Medication for Symptoms not Diagnosis? - My MSAA Community

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Medication for Symptoms not Diagnosis?

Jk2833 profile image
4 Replies

Hi wondering if anyone can help please? Has anyone been prescribed Sativex or nabilone for symptoms of MS without a diagnosis? I take morphine and it no longer seems effective Plus GP wants me off it, I don’t want pain patches again and the above meds are too expensive privately. I have spasticity muscle spasms etc particularly in my legs I also have Ehlers Danlos syndrome & epilepsy, these meds would mean I don’t have to take up to 20 tablets a day but that’s if I can get them here in the UK. Scotland ana Wales have no problems they seem with prescribing them.
Thank you in advance 
Jacq

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Jk2833
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jimeka profile image
jimeka

Sativex is legal in the U.K., it has to be first prescribed by a neurologist but once done your doctor can prescribe it, Nabilone is usually prescribed for nausea for people on chemo, it can make you high and dizzy so will they give you that with your epilepsy? Blessings Jimeka 😊

Jk2833 profile image
Jk2833 in reply tojimeka

Thank you for replying.I knew it was legal here in the UK but it seems impossible to to get it prescribed unless you pay £200 per month privately per prescription ( free in Wales).

I’m going to discuss it with my neurologist after my next nerve test & MRI.

Both of these medications can actually help with the epilepsy that’s another factor that it could be better route. I’m currently taking anti sickness tablets too so it would be a case of reducing my medication by about 12 tablets per day, but as always it’s about the money. Morphine is so cheap for the pharmacist & NHS.

Thank you again

Take care

Jacq 👍

jimeka profile image
jimeka in reply toJk2833

Let us know how you get on, hope it goes well, blessings Jimeka 🤗

Neworleanslady profile image
Neworleanslady

I’ve not heard of those meds. Wow it seems like you have a lot to think about. I will pray that God helps you with your decision. Good luck.

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