Briumvi or Kesempta: Anyway have and... - My MSAA Community

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Briumvi or Kesempta

Caste19 profile image
15 Replies

Anyway have and experience with either of these drugs. After a very had time with Aubagio my Doctor is recommend these drugs. I am a little nervous about an infusion that last 6 months because if I have a reaction, it will be in my system a long time. I have asthesma, thalesemia and have had breast cancer in the past so my options are limited.

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Caste19 profile image
Caste19
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15 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Caste19 l havnt been on either of them. But there are ppl here that are, that can help🙂 Just make sure if you have questions or concerns about your treatment, you talk to your Neuro! 🤗💕🌠

Helpmeup profile image
Helpmeup

It is always a difficult decision to pick a new therapy. After several other therapies, I tried Kesimpta last year. Unfortunately, I had a lot of bad side effects and had to stop after 6 months. I know lots of people do very well on the B-cell therapies. Of course, everyone reacts differently, so all you can do is follow your neurologists recommendations. I wish you all the best!

anetap4545 profile image
anetap4545 in reply to Helpmeup

What were your side effects?

Helpmeup profile image
Helpmeup in reply to anetap4545

Several hours after my first injection, I experienced an attack of widespread severe pain that lasted a few hours. After each monthly injection, the attacks of body pain got progressively worse. I tried to stick it out, hoping it would get better, but after six months I could not continue and stopped taking it.

anetap4545 profile image
anetap4545 in reply to Helpmeup

Which one works for you now,?

Helpmeup profile image
Helpmeup in reply to anetap4545

Hi. Actually, after my experience with Kesimpta, I decided to stop taking DMT's. I had been on 7 different therapies over 25 years, and finally made the decision to stop after consulting with my neurologist.

anetap4545 profile image
anetap4545 in reply to Helpmeup

Feel like I was forced into them a ib was scared of getting worse. Did they help you, how are you feeling now?

Helpmeup profile image
Helpmeup in reply to anetap4545

Doctors cannot "force" you into any meds. The decision to take a DMT is yours alone. You certainly should listen to your neurologists advice, but ultimately, you have to decide what is right for you. Please keep in mind that the course of M.S. is very different in each person. A drug that works great for one person might not work well in another person. It is trial and error. From reading your other posts, it looks like your neurologist recommended Tecfidera or Kesimpta. Both are very good options, but you will have to decide which you are more comfortable with. The newer therapies like Ocrevus and Kesimpta are very highly regarded and lots of people do very well on them. The only way to know if a particular DMT is going to help you, is to give it a try. Many people who post here have tried a few different drugs before finding the one that worked for them. As I said, listen to your doctor's advice, make your choice, and hopefully, you'll take an important step in your M.S. treatment. Best of luck to you.

FearlessMsMimi profile image
FearlessMsMimi

I was on Aubagio and I elected to go with Tysabri it’s tried and true and I’m always exhausting meds that have been on the market longer rather than the newer ones. I always like to leave room to climb the later if I get worse. 22 years 9th DMT for me.

Helpmeup profile image
Helpmeup in reply to FearlessMsMimi

Wow! I thought I had been through a lot of DMTs! I did 7 different DMTs in 23 years, but you did 9! Glad the Tysabri is working for you. All the best!

CV97 profile image
CV97

Hello Caste19 ! I switched from Aubagio to Kesimpa about a year and a half ago. I would have to travel about 45 minutes to get infusions and also take time off work, so I chose Kesimpta because it was more convenient. It is shipped directly to me and stored in the fridge until use. The hardest part is remembering to pull it out of the fridge so it can warm up a bit before injecting. It literally takes just seconds once a month to take Kesimpta.

Aside from the starter doses, which are expected to make you feel yucky for a few days, I haven't had any unwanted side effects from Kesimpta. I do know some people have had problems with it, so be sure to follow your doctors advice if you do decide to try it.

If you have any other questions, let me know!

anetap4545 profile image
anetap4545 in reply to CV97

You still have 0 side effects on kesimpta?

Xvettech profile image
Xvettech in reply to anetap4545

I do. I’m sorry I wasn’t asked but I have been on it for 2 year now. No side effects but now I have gall stones. I can’t say it’s the kesimpta but still :/. They don’t hurt yet I hope it stays that way. lol

CV97 profile image
CV97 in reply to anetap4545

Yep! Still zero side effects from the monthly Kesimpta shots.

OSU13 profile image
OSU13

Hi Castle 19:

I have been on Abagio since 2017. I have had no problem with the drug. After giving myself injections for over 20 years I am happy to take a pill every morning. I have no side effects to the medicine and it has kept my MS under control.

Please write back with any questions that you have!

Have a great day!

OSU 13

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