G'day Relapsing- Remitting ms (RRms) family. Just to state the obvious. Move, if YOU do not use it YOU will lose it. I do not suggest that YOU run 4 miles around the block or spend umpteen hours in aerobics classes. I am saying move your body. Find something that YOU can do and do it. Keep at it, just plod along, and MOVE your body. There is something that YOU can do.
Royce
Absolutely!
When I first met you on here nearly 5 years ago your motto was “ Use it or lose it “ I have never forgotten that, you taught us all something thank you 👍 falalalala
Do we really have a choice wheather we loose or experience a lesser ability because of the effects of MS? IF we do, please inform healthcare facilities around the world how to do so.
yes. I think I’m proof. The drs (4 of them) all say the are surprised to see me still “walking”. Ok not like a normal person - the drop foot helps with that. But I can use my walker and be successful! I have always been a very active person- this helps! I do lots of puzzles and music and art. I love surprising them! This disease more than sucks but the look of amazement for them to see what I can do is priceless to me! I love amazing them. I hope I can forever.
F the “healthcare” facilities. They only like to hear of drugs-“medicines”. (Everyone wants a miracle cure. There is none but move what God gave you)They should be telling patients to keep it up. Don’t just shrink into a vegetable That’s why we have a great forum here to read peoples experiences and try and do what we can. I say keep moving!
I have to agree with you, Xvettech. I've never been athletic, but as a typical country girl and my father's only son I grew up quite active and strong. My neuro thought I'd be bedridden and/or permanently in a wheelchair by now, and I credit my upbringing for the fact that I'm not.
I wear out easily, there are days when I don't dare attempt steps, and I do use assistive devices outside the home. But every day that I get out of bed, walk to the bathroom and coffee pot, let the dog out, is one day that the "healthcare" people thought I wouldn't have. I may move slowly, but I'm going to keep moving as long as I possibly can!
agreed 300%. And it applies to more than movement... make your brain work, read, do logic games, memory games, ... look at your brain as a muscle that needs to practice a lot to stay healthy. use it or lose it.
(note that this applies even if you don't have ms)
sooooo very true
I would like to move more but I just can't, I do try but not very successful
That's good enough, Tazmanian! I've had times when my legs wouldn't move to save my life. Whatever you CAN do is right for you.
Tazmanian we're all hit physically by ms in different ways. Some days the fatigue is so heavy that I can't get out of bed so I do my "exercises" in bed - rotation of the ankles, hips, bending you knees to bring your feet next to your butt, neck rotation, breathing exercise... everything count. whatever you can do, even if you need a belt to help you move your legs.
Great response, Anaishunter! I think there's so much focus these days on exercise and activity that all too often we tend to forget just how much movement is involved in daily living.
My mother is more active than most people I know, but she insists that her lifestyle is sedentary. One day I told her to pay conscious attention to every move she made the next time she walked into the bathroom. (It seemed like the simplest, because that's a small room with limited activities.) Reach up with her arm to turn on the light. Walk how many steps to the toilet. Use both hands to unfasten her pants, then more effort to drop them. (We'll stop there. You all know what's involved.) Re-dress herself. Walk to the sink. Reach out and turn on the faucet. And so on.
It really made her stop and think, not only about her own life but about why I pace myself and count my "spoons". As adults, there are so many unconscious movements that we make every day that I think we often criticize ourselves needlessly. If getting out of bed is all that you can do today, it's still movement. Be proud of yourself for doing that much.
Life’s work out modifications the way I move
