Does anyone understand being treated dif... - My MSAA Community

My MSAA Community

8,971 members20,688 posts

Does anyone understand being treated differently because you have MS?

OSU13 profile image
12 Replies

There was a time when I was the boss. I was responsible for everything. Now I have no responsibilities and no one cares if I'm here or not. Has anyone ever felt this way!

Written by
OSU13 profile image
OSU13
To view profiles and participate in discussions please or .
12 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

MS is hard enough without it taking everything else to... Don't let others treat you differently if you can help it, and we care that you are here!! 🤗🤗💕💕🌠

OSU13 profile image
OSU13 in reply to Jesmcd2

thank you! I needed your encouragement today.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to OSU13

I get it, ppl here you have MS and think all of a sudden we have lost our minds and we can't do anything... I don't explain anymore.

I found that it's easier for me just to do it. If I can do it I will, tude 🙂 So get outta my way, or help. If I can't, I get help. But I'm not going to let anyone make me feel less than, just because I have MS! No way, no how!

You either! You matter! 🤗💕🌠

Dear OSU 13 boy can I ever relate to that, I was a letter carrier when still able and even leaving out the few who thought I might be contagious there were those who wanted to" help" when none was needed and of course the folks who thought " oh sorry you're one of Jerry's kids" so yeah I was definitely treated differently by some . But let me also point out there were some really great folks to who just actually got it

Dan_NY profile image
Dan_NY

Do I ever get this! I am not dx with MS but have many symptoms and clearly a health malady. I still work for now and its a well known fact my memory is not what it should be. My coworkers talk on calls like I am not there, disregard what I do and leave me out of just about all tasks. Its really something. What gets me through is "altering my view of the situation". I am lucky, in a way, as are you. I have a work day that is not full of stress, no deadlines. If my coworkers want to do the lions share of the work that is their decision. I am (still) gainfully employed and receive a paycheck!!!

NorasMom profile image
NorasMom

I haven't really dealt too much with people's attitudes (unless you're talking family!), although I did have a couple like Formerbikeguy who thought I was contagious. I don't think they believed me when I tried explaining it. Anyway, my problem was mostly in my head. I'd left a management position that I loved because I could no longer work the long hours involved. Moving to a menial job just to pay the bills was about the most demoralizing thing I've ever done. It was hard to change my mindset from fixing everything to just standing back and reporting it to my supervisors. I was glad when I could finally leave the workforce entirely, but it's been hard to adapt.

Mollyabigail profile image
Mollyabigail in reply to NorasMom

I hear you! It is hard to adapt! That old habit of rolling out & going to work dies hard. But yes, people do treat me differently. As if I am mentally challenged or something. I am still 'me'. I just walk funny now.

OSU13 profile image
OSU13 in reply to NorasMom

My problem is that I work in my family business so work is with my family. You can’t escape when everyone you work with knows your business.

NorasMom profile image
NorasMom in reply to OSU13

Round up Jesmcd2 and the rest of us. We'll take care of that problem, then we can respond to her post. Bwahaha. 😁

Allen5280 profile image
Allen5280

Only every single day

OSU13 profile image
OSU13

thank you for all of your support. I feel so much better knowing that I’m not alone.

Wtfisup profile image
Wtfisup

🙋🏻‍♀️

You may also like...

Forgetting you have MS

he stops flailing. At which time, I have established dominance. But, I have MS and while he is...

Does anyone body feel worst off taking your MS medication vs. before you even started?

does that when I put on my shoe. Without shoes that big toe truly has it's own mind. It now...

How does your MS leave you feeling?

thousand words' so.... I feel alot like this! Frozen in time and place all the while waiting for...

Has anyone been pregnant after being diagnosed with ms?

I already have children but one of the things that really crushed me when i was diagnosed was 1....

What lessons has having MS taught you?

patience for me. It's like an extreme sport at times but I do work on it. I can't wait for your...