What if it comes from your own family? 🙂 How do you handle it? 🤔
Im pretty sure I didn't handle it the right way, when I went off on my mother, when all of a sudden she had a thought 😐🤣😂
🤗💕🌠😔
Ever Deal With People Like This? - My MSAA Community
Ever Deal With People Like This?
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Jesmcd2
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I used to get that often when I was diagnosed with Type 1 Diabetes.
There was always some new miracle and they meant well by telling me about it.
That didn't stop me from being ungrateful for their well meant advice.
As for MS, I don't usually get helpful cures and new miracle drug du jour advice from anyone.
Well let me tell you about so an so and the cure! 😁 You have to DO IT! 😐 🤣😂 🤗💕🌠
I've also heard interesting comments regarding what diabetes will do to me.
33 years later, I still have both my legs, d@mmit!
Some people try to be helpful. others have a different agenda.
Right? Can they predict the future? Im pretty sure I would be dead by now... 🤣
I don't mind helpful... But think you know more about my MS than I do! I don't think George or the black hole would like me coming off my meds, and eating weeds😔😂🤣🤗💕🌠
🤣🤣
A lady I knew told me that her sister took away her cane, telling her that she "DIDN'T NEED IT".
Talk about unasked for advice...
Unreal!! 😂🤣 I hope she got it back and hit her with it! 😁😂🤣🤗💕🌠
😆
She needed it!
Thankfully, most people are pretty helpful-holding doors, stuff like that.
Most people are great and don't even ask! If they do I tell them. Not a big deal!🙂 My brother I hug and tell him its contagious, cause he believes it!🤣😂🤣
But my mother knows better 😐 but she was on a roll that day anyway 😠
😂🤗💕🌠
If more people wore masks on their kneecaps, we could stop the spread of MS!
The 'C' !! 😂🤣😂🤗💕🌠
Whoosh! That went over my head!😜🤣🤣
cure! 🤣😂🤣😐🤣😭😂🤣
😳😲😖
This is exactly why my cane is made of Hickory wood, it is very strong and very important to me! I can use it easily to explain how important it is to me 
And all you need to do is slip it between their legs while walking jorrell ☺️😂🤣🤗💕🌠
😆😆😆😆
People THINK they know the answers to everything! Can you imagine what would happen if they just shut up once in awhile?
I know exactly what you mean! My Mother used to tell me I had no reason to feel/be depressed. My friend so and so, now she had plenty to be depressed about, but I didn't. I tried explaining the imbalance of chemicals in the brain...her mind was made up...I was faking this depression thing and taking all those pills the MS Neurologist prescribed, so it would somehow reflect on her long ago parenting skills?????? I just needed to STOP it, NOW!
yes to all of it. i don't wish this on anyone but they just don't get it.
I would never wish this on anyone either!! Ever! And its different for everyone! 🤗💕🌠
Yes.
On a good day I'd say "Hmmm. Interesting idea. I'll look into it " then forget it.
On a bad day I'd lose it and snap their head off.
Don't ask what proportion of good:bad days I have!
It’s not MS, doctors don’t always know get a second opinion. I wonder what they would say if I showed them my brain and spine mri with lesions. I change subject or walk away.
My uncle tells me regularly that if I'd just see a different doctor, have more tests, and take more drugs, all my problems would go away. I just nod and change the subject.
Falalalala, my daughter's been Type 1 for 20 years now. We both still get comments and advice. "So, your mother fed you lots of sugar when you were little?" "If you'd just lose weight, you'd be fine." "Have you tried acupuncture?"
Next time, just ask him if he has the good drugs to fix it 🤣😭😂 I always go for the shock factor, especially if it's family!🤣😂 🤗💕🌠
I would be tempted to ask if they found a cure for their floppy lip syndrome.😅
😅😅
haha good one!
family gossip came that a adult kiddo of mine didnt believe the MS..(medial field)..my neurologist gave me the computer disc and a print of mri..to show him....them...what are all those plaque spots?duhhhhh be thankful for those who show compassion regardless and admit they dont know....everything.
I get that a lot. Some of it from my sister who tends to believe every conspiracy theory out there. I try very hard to patiently explain to her how and why that particular theory is bunk. She's getting better at dismissing them...or at least not telling me about them...🤔🤔🤔
From co-worker:
Just get stung by honey bees...i gave him a huge eye roll and several snarky comments🙄🙄😈😈
Just get simple surgery to fix it...I gave him a confused look and told him to describe to me what he thought MS was. He described scoliosis.🤓🤓
From Uber driver:
Just do yoga...I gave her a huge eye roll,🙄🙄🙄 explained that yoga might help with some symptoms but is not a cure...she told me that with my attitude it wouldn't help me at all...she got several snarky comments and and bad review from me.🤬🤬🤬🤬
The list as we all know too well goes on...
