MS and the craziness that follows it, help. - My MSAA Community

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MS and the craziness that follows it, help.

mbrooks20 profile image
16 Replies

I was diagnosed with Relapsing Multiple Sclerosis in 2018. I also found out that I have neuropathy. It seems like after that everything just started crashing. I keep getting sick every year and just this year I was diagnosed with Fibromyalgia, High blood pressure, and Mild Rheumatoid Arthritis. Does anyone else feel like you are being driven crazy by your MS/?

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16 Replies
RoyceNewton profile image
RoyceNewton

Wow that is a lot of health issues, I assume that you are not physically twenty one. A lot of people do seem to have multiple issues, I myself have type 2 diabetes and 20 years so far with Relapsing Remitting ms (RRms) I might suggest pick an issue and work on one at a time so as to not make it overwhelming, then move on to the next health issue, soon enough you have problems solved.

mbrooks20 profile image
mbrooks20 in reply to RoyceNewton

Nope 36 but still active and driving the teens crazy in my house. Thank you for the great advice.

sorry to read that all the health issue you are dealing with. Stay positive deal with them the best you can, baby steps. You will win the battle one at a time.

mbrooks20 profile image
mbrooks20 in reply to

Thank you for the great advice.

Beckylp54 profile image
Beckylp54

Hi

Crazy for sure. One health issue at a time. Baby steps and keep at it. Yes I was diagnosed with thyroid cancer a year later after my MS diagnosis. Survived cancer! Surgery and ALL. I get sick a lot too. I've been better since being on Rebif. But I take Vit D and other supplements that are helping me. Exercise and diet has helped. Physical therapy ,yoga music and psychologist/ health coach have helped me too. MS is A LOT to live with on a daily basis! Then add in other health issues. Whew.

My prayers are with YOU! My motto is Never give up!!! Becky

mbrooks20 profile image
mbrooks20 in reply to Beckylp54

Thank you for the great advice. I play the Sims game on pc. My daughter told me when I get angry at my disease to create a character and name them that disease then kill em off in the game lol. I still exercise just learning how to not over do it now and my diet consists of baked foods instead of fried. I am still learning as I go.

IFwczs profile image
IFwczs in reply to mbrooks20

mbrooks20, I have made an observation that MS targets people's weakest areas. Some get cancer, a lot of diabetes etc. I am worried about your baked goods consumption. There is such a thing as anti-inflammatory diet. I know, there are dozens (probably more like hundreds) of different diets. But this one has proven to hold water for auto-immune diseases. It excuses sugar (really!!!), gluten (and not just for celiac disease) and dairy. Baked goods sound to me like they have all three. I have finally succumbed to this diet and experienced dramatic results. We truly are what we eat.

mbrooks20 profile image
mbrooks20 in reply to IFwczs

I am going to try the diet

IFwczs profile image
IFwczs in reply to mbrooks20

There is an amazing book by Ann Boroch (also available for Kindle) "Healing Multiple Sclerosis." I found out about it on this forum from Jazinco. My life has not been the same since I read it. I had never been on any diet before. But, as much as I used to love desert, I understand now what sugar does...

mbrooks20 profile image
mbrooks20 in reply to IFwczs

thank you i will have to get it

goatgal profile image
goatgal

Sounds like you are raising a wise daughter! Welcome to the forum. Perhaps the most obvious observation you will make here is that each and every one of us presents with slightly different symptoms. Sometimes we share a laugh, or a sorrow, sometimes we open the valve and vent off the pressures, but at all times we support one another through the rough patches.

Bodega1939 profile image
Bodega1939 in reply to goatgal

Yes. It is nice to see you, goat gal. I would like to private message you as I have another topic to discuss and I would appreciated your logical and insightful comments.

IFwczs profile image
IFwczs

Typo (or phone auto-correction) - the anti-inflammatory diet excludes (not excuses) sugar, gluten and dairy.

mbrooks20 profile image
mbrooks20 in reply to IFwczs

I will have to try that

falalalala profile image
falalalala

You might want to look into an anti-inflammatory diet.

Bodega1939 profile image
Bodega1939

As I understand it, mbrooks20, it is not uncommon for a person with MS to have 2 or more other autoimmune diseases going on at the same time. Very commonly RA is observed. Then there is Sjogrens, IBD, Lupus, and so on. I have MS, RA, Sjogrens, and now I read that neurofibromatosis may be another. I have that, too. I speculate I have had MS at 27 when I couldn't get my two eyes to match a horizon I was looking at. Then I started noticing my eyes were really dry (blurry and slightly painful) but so was my mouth...any moisture producing place was like a desert. Then I found out the only thing to do is treat each symptom individually...no one drug or supplement will get them all.

I suspect there is a problem with our DNA not producing the protectant that prevents the insult to our abililty to prevent nerve damage. It might be rogue cells, everything from oligodenrocytes to glial cells, that don't normally cause damage. Kind of like rogue human killers when most humans don't even think about it.

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