Ok nurse just called, bloodwork is good for ocrevus, she can’t order it as the other neurologist has already done it apparently.
Yippee on bloodwork, but I foresee a problem with getting the ocrevus. Hind sight and all that. I’m so exhausted, think I won’t do the social thing for a while again. What is good to take to fight the fatigue and steroids aftermath
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Sezlatham
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Yes; as we all "continue on our journey with this MonSter" we sometimes remember why "it sucks the marrow from our lives without much regret."
But, we all have to "keep on keepin' on, right?" If there were any changes on my latest MRI (new neuro --as my original neuro retired 2018--he compared 3M Tesla MRI scans from August 1994 to August 2018, and there were NO SIGNIFICANT CHANGES!
Yippee! So, Avonex hasn't failed me (24-year anniversary this September). So, needn't switch to Ocrevus. I am a HUGE NEEDLE WEENIE TOO but I still do the weekly IM injections as the "devil I know is safer to me than the devil I don't IMHO. And, who knew a Global Pandemic would surface less than two years later? Control is an illusion (I know it but. . .?).
Thanks babe I just called they weren’t helpful at all, but I’ll breathe through it my emotions are out of whack. So I’m going to rest and be back to positive happy and achieving self tomorrow xxx
that is great you get to start on Ocrevus ...,,,,stay positive and strong for it does some and go but just remind yourself life is good and spring and summer is coming ...love and happiness...love the good results on bloodwork...
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