Winter, its beauty and its pain...opposi... - My MSAA Community

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Winter, its beauty and its pain...opposition in all things.

jackiesj profile image
jackiesj
โ€ข12 Replies

I miss you all! i hide hoping pain, life will be better and obviously i just need to let you all know how grateful i am we have this place to come to and share life.share strife....We need to realize we are all trying our best with this disease, often more than one.. the best we can at any given moment.we cant compare because...we are all different but we sure have learned compassion for one another in this world.Warm weather had been great but now the rollercoaster begins and i dont remember it being this difficult.Im sure im not alone.Along with MS, my heart doctor was very blunt and said..well you can go anytime 5 new meds on top of the other meds(most had such reaction discontinued but the pharmacy made out...) i went home and just whaled my eyes out. I prayed to the dear Lord....He saved my life and then i hear this in less than 10 minutes.....Then.....at 119lbs and stats on lipids etc...i asked to to try my husbands medicine injectable...and miracles cut ALL panel in half.I had to ask for it.So this leaves me wondering so much. None of us know when, how what where....Thankful for blessings and when i am finally out of pain even for a bit..thankful. So opposites in all things why....to find answers, joy, compassion for others and myself...that each moment even when i hate this kinda feeling somedays....proves i still... feel.I am so grateful for each of you.For opinions,sharing your life ups and downs and picture kids etc.Even when i couldnt get on i knew KNEW you were here and i was praying. Thank youjj i got to see pictures of my 1st grand go to college. i never thought id see that day but....DID. you too..continue to share. i care.

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jackiesj
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12 Replies
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kdali profile image
kdali

Oh Jackie, I'm sorry, I would have went home and cried too. I'm not sure what purpose that statement from your MD served, so I think it was a low blow ๐Ÿคฌ, and you should keep looking forward to warmer days and more pics from college๐Ÿ™! ๐Ÿค—

Kenu profile image
Kenu

prayers are with you sweetie, hang in there ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ‘๐Ÿผ๐Ÿ˜‰๐Ÿค—

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Drs like that need to go back to school for tact๐Ÿ˜ก lm so sorry jackiesj ๐Ÿค— ๐Ÿ’•๐ŸŒ 

~May You Be Wrapped In The Wings Of Angel's Always~

jimeka profile image
jimeka

Jackie dear, that was a very callous unfeeling, unsensitive thin to say, if the doctor had anything about him he should have been reassuring, compassionate,caring. No oneโ€™s knows the time or the hour, God can take anyone of us home without any warning, so we are all in the same boat. So put a smile on your face and just enjoy today, today is a gift, thatโ€™s why itโ€™s called the present. Big hug, enjoy your grandchildren. This is a picture of my 11 month old grandson Jackson, I thought his cute face might cheer you up, blessings Jimeka

Baby boy
kycmary profile image
kycmary

Jackies darlin I bet$100.00 that no place on your body is a tag that says when you expire! I wish Drs would pay attention to there words before they speak them out loud! Only God our heavenly Father knows our expiration date! I'm praying for you. Mary

jackiesj profile image
jackiesjโ€ข in reply tokycmary

I am so grateful.....

JSSimp profile image
JSSimp

My prayers are with you๐Ÿ™๐Ÿพ

Tazmanian profile image
Tazmanian

Keep talking to us

Sandydemop profile image
Sandydemop

Hi Jackie, your doc was a jerk. would you consider getting another doctor? You deserve compassionate care.

Fancy59 profile image
Fancy59CommunityAmbassador

Jackie you don't have to take that from any doctor. It's your right as a human being to receive compassionate Care. When that is lacking it is also your right to seek a doctor who has learned Bedside manners and compassionate care.

I had a neurologist that was as big as jerk as your Heart doctor was. When I went to secondary progressive he basically told me there was nothing he could do for me anymore and I should just go home And give up. I also went home and cried my eyes out for about 2 weeks in fact. Then I picked Myself up off the floor and decided my time wasn't up yet. I contacted the national MS society and got them to recommend A new neurologist to me. That changed the direction of my disease and gave me several more years of functionalibiฤบity.

Check with your friends, your family, your neighbors, the national heart association or anyone else you can think of to get recommendations for a compassionate heart Doctor. I guarantee it will change your outlook and give you a new lease on life. It is up to us to make the most Of the years that God gives us and only He knows when our time is up. Please keep in touch with us and know that you will remain in our thoughts and prayers. Take care Of yourself. Fancy59.

jackiesj profile image
jackiesjโ€ข in reply toFancy59

I am finding that few docs here since covid and 2 retired...for counslers they want online not accepting insurance because....gee not certified enough. Im thinkng i could be one! i am trying to get thru each day..wather is aweful pain even on meds but im trying just to care for me second half of household a problem. it Will get better. as they say when you are at the end of your rope tie a knowt in it and climb backout...

carolek572 profile image
carolek572CommunityAmbassador

Life is about choices, jackiesj . Choose to find a doctor that has a better bed side manner. ๐Ÿค—

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