MS is very sneaky, found out again

[Amore55]

My brother passed away two weeks ago very unexpectedly. I was very shocked and saddened, as all my family was. I cried quite a lot and felt very sad. Needless to say, two days later my ms made itself known to me in a flare. I allowed enough time to be sure it WAS an excacerbation, and got steroids. I’m happy to say they did their job and I feel better. But I am reminded again how fragile any recovery of ms is. I went from feeling great to tremors around my mouth and on my hand. I am humbled to be reminded that this is waiting for too much stress or whatever to set me back down. My brother was only 62. Love to all, Kelly

[Turtlepie]

So sorry for your loss. I sometimes take this MS for granted. I hope and pray that you stay feeling good

[Amore55 in reply to Turtlepie]

Thank you for your kindness. How is Oliver?

[Turtlepie in reply to Amore55]

Oliver is doing great

[Sandydemop]

Dear Kelly, you have my deep condolences. So sorry for your loss. Please get some rest and listen to your body. Wishing you all the best. Take care

[Amore55 in reply to Sandydemop]

Thank you, Sandy. How are you feeling? I think of you so often.🤗

[Sandydemop in reply to Amore55]

thanks Kelly, You are sweet to worry about me. i'm doing ok thanks. trying to adjust to the unpredictability of functional deterioration. Some days are better than others. I'm not very optimistic about bouncing back. I am on a wait list for PT so maybe that will make me feel better. So glad the steroids were helpful to you.

[NorasMom]

So sorry for your loss.

[Amore55 in reply to NorasMom]

Thank you for your kind words.

[Humbrd]

So sorry to hear of the loss of your brother. Loosing a sibling is tough, especially at 62. Glad you were able to get the steroids and are feeling better. Rest and take care. 🌹

[Amore55 in reply to Humbrd]

Thank you so much.

[Sweetheartonvdayl]

My dear Kelly, I m so sorry for your loss . God has you .Lisa xxx

[Amore55 in reply to Sweetheartonvdayl]

Yes, lots of love flowing.

[carolek572 CommunityAmbassador]

So sorry for your loss, Amore55

[Amore55 in reply to carolek572]

Thank you so much. Appreciate you.

[carolek572 CommunityAmbassador in reply to Amore55]

I appreciate you as well, my friend 🙏

[mrsmike]

So sorry for your loss. Glad to hear that you've got the MS under control.

[Amore55 in reply to mrsmike]

Hi, mrsmike9! Thank you for your kindness.

[Morllyn]

The following is a long story, so feel free not to read it if you had rather not.

Stress has been the thing that causes my ms to flair up the most.My husband and I had a car accident the first week of December,. Totaled our car. I had 2 broken feet, a fractured sternum and numerous bruised ribs. My husband had bruised ribs and numerous scrap and bruises elsewhere. Not long after that my husband started having dizzy spells in the mornings. He has had a leaky heart valve for years that they were watching. They sent him for a heart Catheterization on a Friday, found an occluded artery near the leaky valve so they sent him to another hospital across town. That Monday he had a valve replacement and a heart bypass. 3 weeks after he got out of the hospital he was put back in the hospital due to fluid retention. They put him on diuretics and he lost 23 pounds in 2 days, plus they stuck a long needle through his back into his right lung and drained a liter of fluid from it. Just before he went home, after the heart surgery, he developed large blisters on the tops and sides of both feet, which home health nurses had to wrap bandages around his feet to cover them. Due to my husband having a type of Muscular Dystrophy he has to wear braces and special shoes to be able to walk, but he couldn’t get them on. He was told not to push, pull, lift any weight, nor reach his arms backwards for eight weeks after the open heart surgery. They put a harness type contraptions on him that I had to pull him up from the bed and chairs with.

I have been having passing out spells, where I can be standing up talking to someone and wake up on the floor, not knowing how I got there. The doctor said that I am not allowed to drive until they can determine what is causing it.

We have had a stressful few months.

Sorry for dumping on all of you but I haven’t really sat down and told many people all of this. It feels good to let it out.

My brothers each came down from Virginia, at different times, to help us by driving us around. My older brother is a great cook so we didn’t go hungry at least 😆 We truly appreciated their help and their helping keep our spirits up.

My husband is doing well now, he can walk and drive.

I am having a heart Catheterization on the 29th. Hopefully they don’t find anything to bad. I have never had any problems with my heart before so I hope that they don’t find anything, but then again, I want to know what is causing me to pass out. We will see.

[Amore55 in reply to Morllyn]

See private message.

[goatgal in reply to Morllyn]

Oh my, dear Morilyn, a cascade of troubles and woe. I do hope the doctors can find out the cause of your fainting spells as well as acting to ensure the stop occurring. The bright light at the end of this tunnel is that your husband is apparently out of danger, slowly recovering, becoming stronger, which is what I hope will soon be true for you as well. I hold you in my heart.

[Amore55]

See private message.

[goatgal]

Ah, dear Kelly, I am so sorry, first of all for the loss of your dear brother, and then for the MS burden piled on top. I hold thoughts of you in my heart.

[Amore55 in reply to goatgal]

Thank you so much for your kind words.

[falalalala]

I'm sorry for your loss.

[Amore55 in reply to falalalala]

Much thanks.

[Morllyn]

I am so sorry about your brother! I didn’t mean to put my pain, stress before your loss and grief. 😔

[Amore55 in reply to Morllyn]

Not at all. You have had a very difficult time. May your road be smoother.

