Personal insights

[B3tinha]

Hope everyone had an amazing Christmas🥰

When did you guys start being extra sensitive to the cold? The heat was always my horrible days but for several months the fingers and toes are getting blue and ugly bruises started appearing. Any insight? I’m on Ocrevus and didn’t see any of this on it’s side effects.

[twooldcrows]

i haven't had that and i am on Orevus also ...check with your doctor...are you staying warm enough ...i do wear socks all the time now with this cold and when i go outside i wear gloves for we have been having really cold weather in the mornings it is in the teens and the high is maybe thirty eight if lucky ...so have to dress for the weather temps...take care and be safe...

[rjoneslaw]

let me start off by saying im from chgo and i do a lot in wisconsin both rally cold states in the winter

I always had issue with the cold then I started O and last year being able to deal with it. people would be screaming its cold out here and im thinking and saying it feels good to me.

I was that person who had a million coats on with a scarf that wrapped around the world and gloves that were for skiing . my body would tense up where my back would be in severe pain. once my leg become so stiff like a medal pipe that this muscle bound man couldn't bend it, i would have to wait til i warmed up b4 i could bend my leg.

[jimeka]

You need to be telling your neurologist as soon as you can. Going blue is your circulation, so please get it seen to. Let us know how you get on please. Blessings Jimeka 😊

[CrazyCatWom in reply to jimeka]

I am definately agree with you, jimeka! I have to wear a slipper sock on my right foot (only my right foot) at night to sleep because that foot feels like it has turned into an ice cube. My foot, though, does not turn blue or becomes bruised. It is just a feeling, with me. Go see your neurologist!

[B3tinha in reply to CrazyCatWom]

Thanks.

[kwhompus]

other than the always cold feet and fingers my body prefers the cold. I do have a leg that will go straight and refuse bend. Not much fun getting in the car that way but fun to watch I'm sure. Do call your MS doc and your GP, we are all interested in whats going on. On a side note .... I use Ocrevus and haven't had any known problems. (3 years)

[B3tinha in reply to kwhompus]

Thank you very much. I’ll see the Dr in 2 weeks.

[Tazmanian]

My foot turns purple, but it's from raynauds

[Raingrrl]

A few years ago after I lost some weight, I started having trouble with the cold that I hadn’t experienced before. I now get muscle spacisity and get cold easily. Before that I had only been sensitive to heat and loved the cold. This change took place while still on Tysabri.