Two things I learned about my MS during ... - My MSAA Community

My MSAA Community

8,921 members20,602 posts

Two things I learned about my MS during the move:

Juleigh21 profile image
25 Replies

1) I'm not as fragile as I thought I was.

I accomplished way more than I thought I could with no terrible side effects.

2) I'm not near as strong as I once was.

When I was working with my 3 daughters, I realized for the first time how weak MS has made me and it really surprised me.

Written by
Juleigh21 profile image
Juleigh21
To view profiles and participate in discussions please or .
25 Replies
Doubled51 profile image
Doubled51

I'm in the process of packing to move and I can't believe just how hard things have become. I stay so tired its all I can do to get anywhere. What used to be nothing is now a major hurdle to overcome. I seems like the deadline is coming and we have to far to go to be ready. I'm very anxious that I'm not doing all that I should and my wife is getting the short end of the deal being she works a full time deal. But I know that I'll find the extra push from within to finish this because the reward of getting my wife retired from this move will be worth it in the end. I can and will find the strength to do more than I think my ms will allow because it will not stop me from finishing what I've started. My God will give me the strength to do all things.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Doubled51

Doubled51 be careful, as you might do more can be than good.😐 Pushing yourself into a relapse will not help anyone, least of all your wife. I just suggest that you listen to your body. It really does know best. I think anyway.😄 So take a break if you need to.😊

Jes 🌠

P.S. And hire some kids? Schools out now😅

Doubled51 profile image
Doubled51 in reply to Jesmcd2

She just called telling me she turned her 2 week notice which is what caused this move to begin. She's been working almost non stop since she was 18. Her job is very stressful being a customer service rep for an insurance company. Listening to Dr nurses

and billing people calling about stupid stuff and dumb question. A person called her complaining about a claim for $.01. That's how crazy some people are. I started working on this move in April with the sole purpose of getting her out of there. Well I finally succeeded. The only way she could retire was to get rid of our house payment. When we close on this house we will close on our new place for cash. Debt free so however hard I have to push myself or hire somebody to do I will have accomplished my goal. If we can just get the packing done my son and grandson will do the loading and moving. Thank God. I just feel like I could do more but your right if I wind up knocked down by overdoing I will be totally out of comission and no good to anybody. Sorry to have carried on so long but I'm extremely stressed out and just had to vent I guess. My wife tells me not to overdo that she will handle things but I'm old fashioned I guess and it's so hard to sit back and watch someone else do what I should be doing. God bless.

ssdw1958 profile image
ssdw1958 in reply to Doubled51

Good luck if I had to move right now I would have to have someone to seriously have help me. I know it would take a very long time and you know or should I say I know people and I won't use a name (not my husband) they would say it's time to throw things out. You know I know I should get rid of stuff but I don't need any ones help in doing that.

I hope you get everything done that you need to do. I know you will we might have MS but we still have that Drive in us to do it, we just needs someone else's mussels.

Doubled51 profile image
Doubled51 in reply to ssdw1958

I understand about throwing stuff. After 23 years of accumulating a garage and basement of junk I threw away a 30 yd dumpster and a 20 yes dumpster and would have thrown more away if it was up to me. Lol. If not for my sons help I couldn't have done it. But when your downsizing stuff has to go. And yes my wife is upset about some stuff that's gone But it's easier to ask forgiveness than permission. Haha. But there is still so much to do. Hopefully they can get the new place closing soon so I don't have rent my house for a month. Haha. Without lots of help it wouldn't be possible.

ssdw1958 profile image
ssdw1958 in reply to Doubled51

Oh I hope all goes well with the closings. My sister a couple of years ago put her house on the market and within a week she had it sold, then she had to rent a house because her new place wasn't built yet and she was moving out of her state. Everything thing finally went well. My husband keeps on saying we should move out of the cold weather but I keep on saying we can't move my youngest son is in college that would double his tuition. Wow I go off track sorry about that. Good luck on your move.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Kinda stinks huh!😡😤😄 Juleigh21 Hang in there!😊 💕

Jes 🌠

greaterexp profile image
greaterexp

Juleigh21 , you nailed it!

Juleigh21 profile image
Juleigh21 in reply to greaterexp

It was a long, time-consuming, and at times exhausting process. I'm sure you're very aware of that LOL. Have you found a new place? Slow and steady greaterexp . Now is not the time to overdo it and relapse. My husband reminded me of that often.

greaterexp profile image
greaterexp in reply to Juleigh21

Yes, we have a new place. It's all just paperwork getting finished before we have a moving date. I'm trying to pack a little every day and keep purging stuff we don't need (and probably never needed!) It's a big job, no matter how it's chopped up, but it's very freeing to see things go to people who really need it. Less for me to dust, too!

Enjoy your new home!

