Hello I am

Hi my name is Danny and I’ve been married for 30 years to a wonderful supportive wife. I’ve been dealing with multiple sclerosis since is early as 2004, but was not diagnosed until 2009. I have been missed diagnosed twice between 2000 and 2009. Had a lumbar fusion in 2006 of my L4 L5 S1. Found in 2009 that the surgery was not necessary. I’m not the problem I had was multiple sclerosis. I was diagnosed from the start with secondary progress and later found out that I was non-active secondary Progressive multiple sclerosis. I’ve come to find out that many people with multiple sclerosis I’ve never heard of non-active versus active multiple sclerosis.

I stay as active as possible even though I’m in a wheelchair. I play with my grandchildren and I do archery as well as Bow hunter.

[RoyceNewton]

G'day Danny, love your wheels or is it tracks, either way very neat. Welcome to the family of sorts. Never heard of active, non-active ms, but I suppose it makes sense. Look after yourself, I can not see the picture well, is that a compound bow or a recurve. Hope I got the term right it has been many years since I last had a bow in in my hane.

[Hidden in reply to RoyceNewton]

Yes it’s a compound bow and I thoroughly enjoy archery and hunting. The terms non-active and active seems self-explanatory but they’re actually very backwards in the way they are worded non-active means that it is always active and never stops progressing. It’s one of the rarest forms of MS. I have lost so much physical ability in the last few years in comparison to the earlier years of my diagnosis. It is moving quite a bit faster.

[Kenu]

Hey welcome to the crazy group of MSer’s. Great forum👍 Looks like a fancy wheelchair 🦽 can go about anywhere it looks like 👍 Have a great day 👍🙏😉 Ken 🐾🐾🐾🐾

[Hidden in reply to Kenu]

Thank you, yes this chair will go anywhere, I haven’t found a place that I can’t get to yet.🏹

[RoyceNewton]

hmm sounds like PPms Primary Progressive ms

[Hidden in reply to RoyceNewton]

Yes that’s what I think too but they , my doctors, called it the other. But I will admit I look at it more like PPMS.

[RoyceNewton in reply to Hidden]

yes, that makes things a little clearer. I wonder why he uses a unique term, something to ask I guess.

[BlanketTime1]

welcome🤗

[Hidden in reply to BlanketTime1]

Thank you 🤙🏻

[Neworleanslady]

Nice looking chair!

[falalalala]

Welcome!

[Jer29-11]

Welcome!

[ahrogers]

Love you motor vehicle! What brand/model is it? Looks like one I would want when the time comes.It seems like they keep coming up with new ways to describe MS such as active/non-active, smoldering, etc. I didn't feel like mine fit into the conventional RRMS, PPMS, or SPMS definitions so kinda glad they are looking at other terms. I get new symptoms that never improve but then go periods of stability then periods of slow worsening of current symptoms without changes to my MRI the past 5 years. Some of it may be due to Ocrevus doing its job though.

Welcome to our group!

[Hidden in reply to ahrogers]

That is pretty much what I have been through over the years. The chair is built by Action Track Chair and the model is ST1 I think.

[twooldcrows]

welcome to our web sight , we all are a bunch of great people who love to visit ,cry or have a big melt down at times but we do all understand the ways that we deal with MS but try to find great things to help with living with it ...hope you enjoy all of us ...pictures of hobbies and pets and vacations ...love and happiness and may your life be filled with laughter and smile...if know not everyday is filled with happiness but we can try to achieve our life with it ..take care and enjoy life....

[rjoneslaw]

welcome

[carolek572 CommunityAmbassador]

Welcome to the forum, Hidden I love that you are active with your grand babies and your archery. It is so helpful to have a hobby to keep you busy. I too, am on Ocrevus, since 2018, and so far, it’s been doing its intended job. I hope to hear more from you, in this forum, so until then, Keep Smiling!

[Hidden in reply to carolek572]

Thank you and I look forward to being engaged in the forums.