Do y'll get tired after...

[Jesmcd2]

Do yall get exhusted for a few days after your Ocrevus lnfusion? I had mine yesterday, everything went as planned! Even got out of there 5 mins early! 🙂🤣 Now, lm exhusted! Anyone else get like this?

🤗💕🌠

[NanaCC]

I get mine on fridays for that reason. I need 2-3 days at minimum

[Jesmcd2 CommunityAmbassador in reply to NanaCC]

Good idea! 🙂🤗💕🌠

[twooldcrows]

was this the faster infusion for i had that the last time and yes i was tired and went home and sleep ....but it was faster ,so if that is what we have is an extra nap ....take care and rest up ....loves...

[Jesmcd2 CommunityAmbassador in reply to twooldcrows]

Yes it was the faster 1🙂 l do know l have no pick up and go! 😂 🤗💕🌠

[jkdavid99]

Yes i had my ocrevus infusion on Thursday almost a week ago. Days 1 and 2 i feel fine even with a little energy but day 3 and 4 am tired but day 5 i am toast. Cant hardly keep my eyes open. Day 6, I am back to normal. I usually take 5 days off to recover. Its definitely a thing. This is my 7th full infusion and every time day 5 is a killer.

[Jesmcd2 CommunityAmbassador in reply to jkdavid99]

I guess its a good thing that you can plan it, but l really hope your not using vacay days!🙁🤗💕🌠

[ahrogers]

It depends on if it messes up my sleep for the night. Between the steroids and napping after taking the Benadryl premed I sometimes don't sleep well that night or even the next night.Like NanaCC I get mine on Fridays to limit time off work.

[Jesmcd2 CommunityAmbassador in reply to ahrogers]

At least you know what to look for! I wish the benadryl let me nap! 🤗💕🌠

[kwhompus]

Yes,Yes I do. The day of the infusion the benedril gets me. I don't know why I'm so tired the next few days, but I am. I thinking the body has to process the foreign substance or it's just stress relief ,either way , I'm fatigued.

[Jesmcd2 CommunityAmbassador in reply to kwhompus]

I wonder about that alot to, just the body trying to processthe med🤔🤗💕🌠

[Cutefreckles72]

So for, I haven't had any problems with Ocrevus. I usually fall asleep after the steroids and Benadryl are done. After that I will either go home or eat lunch. Not tired at all.

[Jesmcd2 CommunityAmbassador in reply to Cutefreckles72]

Yeah!! Im so glad that it doesnt affect like this! 🤗💕🌠

[RTR1]

Thank you for sharing, I am getting my first Ocrevus infusion soon and I have been planning on getting it on a Thursday and taking Thursday & Friday off from work with hopes to go back to work the following Monday. Fingers crossed. Everything else that I have heard is very positive, I think that I can deal with the fatigue as long as it goes away within 3 - 5 days. I had severe fatigue for 2 weeks after my week of steroid infusions and was so afraid that it was permanent but then the cloud slowly lifted after 2 weeks and by week 3 I felt like a normal human being (albeit with MS) again. I am hoping that you are doing well!!

[Jesmcd2 CommunityAmbassador in reply to RTR1]

Everyone can react different to any med. So you might not have this issue🙂 Which would be great for you! 😂 Steriods... yup, most all of us had/have/will have again the dreaded steriods😐 🤣 Cause it can hopefully stop a relaspe from getting worse or a new one leision from causing more trouble. Im so glad your feeling better! 🤗💕🌠

[Robsmom]

I feel great a day or two after and then the steroids wear off and you crash. Happens to me every time.

[Jesmcd2 CommunityAmbassador in reply to Robsmom]

Mark it on the calendar! 🤗💕🌠

[bavery207]

YES The day of and the day after my infusion I am beat! Then it starts to get better. I just plan that that is the way it will be.

[Jesmcd2 CommunityAmbassador in reply to bavery207]

Mee tooo! 🤗💕🌠

[Jer29-11]

I’m on Rituximab (which is similar) and it takes me a week to recover! I usually have to take a week off work. I’m extremely sensitive to medications and I’m so fatigued after an infusion 🥴

[Jesmcd2 CommunityAmbassador in reply to Jer29-11]

That seems to be happening with the Ocrevus, except its beating me up from the inside out! Im like you, my body doesnt like a whole lot of meds. 🤗💕🌠

[Sandydemop]

Hi Jes, reading this reminded me to take my Mavenclad so thanks! I hope you feel better soon and can plan ahead.

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

🤣😂🤗💕🌠

[hairbrain4]

When I was on Ocrevus I had the same problem... 2nd or 3rd day I was tired. I was guessing it was from the steroids wearing off. I used to get those steroid infusions & when they started to wear off I went to bed for at least 2 days.

[Jesmcd2 CommunityAmbassador in reply to hairbrain4]

I dont take the steriods with the infusion, steriods and l dont get along at all🤣😂 so l refuse them! 🤗💕🌠

[hairbrain4 in reply to Jesmcd2]

I did that with the last infusion I had. That infusion seemed like it didn't have any drugs in it cuz I had more exaserbations that I had had for the past 2 years. I was already a month late getting the infusion becuase the infusion center didn't have the appointment they made when I was there the last time & the last one stopped after 4 months. After that I said no thank you I don't like the "crap gap" & my insurance wouldn't let me go any sooner than the regular 6 mos. I was very sad that Ocrevus didn't work for me. But now I'm on vumerity with no flare ups at all over a year, no pain or muscle spasms. Other than memory issues it feels like the MS is gone. Wouldn't that be nice?

[pamgarner]

I personally do not,but i think it may be a "hang-over" from the benedryl and the stress leading up to it and then you can relax when it is over maybe??😊

[Jesmcd2 CommunityAmbassador in reply to pamgarner]

The stress is prob a big thing! Cause l dont trust my "new" drivers yet😂 and they dont know me yet... but so far so good! 🤗💕🌠