Did you know?

[Jesmcd2]

So dont feel bad because your symtoms change minute to minute. It happens to all of us! Just cause we did it yesterday, doesnt mean its gonna happen today! 🤣 Although we might try! 🙂🤗💕🌠

[mrsmike]

So true!

[NorasMom]

I think this is the hardest thing for families and friends to understand.

[Jesmcd2 CommunityAmbassador in reply to NorasMom]

We need to make this into a business card! 😂🤣🤗💕🌠

[NorasMom in reply to Jesmcd2]

Absolutely! You're a Community Ambassador, so I guess that job falls in your lap. 🤣

[Jesmcd2 CommunityAmbassador in reply to NorasMom]

Nice try you guys! 🤣😂🤣🤗💕🌠

[mrsmike in reply to Jesmcd2]

That's a great idea 💡!

[erash]

oh so sadly true 😞

[Jesmcd2 CommunityAmbassador in reply to erash]

🙁 1 end of the couch to the other end, day... 🙃🤗💕🌠

[erash in reply to Jesmcd2]

I know…

[Sandydemop]

thanks Jes, perfect timing! last night I had diarrhea from i don't know what. today i feel ridiculously weak and have to cancel a xmas party. ugh!!!

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

Yikes! 🙁 Hopefully your not catching anything! 🤗💕🌠

[Sandydemop in reply to Jesmcd2]

thanks Jes! i just want to take a nap. probably be better later.

[erash]

so sorry 😞

Feel better ❤️‍🩹

[Sandydemop in reply to erash]

thanks Miss E for your good wishes. I appreciate being able to vent it here. Maybe I should copy/paste that meme to my friend who invited me.

[erash in reply to Sandydemop]

idk bout sharing… The pessimist in me says they wouldn’t understand🤷‍♀️

[Sandydemop in reply to erash]

true.

[Morllyn]

So very true!

[jimeka]

👍 💜

[positiveness]

Great message and so true.

[Cutefreckles72]

So true and I agree with every word.

[309Ygi]

one min I’m passing out and ambulance arrived . Couldn’t move in 10 min ride to hospital. When we arrived I walked out of the ambulance. Once again walking along and collapsed like a noodle sweating . Lol a gift that keeps giving !

[Jesmcd2 CommunityAmbassador in reply to 309Ygi]

Are you alright? What happened? 309Ygi 🤗💕🌠

[309Ygi in reply to Jesmcd2]

the heat messes with my

[hairbrain4]

Yep!👍♥️

[Kenu]

Right on 👍🏼🙏😉

[Neworleanslady]

good post!

[Helpmeup]

Can't thank you enough for this post. Sometimes I don't know what's worse: living with the crazy unpredictable symptoms or trying to constantly explain my crazy ups and downs to people who can't possibly understand. I always dread the question "how are you?". I have to clarify that I can only answer based on "right this minute". So frustrating...but I've learned to laugh at the insanity. Your post was spot on!

[Jesmcd2 CommunityAmbassador in reply to Helpmeup]

My stand by answer is, lm good! Or, my dad asks Doing Ok? Answer... Always🙂 cause as much as they want or try to understand, its just beyond them. And thats ok🙂🤗💕🌠

[carolek572 CommunityAmbassador]

One heck of a roller coaster ride, Jesmcd2 ! 😝

[Jesmcd2 CommunityAmbassador in reply to carolek572]

Have l ever told you l haye rollercoasters! 🤣😂🤣🎄🤗💕🌠

[carolek572 CommunityAmbassador in reply to Jesmcd2]

Me as well, Jesmcd2

[twooldcrows]

yes very true ,don't let it stop you ....

[falalalala]

I might send this out as a Christmas card

[Jesmcd2 CommunityAmbassador in reply to falalalala]

Great idea! 😂🤣😂🤗💕🌠

[BlanketTime1]

i really want to send this to my mum who insists on asking me which day i can do something. i don't know. i have no idea.