Not to say its the meds but you wish things could be as steady as your MRI reflects in terms of your MS! I don't get how I am literally in pain everyday! My mobility sucks! I'm so stiff. I try to exercise!
My foot drop is a whole another conversation. You know how you make a fist. My foot does that when I put on my shoe. Without shoes that big toe truly has it's own mind. It now bend/folds further back at times. I really didn't think it was a such thing as it being at a different stage with foot drop too. But I guess that's part of why it's called primary progressive for me!
My son constantly straightens my left foot out when I'm sitting. He goes mommy that should hurt! How can your leg and foot go in such a awkward direction? Combination of stroke and MS just has the left side pretty unstable.
I told my doctor I want off the rollator. I need you to get me back to a different new normal I call it. I want to walk without a rollator or cane. I want to walk in a store without needing a scooter. I want to feel no pain in my legs/back and neck! I don't want to feel I'm carrying 200 additional pounds that's not truly there! He said I cannot promise you that. He said I want you to know some people are worst off than you! I sat there and said you're right!
My life has changed, but I'm still pushing through the obstacles. I keep it positive for the most part of thinking about things that make me laugh. Thinking about my accomplishments. I'm glad I was able to do a lot of things before MS truly invaded life. Of course before being diagnose you start to conclude somethings wrong. At least I did... To be normal again...Not to say I'm not, but you all know what I mean. To wear a pair of stiletto's again...Man those days are gone...I just needed to vent!!!