Oh yes, I have read the honey bee one somewhere!🤣😂🤣
Now, hang on.. I asked my neuro when he was going to do the surgery on me, when he told me I had it. 😐😔🤣
🤗💕🌠
I saw the bee treatment thing on tv years ago.
I have been stung many times since then (not on purpose) and it did make me move fast.😂😂😂
the honey bee therapy is for certain types of pain. It reduces inflammation in the body among other things, and acts to help reduce some of the symptoms of MS, ALS, arthritis RA among other things. It is NOT a cure tho. I have never had it done so I have no idea if it works but I know someone who has it done regularly for her arthritis and she swears by it
my late sister had the bee stings done 15 or so years ago. Didn't do anything, nothing.
I know what you mean!
I usually just say, “Thank you, I will look into that”, and I usually Google it. Unless it is just to “out there “ !😳😜🤣
"Yes mom.. I'll ask.. and if he ever stops laughing, I'll tell him who told me to ask about it".. "but I promise to ask him"😂😂😂
Right? Except she knows what she knows and she is right... 🤣😂😭🤣😂🤗💕🌠
Most Moms are like that..
You can talk to her?😁☺️ I just think im going to go back to the dont call me rule... 😂🤣🤗💕🌠
That might be the way to do it again. I could, but I really don't think it would work.. She would just tell me to mind my own business and "I have no right to discuss this with her like this", cuz I would tell her point blank that she should keep "heresay" out of her discussions with you.. and maybe not so nicely stated..
Oh it doesn't end nicely if she doesn't stop, after I listen ( cause I really do) til it's just gunk. Then its Mom nope let it go!🤣😭😂 But, they.. but him says.. and let ... But... Mom stop.. but.. MOM.. omg let! it! go! HOLY F! Something to that effet! And then she will deny it ever happened 🙃 help me!🤣😭😂🤗💕🌠
When I was 1st diagnosed I got a bit of this. Or worse, I had a woman who told me she heard of someone who died of it. (True or not, you don't tell anyone newly diagnosed with anything this!!!)
why not that's what I was looking forward to hearing
🤣🤣🤣🤣 Only every person who was involved in some sort of pyramid scheme. These people were in my CHURCH!!! I finally just started telling them that if God wants to heal me, He can do it anytime He wants and doesn't needa pill, or diets or PEOPLE to do it!
Come out of the woodwork did they? 🤔 🤗💕🌠
the “silent” symptoms
Turpentine was my last recommendation 🤣
Done that, and intravenous bleach, kdali ! I still have ‘ms’, but I now have ultra white teeth, and my farts smell like a Christmas 🎄!
😅🤣😂
🤣🤣🤣 It's a Christmas Miracle! I hope my husband will try this fart cure 🎉
😂😂😂
😱
After reading all the replies on this I am so grateful that I didn't have to go through any of that. I actually have just the opposite problem. My mother n law thinks I'm on my death bed & should just sit around the house, do my stretches & pray for healing. She's always trying to get people to help me when we are out somewhere. First of all, I don't need help, I get around just fine, with no cane, walker, or wheelchair. I can walk on my own two feet, sometimes I walk like I'm drunk but I'm upright. Her heart is in the right place but sometimes her brain takes a vacay without telling her.🤗
She has a good heart!🤗💕🌠
My Dad, in the best of intentions, wanted me to try hyperbolic chamber therapy in an attempt to cure my M.S., and was willing to pay for it! I did research, and talked to my Neurologists, and it was a lot of money and little chance of having any effect it was told by everyone. But was good hearted and concerned. My mother? Well she never understood anything I ever said, thinking I'd just get over it. Tired? Just go to bed sooner, or take a nap. She told me she got tired too, and she was how many years older, so... Anyway, my Dad did so many unimaginable things in his life. He beat cancer. He beat flat-lining multiple times in another event. And the surgeries.... So my Dad I will always remember looking up to him. My Mother, not so much.
I hear you there MarkUpnorth ! My dad would move heaven and earth for me! And he has been through more than he ever should have! My mother, has done nothing to help herself or anyone else, unless she benifits out of it. My dad waits on her hand and foot!😔 For years!🤗💕🌠
My parents were the same way. They both passed away before I was diagnosed so I don't know what their reactions would have been.
I'm sorry for your loss 🤗🤗 💕🌠
Thank you.🤗
my mum used to do this until i sat her down and calmly explained why she was driving me insane.😀
Did it work?🤔🤗💕🌠
for a couple of days😪
I was gonna ask if it worked? but I know it didn't because she still expects so much from you
Ya know if I had 1$ for every time someone told me that this one or that one they knew had MS & did this or that & where CURED! I'd take us all on vacation.
I get some of the same nonsense. I usually have some snarky response. Reading your comments has been the best giggle I've had in a long time!
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