Truth!

[Jesmcd2]

I just lovvvvveeeee MRI's... They are so much fun! ☺️ You get to lay flat on the hardest table they can find.. Cover it with a blanket, to make it look soft and comfy! 🙂 Now please hold still while I put this 'Jason' face mask on you! 😨 Now relax but don't move! EVER!!! 🤤 My nose itches 😭 Okay, Time for the die.. Dye... Which ever, not this arm, the other... Don't move!! Ughhh! I need a drink of water so bad!!! Let's go ppl!😂🤣

Finally! Results? I win another lesion! I don't even remember having a relapse! 😂🤣

Seriously tho? I don't even know weather to laugh or cry, I'm so frustrated! 🤗💕🌠🦈

[falalalala]

I don't find MRIs too difficult.

My brother on the other hand, does.

He was feeling claustrophobic & asked the tech if he could come out to take his pants off.

Did I laugh when he told me this?

Yes. Yes, I did.

I did tell him about "Square Breathing" & the next time he went in, he tried it & said it helped.

blog.zencare.co/square-brea...

[Jesmcd2 CommunityAmbassador in reply to falalalala]

erash told me to think of lasers killing off the MS! That works or I will think of beach and my sharks!🤣😂 I have to say, I would die laughing if it was my brother also!🤣😂🤗💕🌠🦈

[Morllyn]

Sorry to hear about the new lesion, but if it had to happen I would rather have a quiet one instead of one that kicks you in the a!%. Take care of yourself ♥️

[Jesmcd2 CommunityAmbassador in reply to Morllyn]

Thank you Morllyn and you are very right about that!!! 🦈🤗💕🌠

[RoyceNewton]

Easy when you drug out beforehand, VALIUM rukes MRI

[Jesmcd2 CommunityAmbassador in reply to RoyceNewton]

I here ya Royce! I have Xanax, but I forgot it at home!😔 🦈🤗💕🌠

[twooldcrows]

ha i guess the music wasn't any good to help with the process ...the pain we should get paid for this same darn thing that is the same every time ...so boring ...ahahhahahhaha

[Jesmcd2 CommunityAmbassador in reply to twooldcrows]

I won't take the music anymore 🤣 it hurt my ears sooo baaaddd.. I wanted to cry 😭.. I learned my lesson!🤣 It sounded like tin.. 😂🤗💕🌠🦈

[kdali]

Sorry for your new lesion 😞 I don’t mind the MRI, but I do worry that a spasm has moved me, etc. Are you facing a drug change now?

[Jesmcd2 CommunityAmbassador in reply to kdali]

Thank you, and going to have to.. avg a lesion every 6mos.. Ocruvus is not working for me 😭😔 any suggestions? 🤗💕🌠🦈

[kdali in reply to Jesmcd2]

Jeez 😞🤯 Yes, you know I’m drug shopping too. I can’t take Tysabri, but it’s still gold. Lemtrada scares me. HSCT I would do, but I can’t mom from an isolation room, and what if less intensive chemo works 🤔 So, Mavenclad? I already have half of the side effects real people are reporting on that one, so might as well 🤷‍♀️ I have not looked at the newer pills or the old CRAB drugs. I have 6 more weeks until the specialist tells me what I’m going to take next 😜 What have you been thinking about trying/asking about?

[Jesmcd2 CommunityAmbassador in reply to kdali]

I have not a clue!😔 Tysabri is out cause of jcv. I know I have notes from my appointment somewhere 🤣 just a matter of finding or looking them up. 😔 I just had my infusion tho, so I some time. It's all the side effects of them all that get ya! 😔🤗💕🌠🦈

[kdali in reply to Jesmcd2]

Yes, good ol John virus got me fired from some good meds too, what a turd! That’s a long time to worry over the next lesion, and I’m not being ugly about it, just what my mind would do…is doing 😱 It does take time to get into trials, and I wonder if there’s something fancy/amazing you could try next 🤔

[Jesmcd2 CommunityAmbassador in reply to kdali]

Ohhh good idea, nothing to lose but more marbles!🤣😂 I'm going to have to get on neuro about this!☺️🤗💕🌠🦈

[kdali in reply to Jesmcd2]

Yes, please do!! I recently saw that someone who failed mavenclad could qualify for a HSCT trial. There are some interesting trials for add ons too, like peptides, etc.

