least this time for treatment, will be a little different to where I'll only to have to go twice a month, instead of every 2 weeks; like before. Has anyone had the Tysabri Infusions? If so, did you have any changes or side affects?

[lbenmaor]

I wish you good luck. I've never had those infusions before.

Leslie

[sashaming1]

I had Tysabri for about 10 years with no side effects. It stopped me from having new lesions. I had one infusion per month.

[Scout4x4]

Tysabry is the most effective DMT on the market. It also has the highest rates of PML if you are JVC positive. I would have that checked.

Other than that, your DR is giving the longest period of time between exacerbations to be a Mom.

[CatsandCars]

Hi. Marz91! So glad to hear that you and Melani Grace are doing well. It's good that you're getting back on meds! I've never been on Tysabri, but I know my old neurologist thought it was a great drug. I've pretty much only heard two things about it from folks on here, and those are that they're on it and they really feel like it's working for them, or they had to quit because their JC virus level got to be too high (to prevent PML, which as you probably know is a very serious adverse event) and their doctors took them off of it. In which case they're usually very unhappy because they really liked it. Your doctor can explain in more detail how they'll monitor your blood work to help prevent PML.

You have to really be good about getting your infusions once a month, though. It may be hard with a little one to go that often, but I'm sure you know how critical it is to prevent new lesions, relapses and disability down the road.

Good luck with the Tysabri! I think you'll like it. Let us know how it goes!

[Marz91 in reply to CatsandCars]

Thank you so much!! Before I was getting Ocrevaus infusions and to Neurology clinic every 2 weeks!! But once a month is so much better!!!

[CatsandCars in reply to Marz91]

Yep, two weeks is a lot. Thanks for the update, Marz91! Keep stopping by and letting us know how the two of you are doing! ❤️