When is the right time?

[6092177588]

Just a hello and a question. Although my ms started in 2001 and not diagnosed until 2017 I was wondering if you feel that we are all different with pain, locating doctors but accepting and planning takes me much time. I think at times family or friends feel I should be able to get the best treatment and deal with acceptance.

[ssdw1958]

It is truly amazes me how people who don’t have MS always seems to think what is best for us who have MS. AND they seem to think we can get better from this lousy disease if they just could walk a day in our shoes they would know what we are going through. If you seem to be feeling comfortable with your doctor and you think he/she is doing the best for you than your doing well but if you don’t think 🤔 your doctors Arnt listening and answering your question than you need to do something about it. It is your life you need too be doing what you feel is best for you.

I was diagnosed in 2004 but I knew there was something wrong with my body, way before that but the doctor I had was a @“)%#* if you know what I mean that year 2004 I found a new GP and found a neurologist. They do listen to me so I believe I’m doing well

Good luck to you remember that what is going on with you not any one else.

I’m usually not this head strong but I saw my brother and sisters last weekend and the way they deal with me is ignore what is going on with me.

[rjoneslaw]

U need to do what is best for not others.

I have a great neuro I was diagnosed in 2013 but came out of remission in 2016 because I ignored the signs listening to people who didn't have MS. So pay attention to your body

[Hidden]

I think there are as many varying symptoms as there are people who have it. Seeing a Neuro who specializes in MS IMO. Your family should give you time and space. You were really dx recently; you’re trying to find your way- and you will. Your family couldn’t even to begin to comprehend your journey!

[Jazzihorsecat]

Hi & a very warm welcome to this crazy, but funny MSer warrior family!💚💙❤💗 to ya 609, as u can see this is the bestest family on the web, Here yep, we get ya & U can gleen support, ecouragement, even some great laughs! Oh Yes, I was just Dx'd May of last yr, but I too was under/&misDx'd for over 11 yrs. I knew somethin was wrong & kept loosing jobs! But, 👍😸 & guess what now u r family too! Best to ya & Blessings💐---Jazzy🌹💜

[Kenu]

Welcome to our crazy group of MSERS 😜. I have been very fortunate as my best friends wife has had MS for twenty eight years and so most of my other friends and I had been introduced to this way back. I was diagnosed 1996 and yes it was a very tough time adjusting 🤬. I did get involved with an MS group early and after couple years I became president and ran the group for six years. Yes this was a lot of work but really helped me in long run. Get with MSAA and ask for ligature about ms to hand out to family and friends. Take your spouse or loved one to doctor appointment with you as that may help. Get a neurologist that specializes in MS, a PCP that’s familiar with MS so they are on the same page. We are not doctors here, but what a great place to vent and find out lots of information on MS from people who care and live it👍. Feel free to jump in anytime 👍🙏😊😉. Ken 🐾🐾

[mrsmike9]

Everyone is different with disease. Our experiences, our disease, our doctors. There is no way family and friends know what we feel. Heck, other people with MS only have an idea of what You feel. We are all different.

[MS_Indestructible]

My first ms attack occurred when I was in HS @17. I wasn't dx until 2007 when I was 50 and I didn't know anything about ms till my dx. Many of us same similar symptoms, but they affect each of us differently, maybe in intensity and/or location. Go to the MSAA web site mymsaa.org/about-msaa/contact and call them, they can help you locate a doctor. I find it takes me at least 5 times more time to do something than before the ms struck me down. Please don't listen to your friends or family, they are well meaning but don't really understand. Post questions here where we do understand. You need to start getting treated. The "best treatment" may come with time. I had to have three neuros before I found the right one for me, but I started treatment with the first one. In time you will find a way to accept the ms or not, like me. I view my ms as an unwelcome companion. You need to do things that are best for you and only you will know what that is. Good luck with your journey.