DMT's: Have no limits. My Ex-neurologist... - My MSAA Community

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DMT's

Birdloverforever profile image

Have no limits. My Ex-neurologist tried the same thing on me. I was 60 and taking tecfidera. Found another neuro (script writer). I am 62 and still on it. The DMT's have not been out for very long to do age studies. The neuro's don't like prescribing because they cost a lot and liability is high. I like tecfidera. Been on it for 10 years. It is a pill take twice a day. I used to be on tysabri and felt great but tested positive for JCV. Don't give up.

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Birdloverforever
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6 Replies
CatsandCars profile image
CatsandCars

It's great to hear that you were able to stay on your meds and are still doing well. Good for you! 😊

BettysMom profile image
BettysMom

What do you mean "the liability is high?"

bxrmom profile image
bxrmom

Great news that you are able to stay on your meds. What do you mean "the liability is high?" I have been on the generic of Tecfidera for approx 3 yrs and 2 yrs before that I was on Tecfidera. I am doing great on it, no more injections. My white cell count tends to be on the low side but as long is doesn't go below a certain number my Neuro is ok with me staying on it. I have a recheck with her today and most likely bloodwork after the appointment.

Tazmanian profile image
Tazmanian

Keep using your meds

Lhallgrigsby profile image
Lhallgrigsby

Yeah I tested positive for JC virus all ten years on Tysabri I kept on going, my nerologist felt that yearly MRI was good enough to check forPML. But, I've moved on to Retuxun.

My neuro. would not ok continuing with Tysabri. I went on tecfidera which is working fine.

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