why if ?: Just a curious thing. If MS is... - My MSAA Community

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why if ?

kwhompus profile image
35 Replies

Just a curious thing. If MS is different for everyone, than why are the same symptoms apparent in all of us,? (at different levels of course) The same nerve receptors are affected, once again at different levels. Do you ever get the feeling your not being told something? without looking at the answers, name your top 5 MS related conditions. Let us see how much we are alike. Maybe just a conspiracy theory, but it 'll be fun.

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kwhompus profile image
kwhompus
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35 Replies
falalalala profile image
falalalala

1. Foot drop

2. Numbness/dexterity problems

3. Heat sensitivity

4. I can't think of number 4-maybe it'd be memory issues?

5. Pants drop-the final step in making it to the bathroom on time.When I'm victorious, I want to brag to friends & family.

jimeka profile image
jimeka

1 balance

2 foot drop

3 pain

4 heat/cold

5 where’s the toilet?

Kenu profile image
Kenu

Fatigue, pain, foot drop, balance, dizziness. Of course there are more but these are the top five. 👍🙏😉🤗🐾🐾 Ken

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Pretty sure there is no conspiracy theory going on kwhompus 😂🤣 but just some common symptoms of MS, and like you said different levels. Just like there are different kinds of MS. I love this post tho!

1. Fatigue

2. Cognitive

3. Spasticity

4. Vertigo

5. I have a black whole in my head!🤗💕🌠

Jer29-11 profile image
Jer29-11

Dizziness Heat sensitivity (causes dizziness)

Neck stiffness/pain

Fatigue

Right leg weakness

Same but different! MS is a weird disease!

Humbrd profile image
Humbrd in reply toJer29-11

Yep, that's mine too. But add in memory.

Humbrd profile image
Humbrd in reply toHumbrd

And vision

NovaGoose profile image
NovaGoose

Pain / Spasticity

Fatigue

Heat Tolerance

Balance

Cognitive

kdali profile image
kdali

Central vision loss

Spasticity

Abnormal eye reflexes (both eyes)

Brain fog

Speaking issues/word searching

kwhompus profile image
kwhompus in reply tokdali

Thank you everybody for responding! I'll tally everything and report back tommorow. I hope you can sleep despite the anticipation😜

twooldcrows profile image
twooldcrows

vision problems ,heat and cold different reactions to each ,fatigue ,pins and needles and balance

erash profile image
erash

I cheated and read the earlier posts. Some overlap but not all…1. Mobility 2. Cog fog 3. Constipation 4. Trigeminal neuralgia (4th because gamma knife helped) 5. Toss up bladder, hyperaccusis, tinnitus, balance…

🤪🤪🤪

goatgal profile image
goatgal in reply toerash

I would have put tinnitus/hyperaccusis as my #1 (my docs say it's not caused by MS, but I believe it is since it came on suddenly when I finally was diagnosed; coincidentally with a very painful flare of TN.) The tinnitus is 24/7 with varied volume; the others come and go. Since these are all in my head, so to speak, I think the connection is obvious. Docs don't know me as well as I know myself.

erash profile image
erash in reply togoatgal

Definitely ditto…all of that 👍

BlanketTime1 profile image
BlanketTime1 in reply toerash

agreed! i hate when they try absolutes. for example, decades ago they believed ms didn't cause pain and told their patients this! i bet some of you remember being told this by a dr, as if they know your body better than you do🤬. older drs still believe this; i saw a neuro a few years back who told me this and moved along right away!

kwhompus profile image
kwhompus in reply toerash

I once had a coach that said, " If your not cheating your not trying to win ". Nothing to win here ,but I thought you would enjoy the laugh

goatgal profile image
goatgal

1. balance problems2. optic neuritis

3. foot drop

4. heat sensitivity

5. spasticity/spasms

palomino27 profile image
palomino27

Because while the outcome is very similar for most with MS, that being lesions on ones brain and spinal cord, the triggers that cause MS autoimmunity are different. Genetic, seasonal, infectious, stress, food sensitivities, environmental sensitivities and whatever else. That's why while symptoms are very similiar, it's kinda different for everyone too.