Doubled51 profile image
Doubled51 in reply to greaterexp

You bring up a very good point in giving things that we don't and never needed. My wife is very attached to things I consider as not needed That's been accumulated over the years. Especially gadgets. Like egg cookers or pan cake cookers just useless things that she sees at dollar stores. And crock pots. Everything I move to pack I find another one. I have found at least 10 crock pots. Lol. It drives me crazy that she won't turn loose. Im the type person if you don't use it on a regular basis give it to some one that will. Plus I don't want to move it lol. But it ain't up to me I guess.

Juleigh21 profile image
Juleigh21 in reply to Doubled51

My husband and I each questioned each other's stuff and the practicality of moving it LOL.

Doubled51 profile image
Doubled51 in reply to Juleigh21

Practicality is not in my wife's vocabulary when it means giving up her possessions. Lol

Eleyne92 profile image
Eleyne92 in reply to Doubled51

Lol, Doubled51 pick the best, donate the rest! My mother was that way, and now that she's passed, Dad has all this stuff to sort and get rid of. He doesn't know where to start, or where it should go. Good luck keeping the peace.

Doubled51 profile image
Doubled51 in reply to Eleyne92

Thanks. I'm already in trouble about stuff from the garage my son and I made our evaluations on before disposing of. Our ideas and her ideas didn't match but the stuff was already gone. Sorry. Lol.

Juleigh21 profile image
Juleigh21 in reply to greaterexp

Congratulations on finding a new place! I hope you have many happy years there!

I didn't enjoy packing but I did enjoy purging. We gave so much away and yet we still own so much. Crazy!

WAshingtongirl profile image
WAshingtongirl

Happy to hear you didn't end up in a relapse with all you've done these past few months, Juleigh21 . I second greaterexp 's response. And add a congratulations for all you've accomplished! Now take time for needed rest and enjoy your new home. I hope it turned out to meet all of your expectations. 💕

Juleigh21 profile image
Juleigh21 in reply to WAshingtongirl

We're busy trying to make the house into our home. I'm very very tired and I'm listening to my body and resting. There's no rush anymore. Thank you WAshingtongirl for your kind words!

Birdymom3 profile image
Birdymom3

You can do it ,do you live an area where it is hot or humid for some people that can effect how you feel with M.S. there ways to cope with it cooling vests or packs can be a Godsend. 12 years ago I thought that I would have to give up gardening or flower beds thanks to my cooling vest from Msaa I have learned how and when to go outside and do what I can do that day, because it will be there the next day, and don't over do it! It is still a lesson in progress because MS has a mind of it's own. Good Luck and prayers.

erash profile image
erash

Juleigh21 glad the move went fairly well. Hope you can relax a bit now 🌈

Yooper profile image
Yooper

I know the feeling and I hate to ask for help with something I could easily do in the past. Stay positive and keep moving.

DianneB profile image
DianneB

I'm with you!!! My situation has changed a lot over the past 2 weeks. I have my husband home now and there is "SUPPOSED" to be nurses and aids, bath help, house keeping help, etc but so far its been on me alone to care for my husband and his needs! I don't mind I asked for it and because we have been together for 36 years, Its my Job! He would do the same for me. It would be nice to have the help come and give me a break. My MS is not slowing me down too much but the days get so long and he seems to get a little more heavier all the time. I think I need to give a bit of a background story....H went onto Dialysis in Feb 2016. In July that same year his leg was amputated ( too many horrible infections) then came the C-Diff! THIRTEEN TIMES! Every time made him weaker and took more of him away from me! I could leave him in the nursing home in because of the re-occuring infections!!! I am dealing with bedsores, uti's and diarrhea from the antibiotics! He doesn't have much time left and I can not go into that place any longer (the nursing home)! I know this is stupid of me but it is hard to see your best friend waste away and be ignored!

That is what I saw every day!!

So I am reaching deep into myself to get the strength to carry on! I also show up for my infusions get plenty of sleep (PM Aleve works great!!) then get up and do it again!!

Juleigh21 profile image
Juleigh21 in reply to DianneB

God Bless you! That seems so overwhelming to me. Please remember to take good care of you. You're extremely noble. I hope and pray the tysabri is well tolerated and works wonders. I know it does for me. Best of luck to you and your hubby!

jackiesj profile image
jackiesj

Juleigh21 I have realized with strength I'm not 21, that was me this is now, i can ask for help, go to bed when you can and in a move take care of you.I thought it was all MS or all me...now i know its being human......

RoyceNewton profile image
RoyceNewton

it does get better different but a little better.

You may also like...

3 things I didn't (& won't) ask my neuro about my MS

else MS: when reading about it, the distinction between all of them is still nebulous. I'm happy to...

What I learned in 20 years living with MS

diagnosis! When I was first diagnosed I was so afraid for my future and although it's not what I...

Talking about MS with my son

son. We first started talking about being strong I don’t mean physical I mean mentally strong. I...

I am here to learn how others cope with the everyday living of MS.

had worked all those years at keeping relapses away, until last year when I just kept having more...

New to MS and learning.

found out that I have two cousins on my mother's side of the family has it also.