[kdali]

Aww, I'm so sorry Kelly 💜 I hope you're recovering from the flare 🙏

[Amore55 in reply to kdali]

I am doing well again! Thank you.

[twooldcrows]

i am so sorry for the lose of your brother....it is never expected or wanted ...so sorry and it is very stressful time and of course MS is letting you know you have to calm down ...so sorry to have this on top of the lose of your brother...take care and be safe....his memories will always be with you ....loads of love...

[Amore55 in reply to twooldcrows]

Yes, I have wonderful memories of him.

[twooldcrows in reply to Amore55]

that is what i use to try and deal with all we have lost ...memories are so great and it makes them be with you all the time and that really helps ....loads of love and great happiness with all of those memories...

[jimeka]

Dear Kelly, I am so sorry that you have now lost two brothers, so young as well. I am also sorry that the stress of it all has made the ms rear it’s ugly head again. Sorry also for the late reply, I had a nasty fall the other day and it’s knocked me for six plus the hubby is down with cellulitis again. Anyway, big hug and I hope our Lord gives you the peace you deserve. 🤗🤗🙏

[Amore55 in reply to jimeka]

I have actually lost three brothers. I have one left. There were the four “boys “, then me. It’s sad that they have passed away so young. Thank you for your kindness. 🤗

[jimeka in reply to Amore55]

Do you live in close proximity to your brother, are you able to visit? You must have had fun growing up being the baby girl of the family and 4 boys to show you the ropes, were they protective of you? Blessings Jimeka 🤗

[Amore55 in reply to jimeka]

No, I don’t live close to him. Yes, it was wonderful having 4 big brothers! I remember such good times, but I also remember how they teased me SO much. The three oldest ones were teenagers by the time I was born, so they babysat me. They used to put me on the sofa during sports games and tell me not to leave. As a result I love football, baseball, etc and learned all the rules early in life! My favorite brother used to take me to McDonald’s for a burger in his GTO. I just knew I was a princess! Good memories of all of them.

[jimeka in reply to Amore55]

Treasure them 🤗

[lexsarset]

My condolences to you on the loss of your brother. May God console you during this difficult time.🙏🏾🙏🏾

[Legsonstrike]

I am so sorry for your loss! I lost my brother when I was 10 years old and I’m54 now. I can still remember that day very clearly and will keep you in my prayers for the future! I totally understand about the flare, unfortunately I had a relapse in July of last year after my Husband of 14 years left a month after I lost my dad and it took me a year to recover from it all! I am not where I want to be but I am so thankful I can still walk and drive! Determination is the key to our successful journey and rest rest rest!

[MsBoo]

So sorry for your loss.. Stress has hit us all in different ways, exacerbation (light or major or somewhere in between).. some not at all.. They say "listen to your body" but what are you listening for? To rest when tired? To cry when you need to? To vent? vent here or to a loved one? Many types of listening.. Sometimes I have looked to the ceiling and yelled "just tell me".. well that released some of the tension, but no one voice said "this is what you need to do".. so I did a lot of the things I hear here and there.. mushed them all together.. and it seemed to work... FOR ME. Now it could be something as simple as meditation for you.. just saying, you gotta find what works for you.. that is the trick of MS.. what works for YOU!

[JSSimp]

So sorry for your loss. My prayers are with you🙏🏾

[kerry0915]

So sorry for your lose and the flare up Take it easy I know that earier said then done!

[Peruzzot]

Sorry for your loss.🙏🙏

[bxrmom]

So very sorry fo ryour loss.

[JMWCO]

What a tragic thing to happen to you and your family. No one wants to feel the loss of a loved one; especially since you’ve lost two other brothers. 😭😭😭😭😭😭😭

I hope you find some peace; stress is a part of life (but it is horrible to your body and MS).

Find time to be present for yourself and to cherish the memories of your loved one. I hope you take it day by day as feelings; grief and loss are certainly day by day and moment to moment.

[Mollyabigail]

I am so sorry, Kelly. I cannot imagine what you are going through. That's too young to go, but then, ya'll grew up together then, correct? My heart is broken for you. If you need to talk, we are here for you! (although I tend to be tardy responding. Work gets in the way at times). Hugs and prayers for you and your family. 🙏

[Goldilockssearching]

Sorry Kelly 🥲 for your loss & flair. 🧡

[jackiesj]

I am so sorry for your loss, i too had my brother pass and we were 17 months apart.Nothing prepares and nothing much is sure. i too try to pretend a normal and seldom mention or think(until i move) about MS.You are a loving person and i know that this love carries on,I journal sometimes that helps saying things not said before.

[Amore55 in reply to jackiesj]

I really like your advice, thank you. I used to journal a lot but have gotten away from it. Another thing I try to do is not leave an “I love you “ left unsaid. It makes me feel better. 🤗🤗

[Tazmanian]

Sorry for your loss and good luck with the steroids

[hairbrain4]

So sorry for your loss. hose emotional things can really take a toll on the body even if you don't have MS. So with us that have MS, get the double whammy when our emotions are raveled. Praying the MS stays quiet for you.

[Jer29-11]

So sorry to hear about the loss of your brother. Stress can really get to you. Hoping you continue to get better and take time to grieve ❤️

[mm1527mm]

So very sorry for your loss. My husband lost his only sibling sister at 33 over summer and very difficult. Prayers to you and your family.

[wolfmom21fl]

So sorry for your loss. Sending calming energy and healing thoughts for you

[lbenmaor]

I am so sorry for your loss. Leslie