If they only knew..

[Jesmcd2]

That slight twinge of pain... How you hold back... If they only knew...

You used to be able to run to 3 different store's and not think twice... It can't be done... If they only knew...

Seeing double? Or the room spinning... WAIT! A! MIN! let me catch up... If they only knew...

Your body is always changing... Nothing you can do... If they only knew...

You hang on for dear life as it attacks you... If they only knew...

Oh so tired... Don't let them see you cry... If they only knew...

So confused... Does it take you time to process too?... If they only knew...

I want to talk to you... But I can't swallow easily and catch my breath... Do they fill in your words?.. If they only knew...

If they only knew... How frustrating it is for us...

J🤗💕🌠

[mrsmike]

Well said!

[jimeka]

Did you write that Jes, if you did I am impressed, as mrsmike says, well said. 👍👏👏💐🍫💜

[Jesmcd2 CommunityAmbassador in reply to jimeka]

Thank you jimeka , I did... Just a matter of putting words together!🤣😂🤗💕🌠

[jimeka in reply to Jesmcd2]

I sent a copy of it to my friend in Australia, and this was her response; How frustrating it must be for you.

But hey my friend

It is also frustrating for me

As there is nothing I can do for you

Except perhaps be that friend

You can and I hope you do

Spit out your frustration to.

Love you xoxo

Thank you for true friends 💜

[Jesmcd2 CommunityAmbassador in reply to jimeka]

Aww, thank you! It is frustrating for everyone in one way or more for us with MS. 🤗💕🌠

[kdali]

🥰🙏

[Amore55]

Wonderfully expressed!

[JSSimp]

Love it🙏🏾

[Brindisi1]

And you look so good, been there. Thank you

[Sandydemop]

Thanks for sharing.

[twooldcrows]

now this is a good example ...need to put out there for all to see...thank you ...take care and be happy ...love and much happiness to a very special young lady ...loads of love....

[luvhair]

Amazing

[BlanketTime1]

greetings from limboland... i have said this to my mum countless times. my family get upset b/c of the symptoms they see, but there's so much they can't and those are often the worst symptoms.

[kycmary in reply to BlanketTime1]

O yeah then they act as if they weren't told about your MS at least some of my family did that when a new or different symptom showed up. I finally threw my hands up & said if you really want to know check out the National 8oo site.

[hairbrain4]

That covers it pretty well. Good Job! Frustrating it is!!!