[pamgarner]

i saw this on the news yesterday it said magnets are 50,000x as strong as regular magnet fun for all

[Jesmcd2 CommunityAmbassador in reply to pamgarner]

😂🤣 I tell ya! And doesn't blood have iron in it? 🤔 Surprised I wasn't sticking to the thing!😂🤗💕🌠🦈

[MsBoo]

Haha.. the VA that I go to doesn't have music.. so you try to make a song out of each thump.. boom.. alien sounds you get... I have had them so often that I can sleep thru them.. don't know if that is good or bad.. haha..

I have now over 60 lesions in my brain.. thank god none in my spine yet.. and I was diagnosed positive with MS in 1995. At that time I had over 40.. but now I have passed the RRMS phase and am into the SPMS. no new lesions in the past 10 years.. just worsening of the problems that I already have... yes MRI's ar sooo much fun.....

🤪🤪😜😜

[bxrmom in reply to MsBoo]

I have fallen asleep in the past but then my leg will move from a spasm and they had to wake me up and redo a scan so I try not to fall asleep.

[Jesmcd2 CommunityAmbassador in reply to MsBoo]

If I fell asleep, I would be like bxrmom and move 🤣 and redoing the scan is just not ok!! One and done!! Is what I say!😂🤗💕🌠🦈

[MarkUpnorth]

I used to absolutely love my MRI 's. It was a break from my 16 hour/7days a week/365 days a year, almost schedule. And I could actually fall asleep in them! Noise?, What Noise? My phone was off! That's all I could care about. No one could get to me in there! When they would pull me out, sometimes I think they had to wake me. I wonder if I snored laying on my back?

[Jesmcd2 CommunityAmbassador in reply to MarkUpnorth]

🤣😂🤣 your a nut case! 🤣😂 🤗💕🌠🦈

[mrsmike9]

I don't mind MRIs. It's one time I don't have to do anything. I can just lay still and listen to my choice of music. If it wasn't for the buzzing I could go to sleep!

[Jesmcd2 CommunityAmbassador in reply to mrsmike9]

You would think I would be used to it by now, but nope! I'm to busy trying not to move! 🤣😔🤗💕🌠🦈

[Raingrrl]

I don’t mind MRI’s. Being a smallish person, I’ve never minded small spaces. (Used to play in closets as a kid. Drove my claustrophobic Mom nuts!) I meditate my way through the experience while listening to the music. I can ignore the MRI sounds. The worst part is the dang contrast injection. I hate that!

I’m sorry they found a new lesion. Sometimes a new lesion doesn’t translate to a relapse or a new symptom. Just part of this ridiculous disease. Hang in there Jesmcd2 !

[Jesmcd2 CommunityAmbassador in reply to Raingrrl]

I'm sure you did drive your mom nuts!🤣😂 And I have been stuck with so many needles the past month it didn't even phase me!😔😂 And always! You too! 🤗💕🌠🦈

[bxrmom]

Sorry to hear about the new lesion. I wish I could fall asleep in the MRI. I have in the past and they had to wake me because my leg would spasm/twitch in my sleep. Now I try to avoid falling asleep or they have to redo a portion of the scan.

[Jesmcd2 CommunityAmbassador in reply to bxrmom]

😂🤣😔 No redo's aloud! Ever!! 🤗💕🌠🦈

[Neworleanslady]

I try to schedule my mris really early so I’ll fall asleep.

I’m so sorry about the new lesion

[Jesmcd2 CommunityAmbassador in reply to Neworleanslady]

I would move if fell asleep! And that would not be a good thing! 🤣🤗💕🌠🦈

[bxrmom in reply to Jesmcd2]

Same here! I have fallen asleep and they had to redo a section of the mri. Now I try not to fall asleep!

[Jesmcd2 CommunityAmbassador in reply to bxrmom]

🤣😂 I am not in that thing any longer than I need to be!!! 🙁😐🤣🤗💕🌠🦈

[hairbrain4]

Sorry to hear about the new lesions & that you are having so much trouble. I don't have any problems with MRIs. Sometimes I fall asleep. I don't move in my sleep at all anymore unless I am on my side when I fall asleep, then I wake up on my back. I also sing in my head "Amazing Grace" over & over. For some reason, that song just soothes me & I can relax. It's my favorite hymn.

[carolek572 CommunityAmbassador]

MRIs are necessary in the way that they allow our medical team to see what’s going on in our heads, Jesmcd2 I don’t really mind them. I actually love them. I am scheduled for the threesome in August - brain, neck and upper spine. I cannot wait since it has been at least 2 years since my last mri. So much for getting them yearly. I would love to be there when you get your next mri because I would remind you that it’s not a big deal, and I could squeeze your hand to remind you of that! Keep Smiling

[mm1527mm]

I'm sorry to hear about your new lesion. Mri give me anxiety but I have had to take a xanax before and it has helped me