Tysabri and how you feel when it is almo... - My MSAA Community

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Tysabri and how you feel when it is almost time for an infusion

DVCshop profile image
6 Replies

Hello everyone,

I have been getting Tysabri infusions for for four months now and I am noticing that for several days leading up to my infusion I am more tired than usual. I am just curious if anyone else has noticed anything similar.

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DVCshop profile image
DVCshop
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6 Replies
Royjr profile image
Royjr

I’ve noticed the same things. I feel the increase of being fatigued and less energy.

Kenu profile image
Kenu

I was on Tysabri for seven years and always had it done on a Friday every month. On Wednesday prior I would notice a little more fatigue and knew I was ready. 👍 Ken 🐾🐾🐾🐾

Letmewin profile image
Letmewin

Yeah I have that same reaction. When it is time for the next dose I have told Dr and Nurses that feels like it has worn off and I feel like nothing it working right and I would say the medicine is not working. what to do

bpriddle profile image
bpriddle

I agree with all the other comments. The week before my infusion I also get tired. I believe that is one of the drawbacks of the medication. I just live with

1RiskyRich profile image
1RiskyRich

When I took it I noticed that in day 21 after the infusion till the next I would be more tired. Probably cause it was starting to wear off.

DVCshop profile image
DVCshop

Thank you everyone for sharing your experience. It is always reassuring to know that you are not alone and someone else can relate to what you are experiencing.

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