Who here had Mono?: I know that it's been... - My MSAA Community

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Who here had Mono?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’41 Replies

I know that it's been asked before, but we have a ton more members now!

I know I had it in highschool.. what about you? Do you think it's connected some way to our MS?

Curious minds want to know! πŸ€—πŸ’•πŸŒ 

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Jesmcd2 profile image
Jesmcd2
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41 Replies
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Amore55 profile image
Amore55

I had it in high school, missed part of sophomore and junior years with it. Yes, I think it is linked to ms.

mrsmike profile image
mrsmike

Never had mono, but curious to see if there might be a connection.

DM0329 profile image
DM0329

YES; Jessmcd2 you're on to something as a possible MS trigger!

I had a very bad case of mono my junior year in high school. I always had ear infections and strep throat frequently in my early teens too. I was dx with MS in 1994 (age 25) with a few spots on my first MRI.

Dx and Adios back then. Three years later (1997) my follow up MRI showed substantial silent progression, and I was told I was LUCKY THREE TIMES. Start Avonex as soon as possible, which I continue today.

Avonex has been my "silver lining in my MS cloud." Slow, silent progression, but since 1997 my MRIs have been stable (yet still full of black holes and stuff; retired early due to fatigue and cognitive issues BUT I STILL LOOK SO GOOD LOL).

JESSMCD2 and JIMEKA YOU MAKE MSAA Chat @ HealthUnlocked EXTRA SPECIAL EVERY DAY BY DOING WHAT YOU DO TO LIFT US UP!!!

THANKS SO MUCH!!!

πŸ™πŸ˜‡πŸ‘

jimeka profile image
jimekaβ€’ in reply toDM0329

Thank you, I like to laugh, ms is a miserable disease so I would rather laugh than dwell on ms,πŸ€—

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toDM0329

At least you got told your lucky πŸ˜‚ my Neuro looks at me shakes his head, and says he doesn't get it!πŸ€£πŸ˜‚ And hey we all look good! Glad you're doing better!πŸ€—πŸ’•πŸŒ 

Kenu profile image
Kenu

Never had mono I stayed away from girls and kissing 😱πŸ€ͺπŸ˜‰πŸΎπŸΎπŸ€žπŸΌπŸ˜Š

DM0329 profile image
DM0329β€’ in reply toKenu

HAHAHA YES; The kissing disease! 😘

jimeka profile image
jimekaβ€’ in reply toKenu

I had mono, but it was before I started letting the boys kiss me πŸ˜‚πŸ€£πŸ˜‚πŸ€£

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toKenu

Hey now! What are you implying there Kenu πŸ€”πŸ€£πŸ˜‚ πŸ€—πŸ’•πŸŒ 

Kenu profile image
Kenuβ€’ in reply toJesmcd2

I waited for marriage πŸ˜‚πŸ€£πŸ€ͺπŸ˜‰πŸΎπŸΎ

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toKenu

Coughcoughbullshitcough..πŸ€£πŸ˜‚πŸ€£πŸ€—πŸ’•πŸŒ 

BettysMom profile image
BettysMom

I had mono in the spring of my sophomore year in college. I was 20 years old.

melack01 profile image
melack01

Never had mono.

mikey1994 profile image
mikey1994

Was diagnosed with mono sophomore year in college (19 yrs). Then diagnosed with ms at 48.

mhepler531 profile image
mhepler531

I had mono in my early 20s. Pretty bad case of it. I’ve heard it may be related to MS but don’t know too much about that research. I was dx with MS in my early 40s.

Elizt3 profile image
Elizt3

I never had mono. did have lots and lots of sinus infections.

Morllyn profile image
Morllyn

I had Mono when I was 15.

goatgal profile image
goatgal

My boyfriend had mono but I didn't. There are researchers investigating the Epstein-Barr (mono)-MS connection, but I don't know the evidence or conclusion.

sashaming1 profile image
sashaming1

I had it a long time ago and I only think that it MAY (among other possibilities) be connected with my MS.

palomino27 profile image
palomino27

Yes it's definitely connected. More studies are even starting to show that. I test it all the time and whenever the MS seems more active. Whenever I have gotten an MS flare/attack I test positive for Epstein/Barr (current infection). I always test positive for past infection.

Blue000 profile image
Blue000

Yes I had it in high school also, was sick for a few months.

hairbrain4 profile image
hairbrain4

I didn't have Mono but I did have a severe case of Chickenpox when I was 14. I read a study a few years back that suggested that diseases we normally get in our earlier years can trigger MS if we get them later on in life.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tohairbrain4

That's interesting hairbrain4 I don't know if I have heard before πŸ€”πŸ€—πŸ’•πŸŒ  or if I did I don't remember πŸ˜‚πŸ€£

falalalala profile image
falalalalaβ€’ in reply toJesmcd2

I knew a guy who believed his MS was brought on by vaccinations he received in the military. He had to retire from the Army because of it.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tofalalalala

Have not heard that one before..πŸ€”πŸ€—πŸ’•πŸŒ 

falalalala profile image
falalalala

No, I haven't.

Lovetodanceto profile image
Lovetodanceto

Me

Corran731 profile image
Corran731

Quite severely while I was working on my masters degree. I was initially misdiagnosed with strep and ended up in the hospital.

mrsmike9 profile image
mrsmike9

Never had it.

Tazmanian profile image
Tazmanian

I never had Mono and I didn't have any vaccines in the military ( I wasn't in the military)

twooldcrows profile image
twooldcrows

i never had it but i had heard before that it was connected or is this why you are asking if any one thinks so ...

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totwooldcrows

I ask because of my own curiosity, and it's a good MS topic for people to talk about!πŸ˜‚πŸ€—πŸ’•πŸŒ 

Michblue profile image
Michblue

Great question! I asked that on another app and didn't have any responses. I had mono at 19 or 20. Dx with MS not until 51 but neurologist said I probably had it for awhile. I read about the Epstein Barr connection too.

Gma06 profile image
Gma06

Yes, I had it in middle school. I have read it’s connected to MS.

Weaver9 profile image
Weaver9

Yup

kdali profile image
kdali

Anyone get rashes with their fevers; along where the lymph nodes are located, from neck to groin? πŸ€”πŸ€”πŸ€”

I just say everyone has been exposed, but only those who developed mono remember it. Yes, I was very sick (but also had secondary infections), and old enough to remember every hour of my body trying to kill me. I have no doubts that it was the MS spark, and possibly continues to be the relapse spark. Despite the fact that I do not want to be on Ocrevus, it does tame latent EBV.

tompumo profile image
tompumo

How is mono connected to the CNS?

wolfmom21fl profile image
wolfmom21fl

never had the infection but was exposed to it by a co-worker when i was in my mid 20's.. She had such a severe case she was out of work for almost a year..

cljones profile image
cljones

Yes I had mono. I had it at 30. It was really bad. It took me months to get over it. They say many people have it as a young child and never know they have had it. In young children it manifests itself as flu like symptoms. I got it from my nieces who they thought had the flu but I came down with mono a week later.

carolek572 profile image
carolek572CommunityAmbassador

Never had it, Jesmcd2 :-D

kdali profile image
kdali

you may be interested: jcp.bmj.com/content/72/10/651

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