It's been a while since returning to thi... - My MSAA Community

My MSAA Community

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It's been a while since returning to this wonderful site

doveflyfree profile image
doveflyfree
โ€ข13 Replies

Hello!! I was diagnosed with MS in 2012. The journey has been tough!! The Christmas in 2017 I was very ill. I turned to the MS Society and they were terrible. Has anyone experienced this type of treatment from them??

Thank you all for supporting me through this time!! This site made me feel less anxious and lonely. I Plan on getting back involved and helping you all as much as possible!!๐Ÿ˜‰

MSAA and the MS Foundation were absolutely amazing and supportive!! I will give back to them.

I finally have in home care and it has positively changed my quality of life!! It was a tough road but with God's strength I made it through. I have learned so much in the past few years. You are in control of your health care. Seriously!!

Right now I am getting tysabri every 28 days by the iv. It has worked miracles for me. I feel as though I have the best health care in a long time. I have been on rebif and steroids before now. I keep up on vitamins and try to eat healthier each day. It does help.

I'm looking forward to sharing my story and hearing your stories!!

Thank you for listening to me!! This site is the support I need!!

Have a wonderful day today!!

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doveflyfree
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13 Replies
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Royjr profile image
Royjr

I havenโ€™t had any issues with the MS Society here in the DC area. Theyโ€™ve been supportive from day 1. I wish you well and welcome back.

doveflyfree profile image
doveflyfree in reply to Royjr

Thank you very much!! That's wonderful!!

greaterexp profile image
greaterexp

I'm glad you're back! This is a truly remarkable group of kind and thoughtful people who love to be supportive and helpful. It's good to know we have another to add - you!

carolek572 profile image
carolek572CommunityAmbassador

Welcome back to this forum, doveflyfree ! I am looking forward to reading about you and what you have been up to!

Keep Smiling,

Carole :-D

Fancy1959 profile image
Fancy1959

Good afternoon doveflyfree. It's Fancy and I would like to welcome you back to our chat room. As always we prohmise to give you a safe place to come and ask questions, voice concerns, or simply speak to others who truly understand what you are going through. We have much we can learn from each other so I look forward to getting to know you better. The more you post and reply to post the quicker we will get to know you and you will get to know us. I am glad that your MS is doing better. Keep us informed and let us know what's going on, what therapies are working for you, and in general how you're doing because so many people want to know paths that are successful so they can try to talk to their doctors as well. Until we speak again take care and remember together we are stronger! Fancy.

doveflyfree profile image
doveflyfree in reply to Fancy1959

Hello Fancy!

Thank you very much!! I will share What I have been through and appreciate all your support! I don't have much family support but I do have my Dad and children and home nurse. I appreciate all support. I have found that a lot of people don't know about MS and how it affects us. I try to offer knowledge as much as possible. I know the MS affects each of us in unique ways.

I look forward to staying in touch with you and everyone!!

Blessings for you all!!

jimeka profile image
jimeka

Pleased to hear that you are back, I wondered what had happened to you. Pleased all is as well as it can be, Blessings Jimeka ๐Ÿค—

doveflyfree profile image
doveflyfree in reply to jimeka

Thank you very much!!

anaishunter profile image
anaishunter

welcome back!

Jazzihorsecat profile image
Jazzihorsecat

A very warm welcome back doveflyfree! ๐Ÿ™yes, Praise YAH! For HIS Loving Blessings!๐Ÿ’ Ur still family here too, always remember that!๐Ÿ’—๐Ÿ’™๐Ÿ’›๐Ÿ™๐Ÿ‘๐Ÿ˜๐Ÿ˜€ L๐Ÿ’—VE Ya!---Jazzy๐ŸŒน๐Ÿ’œ

doveflyfree profile image
doveflyfree in reply to Jazzihorsecat

Thanks ALOT!! I deeply appreciate you!!

mrsmike9 profile image
mrsmike9

Glad you're back! I've contacted them early on and have nothing but wonderful things to say about them. Perhaps you just had a bad apple in the bunch?? Glad you're doing well now!

doveflyfree profile image
doveflyfree in reply to mrsmike9

Thanks ALOT!! That's wonderful for you!!

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