The Illusion of MS

[Jesmcd2]

What are you hiding? 🤗💕🌠

[Sandydemop]

Thanks Jes, i have not talked to my doc or anybody about the spasticity in my leg or the couple of episodes of dizziness I've had.

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

Ummm, why not?🤔

[Sandydemop in reply to Jesmcd2]

i should, right? I don't want to take more meds and was hoping they would go away. the impression i got from the dr. is that if it doesn't last 24 hours it doesn't count and the dizziness was only momentary.

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

During a relapse, patients will have a temporary worsening or recurrence of existing symptoms and/or the appearance of new symptoms. This typically lasts for a few days to a few months, followed by a complete or partial recovery (remission). Acute physical symptoms and neurological signs must be present for at least 24 to 48 hours, without any signs of infection or fever, before the treating physician may consider this type of flare-up to be a true relapse. Per... mymsaa.org/ms-information/t...

But personally, I would keep track of what is going on, and Yes... Tell your neuro! 🤣 It's his job to know! 🤣🤗💕🌠

[Sandydemop in reply to Jesmcd2]

thanks again Jes for keeping me accountable. I will tell her next appt. unless it happens again before i go back.

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

I didn't do anything ☺️ But order this book! mymsaa.org/publications/ms-... It will help you alot!🤗💕🌠

[twooldcrows]

i just love this ...have seen before and it does go the whole bunch of stuff....love it ...i need a big poster of this to show everyone ....thank you for this great poster....loves...have a fun filled day with much love and happiness ....laughs and giggles and hugs ...

[Cutefreckles72]

Hi Jesmcd2, I am hiding pain, fatigue, spasticity, tingling and numbness. If only people could see them.

[Jesmcd2 CommunityAmbassador in reply to Cutefreckles72]

Hi Cutefreckles72 🤗🤗 I hear you! I hope you're Neuro hears you too! As far as people hun, The one's that matter will hear you. The one's that don't won't. 🤗🤗💕🌠

[Cutefreckles72 in reply to Jesmcd2]

And that is so true. My neuro listens, but I don't won't take extra medications. I take 4 medications now and try to keep moving. 😊 💕

[Tazmanian in reply to Cutefreckles72]

Four is not alot I take ten (prescription and otc) and I don't think that is alot

[mrsmike9 in reply to Cutefreckles72]

Lucky you! I can't remember the last time I only took 4! I think I'm up to...9? Maybe more?

[Cutefreckles72 in reply to mrsmike9]

That luck may not last long since my PPMS continues to cause problems. I may have to increase. I don't want to.

[Jesmcd2 CommunityAmbassador in reply to Cutefreckles72]

I take meds for breakfast, lunch and dinner!😂🤣 Forget food, I'm already full!😂🤣😂 My personal thinking about meds is, if they are going to help my quality of life then im all for it!☺️ But that's me! I'm not going to suffer when there is something to fix it!🤣😂🤣🤗💕🌠

[kycmary in reply to Jesmcd2]

I agree with you Jes why suffer when a pill will help & 4 pills is nothing I have a handful for breakfast, a few for lunch & another handful in the eve. I am 28+ yrs dealing with MS & I can get up & walk, climb out of bed in the morning pretty much take care of the house & myself. I still cook & garden. I did give up driving as too much to focus on when I drive & my refocus is slow. Hubby does the driving.

[Jesmcd2 CommunityAmbassador in reply to kycmary]

Bless your heart, your just a baby!😔🤗 My Angel Monster's are older than you! Wait, that makes me old😐🤣😂 Just be safe about taking them, and ALL your Drs know what and how your taking them.

Then keep moving!!! I was told I would be in a wheelchair about 25yrs ago😐 So not happening!🤣😂🤗💕🌠

[kycmary in reply to Jesmcd2]

Jes the MonSter is 28+ yrs I have dealt with it I am 69 this yr married 42 1/2 hubby has been their with me think & thin, good & bad!

[Jesmcd2 CommunityAmbassador in reply to kycmary]

My mistake, I'm so sorry! I'm sure you have told before 🙁 Its the cognitive thing. Or I need a book keeper 🤣Your hubby sounds like a great guy! It always makes me smile to see that! 🤗💕🌠

[kycmary in reply to Jesmcd2]

When I was DX I read all I could find about MS the thing I found most of was how many spouses walked out on the one with MS at that time we had been married 14 yrs. I asked him to talk about things & explained what I had found, told him if he felt he needed to go fine but do it now not later as I needed to plan what I needed to do. I shocked him his answer was our vows said for better or worse we've had good times now we handle the or worse & it will get better & it has! I love him so much more now 42 1/2 pushing 43.

[Jesmcd2 CommunityAmbassador in reply to kycmary]

That's how it's supposed to be!! You both are truly blessed!🤗💕🌠

[kycmary in reply to Jesmcd2]

Thanks

[Peruzzot]

The only things on that list that I'm not hiding are: pain, vision, emotional, breathing, and swallowing problems. I hate the fatigue the most followed closely by cognitive problems.

[Jesmcd2 CommunityAmbassador in reply to Peruzzot]

I hated the fatigue so much!!! All I did was sleep 😴 and sleep 💤 sleep 😴 and sleep 😴 oh and did I mention, all I did was sleep? And when I was awake? I felt like I couldn't think, foggy, and uggg! It was horrible 😭 So I get it Peruzzot ! 🤗💕🌠

[falalalala]

Not much.My hub knows what's happening on any given day.

[BlanketTime1 in reply to falalalala]

you're very fortunate!

[Tazmanian]

I need that poster

[BlanketTime1]

i've got all but cognitive & emotional changes (fingers crossed). i was just thinking about this. i've experienced the usual ramp up in pain with the hotter months, but it got so bad a few weeks back i didn't honestly think i could take much more. i've never been so high in my life. made me think of bowie's 'lazarus.' it seems to be easing in part b/c i've been able to lower the ac significantly and only leave the house when i absolutely must. every time i get stuck walking or nearly fall, my family lose it, but the pain... it was unreal. it was so bad i can't exactly remember how it felt because my brain blocked it out.

[Jesmcd2 CommunityAmbassador in reply to BlanketTime1]

I'm so sorry you had to go through that! 🤗🤗 I am happy to hear it's easing up for you! And your family is taking such good care ❤️

I hope you told your neuro about it BlanketTime1 !! And your keeping track of your symptoms! 🤗💕🌠

[BlanketTime1 in reply to Jesmcd2]

yep! i hadn't gone to my neuro since lockdown, but pain is a great motivator. it's interesting. my pain clinic told me to pick between 2 meds, but my neuro told me to take both. i think i'll trust the neuro over the nurse practitioner. thx for your concern.🤗

[Jesmcd2 CommunityAmbassador in reply to BlanketTime1]

I have a med on standby for that kind of pain! So whatever it is? It's probably not enough, go with your neuro!! 🤣 I'm not a big fan of pain clinics , but thats just me!😂🤣🤗💕🌠

[pamgarner]

all of the above

[Jesmcd2 CommunityAmbassador in reply to pamgarner]

Right?!🤗💕🌠