JSSimp profile image
JSSimp

Balance, weakness, dizziness, headache, brain fog, fatigue and sometimes shortness of breath.

StacyHayward profile image
StacyHayward

1. Fatigue 2. Difficulty walking 3. Cognitive 4. Spasticity 5. Heat/cold intolerance

MsBoo profile image
MsBoo

1. Muscle weakness on one side of body.

2. Loss of bladder control.

3. Balance issues.

4. Walking issues that make me fall a lot.

5. Concentration issues.

A lot more, but you did say the top 5.. not the tope 20.. haha

😳😳🥴🥴

Peruzzot profile image
Peruzzot

1. Fatigue 2. Cognitive/memory

3. Balance

4. Heel drag (opposite of foot drop. I don't trip over my toes. I prematurely wear out the heels of my socks and shoes and by the end of the day my heels are painful from dragging them all day.)

5. Vertigo

MarkUpnorth profile image
MarkUpnorth

FatiguePain

I forget

Balance

Bladder

Cognitive

I forget

That's more than 5?

Yeah, that too!

kwhompus profile image
kwhompus

Great response everyone! As we can see we are all rowing the same boat, heading into the great unknown. Let's grab our life jackets and have some fun🤿

jorrell profile image
jorrell

Balance cogfog balance left foot drop weak left leg and anything from Murphys laws!

Tazmanian profile image
Tazmanian

1. Fatigue 2. Balance

3. Foggy brain

4. Numbness in right foot

5. Right side weak

BlanketTime1 profile image
BlanketTime1

ach, i missed this, but i'm contributing anyway! pain, ataxic gait, heat intolerance, dizziness and eye problems (primarily double vision, but now one eye loses focus randomly and hurts like a son of a b*). from limboland

erash profile image
erash

Hmmm…depressing lists 😕

Maybe we should list 5 things…ok, we’ll maybe 2 or 3 things we are grateful for because of MS

1. Made me a more patient person

2. Made me more empathetic towards others with disabilities

3. Made me less rigid (well other than spasticity) I’ve definitely become more flexible, resilient

Jer29-11 profile image
Jer29-11 in reply toerash

LOVE this! I’m grateful for MS because: 1. Made me acutely aware of god’s provision in my life

2. Made me see how supportive, committed and amazing my husband is

3. I better understand being a patient (I’m a nurse) and can provide better patient care

erash profile image
erash in reply toJer29-11

Ditto # 2 and 3

kdali profile image
kdali in reply toerash

Oh, you know I’m a fan of this one! 🎉🥰🙏

1. I “see” more clearly

2. I have slowed down enough to know many things and some people are not with the energy, but some formerly “trivial” things are

3. I was able to anticipate the needs of others suffering in a way I never had before, in bedside care.

kwhompus profile image
kwhompus in reply toerash

Thank you so much for that, insightful, uplifting list. It made my day and put the right attitude into perspective.

kycmary profile image
kycmary

i am glad to participate there have been enough bad listed so I will list I am thankful to have slowed down to smell the flowers & see God's beautiful world, to be able to spend time seeing & experiencing life, to have a better understanding of others problems & to enjoy life each day!

tompumo profile image
tompumo

Although we all experience the same group of symptoms (balance, coordination, heat, cognition, etc.) we experience them to different degrees and in different ways. That's what they mean by 'different'. I have some balance problems and my legs get tired after a short walk. I have a friend who couldn't walk without a walker, and now he can't get out of bed. I have some cognition problems, yet I've met people in groups with much worse cognition. MS effects the central nervous system so we all have the same root problem and symptoms. But the variations and differences will depend on the exact location and severity of the lesions in your brain and spine.

cljones profile image
cljones

Footdrop / difficulty walking

Balance

Fatigue

Heat sensitivity

Bowel and bladder issues

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