My Darlin's!

[Jesmcd2]

How I have missed all of you! Problem was, I had no answers, and it threw me into depression.

To start, after the steroids, the pain! OMG the pain!!! Called the Dr scale 1- 10? Giving birth a 10, an 9.8. they gave me hydromorphone! Zombie land for me! Then agreed to the tests.

Wait what? I was not in my right mind... Angiogram of neck... Heart test... MRI of neck... And kidneys... And blood work..

Then I read in his notes after 5yrs might not be MS??? I'm sorry? WHAT? What are you talking about?

So yesterday when I saw him, we went over everything!!

Yes I have A typical MS, I am not normal, but we all know this!! And I told him to put it in my chart, cause I'm sick of it!

All other tests came out fine! He is keeping me on Ocrevus for now, even though I broke threw it.

I hope you all are doing better than I am! ☺️

🤗💕🌠

PS he also told me that 5% of ms patients don't have o bands. Guess where I fall... 😒

[erash]

Glad to hear from you. Sending you more 🤗🤗🤗

I don’t have O bands either 😜

[Jesmcd2 CommunityAmbassador in reply to erash]

I felt like the rug had been pulled from under me... Didn't know how to think, if that makes sense...🙃

How are you? 🤗💕🌠

[Morllyn]

Glad to hear from you!

After 41 years of being told that I had MS, by multiple doctors, the specialists said that I didn’t. Totally threw me into depression. They say they don’t know what it is. I asked the last specialist if it could be A typical MS, she said maybe. I don’t have o bands either.

[Jesmcd2 CommunityAmbassador in reply to Morllyn]

It's was a totally, wait, what? Moment.. and my PCP and neuro are conspiring behind me.😒

All this because of optic neuritis. Ugh!

How are you? Has your son left yet? 🤗💕🌠

[Morllyn in reply to Jesmcd2]

I am fine.

Bored as heck, staying in.

Take care lady!

[kdali]

I think you deserve a few years of boring! Ty for giving us an update, it’s good to hear from you. Is you eye function restored?

[Jesmcd2 CommunityAmbassador in reply to kdali]

YES!! ☺️ How are the 🐝s? 🤗💕🌠

[kdali in reply to Jesmcd2]

Wow, that’s so awesome!!!! I’m so happy for you 🎉

They are sick 😔 Val’s first cold, and it’s been a year since V was sick. I have not had to give any medicine today, which is hopeful, but no one wants to eat or drink much!! That’s like 70% of what we are suppose to be doing and no one is participating 😵🤣 Val still won’t hold her bottle. She’s not amused with a supply cup or finger foods 🤷‍♀️ What a weird kid! She’s on the move. 19lbs now! Keeps trying to say DaDa????? Just started sleeping through the night this week 👏👏👏👏👏

[DM0329]

So sorry to hear of your most recent struggles, but it's GREAT to see you BACK ON THE MESSAGE BOARD!

Remember we are Mighty Strong!

[Jesmcd2 CommunityAmbassador in reply to DM0329]

How are you doing? And thank you!! 🤗💕🌠

[carolek572 CommunityAmbassador]

Welcome back, Jesmcd2 I sure missed you!

youtu.be/U5TqIdff_DQ(Not working as expected?)

[Jesmcd2 CommunityAmbassador in reply to carolek572]

I feel good with answers again that's for sure!! 😔😁🤗💕🌠

[greaterexp]

Hurrah! She’s back! I’m sorry you’ve been through the mill. What a rough time!

I don’t have O bands either. BTW.

[Jesmcd2 CommunityAmbassador in reply to greaterexp]

Sry about that 😔 everything was spinning so fast!🤗💕🌠

[Ali_B62]

It sounds very unsettling. I don't know what o bands are, wonder if I have got any? 🙂

[Jesmcd2 CommunityAmbassador in reply to Ali_B62]

Oligoclonal Bands: Abnormal immune proteins called immunoglobulins. These are present in the CSF of roughly 90 percent of individuals with MS, however, they can occur with several other neurological disorders. Since the introduction of the MRI, CSF analysis is used less often, but it can be helpful in supporting an MS diagnosis if the MRI results are normal or inconclusive. Per MSAA glossary. 🤣 🤗💕🌠

[pamgarner]

drs. need t understand that no 2 ms. patients are alike,when i was first diagnost they try to tell me,well you don't have many bands in your spine,oh come on!

