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Post 737 ms is yours nobody else's 1 Jun 2021

RoyceNewton profile image
7 Replies

I am not a doctor or a therapist, my opinions are my own based upon my 20+ years of experience with this disease. If “YOU” are having issues, seek your professional help.

RRms (Relapsing-Remitting ms) is yours. It belongs to “YOU”. At night when “YOU” are scared of what happens next, “YOU” can turn to nobody except yourself. “YOU” , my Sister or Brother are responsible, “YOU” must do what “YOU” can to get through the night. “YOU” know that YOU MUST FOLLOW RULE 1, do not deliberately cause yourself harm. I know this is hard, I have accidentally broken that rule several times myself, but NEVER intentionally. Harming yourself is NOT a way out of ms, EVER.

Yes, “YOU” are responsible for your RRms. Take Disease-Modifying Therapy (DMT) to slow the disease progression. Exercise, eat healthily, read and watch positive things. Do everything to strengthen yourself. Even if it is only a little bit at first. Always strive for eleven instead of ten. Do that extra bit. If “YOU” can not at first, keep trying. RRms, wins when “YOU “ totally give up and stop trying, do NOT stop. Always press on. I understand that is sometimes hard, but “YOU” are alive, keep pressing on.

Back in my youth, I used to read a lot of books about struggles. People who faced incredible odds, but still pressed on and survived. I like to think if they could, I might be able to as well, and if I can “YOU” might do it as well. There is always somebody or something that “YOU” can lean on to inspire “YOU”. There is always something out there that “YOU” can hold tightly onto and pull yourself back up and move another step forward on your very long ms journey. Do not surrender, crawl back into your own dark damp hole, weep and say “I can’t why, me” This is yours. It will always be yours, nobody can take it away from “YOU”. Nobody can make it stop and go away.NO, it is yours nobody else’s. “YOU” must make the decision to move forward.

This “YOU” can do. As much as “YOU” may hate 1t (and trust me I did) that injection is part of your life now. Learn to adapt to it, accommodate it and take it. Nothing will yet cure yours ms, BUT it is yours, ours. We are the ones who must live with it, nobody else, “US”. Make the choice to live your

fullest, happiest life despite of it. Do the impossible, choose to be the first cured, no matter how hard or unlikely it may seem at first..

Royce ( your ms writer and Brother)

This is your illness, Own it and do your best to live well in spite of it.

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RoyceNewton
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7 Replies
Sandydemop profile image
Sandydemop

good sound advice, as usual/

Neworleanslady profile image
Neworleanslady

Inspiring

Mollyabigail profile image
Mollyabigail

You said, "Do that extra bit. If “YOU” can not at first, keep trying. RRms, wins when “YOU “ totally give up and stop trying, do NOT stop. Always press on."

I needed to hear that. I want to keep my job, but this morning, I felt like (cough) 'poop', shall we say... Almost did not come to work. Everything hurts, and I'm so, so tired. Pushing to get through an 8-hour work day is nothing but determination.

On the flip side, leaving my job and drawing disability -- I can just imagine what I would be doing. Absolutely nothing, except holding down a recliner. RRMS would win, and I would be pushing up daises in another 3-4 years.

I am 60, dx 6 months ago. Too young to retire, and too old to do much of anything. Work is my reason for getting up in the mornings. Thank you for the reminder. Always press on. 💪

twooldcrows profile image
twooldcrows

good one and as always ....great advise for all...

kycmary profile image
kycmary

Hi Royce good to hear from 'you' again with good advice, you make the best 'counselor' I have ever met! I am serious you speak from the heart you have been through it, you have lived it & that's what is needed someone who has been there! & done that! I will take your advice over anyone who is trying to advise who has no idea what it's like to live with this disease! Keep it up brother love you! Mary

RoyceNewton profile image
RoyceNewton in reply to kycmary

Very kind of you to say, just what I needed today, thanks

kycmary profile image
kycmary

Glad to help Royce you always lift my spirits.

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