[Jesmcd2 CommunityAmbassador in reply to pamgarner]

It's cause my liaison's are wacked out. Aka George.. and I do have a new one, I knew I saw it. 😔 It's a circle ⭕... 🤔 I give up!😂🤣🤗💕

[leking1]

So glad that you are back! I've missed you! I am so glad your eyes are better! What a strange and weird un-diagnosis....I think that would have made me cuss! I am happy that they finally gave you some reasonable answers. Keep us posted!

[Jesmcd2 CommunityAmbassador in reply to leking1]

I have missed you also! It made me very sad to think I wouldn't be part of this family anymore. 🙁 Not that I'm happy to have MS, don't get me wrong!! But I know where I stand with it.😂🤣🤗💕

[leking1 in reply to Jesmcd2]

I know exactly what you mean! Linda

[bxrmom]

Happy to see you back Jesmcd2 Glad your vision is back to normal, scary when it gets wacky. I don't think I have o bands either. My dx was based on mri that 'looked like' ms and spinal tap to confirm. It is strange when people are diagnosed with ms and then years, a dr says 'wait, you don't have ms'. Hope all goes well for you. Keep us updated!

[Jesmcd2 CommunityAmbassador in reply to bxrmom]

I think Drs just want to play head games sometimes... 😒 I was not amused!😔😂🤗💕

[cindyrn68]

Wow! You have really been through it lately! Glad you are improving!

[Jesmcd2 CommunityAmbassador in reply to cindyrn68]

Thank You cindyrn68 ! So far so good!😁 How are you?🤗💕

[cindyrn68 in reply to Jesmcd2]

Good! My youngest granddaughter had her 1st bday party today! I also found out that grandbaby #13 is a girl. My husband is grinning like a fool in heaven. 😂

[mrsmike9]

Good golly, Miss Molly!! You have been through the wringer! Glad you are on the other side and Back Here!!

[Jesmcd2 CommunityAmbassador in reply to mrsmike9]

Me too! 🤣🤗💕

[twooldcrows]

welcome back ..life is so fun ...love and happiness...we are so glad your okay but a little confused but so is all of us ...hahahha...have a great day ...

[Jesmcd2 CommunityAmbassador in reply to twooldcrows]

Life is something that's for sure!! And your? Confused? I was living in the land of confusion!🙃😔 😁🤗💕

[Hidden]

Oh no 🤦‍♀️—-

That is awful...

So sorry 😐

Prayers dear 🙏

[Jesmcd2 CommunityAmbassador in reply to Hidden]

Thank You Hidden ! 🤗💕

[JTZES]

Thank you for your post. I have learned a few things and glad you're doing better. Could you give me a better definition of o bands it is a term. I never heard of that term before. My biggest issue with MS is extreme dizziness all the time and it sounds like it may be beneficial in my care.

[Jesmcd2 CommunityAmbassador in reply to JTZES]

Hi JTZES Oligoclonal Bands: Abnormal immune proteins called immunoglobulins. These are present in the CSF of roughly 90 percent of individuals with MS, however, they can occur with several other neurological disorders. Since the introduction of the MRI, CSF analysis is used less often, but it can be helpful in supporting an MS diagnosis if the MRI results are normal or inconclusive. Per MSAA glossary.. CSF- Cerebrospinal fluid

What does your neuro say about being dizzy all the time? 🤗💕👻

[JTZES in reply to Jesmcd2]

My vestibular nerve has been damaged severely by lessons. The vestibular nerve controls your all your balance. I've evaluated by a national known vestibular specialist who confirmed the Neurologist diagnosis. So I am kinda suck with what I have.

Thank You for your response.

[Jesmcd2 CommunityAmbassador in reply to JTZES]

Aw bless your heart! I couldn't even imagine! 🤗💕👻

[rjoneslaw]

great to hear from u