August appointments

[greaterexp]

Would you like to share about your upcoming appointments? I have a neurologist appointment today and a check in with my PCP on the 3rd to discuss several things.

[carolek572 CommunityAmbassador]

I have my annual neuro appointment at the end of August, and then my infusion at the end of August! New insurance coverage and new virus protocols will make these, to say the least, interesting! Oh, happy days, greaterexp By the way, my PCP annual visit, which was to occur on March 16th, has been rescheduled to October! We'll see if that happens...

[bxrmom]

I need to schedule my eye dr appt as that is when my vision insurance allows another visit. I also have my every 2 week chiro visits, and a dental appt on Aug 24 to get my permanent crown put on. After that, I think I will have to finally make my appt with the Endodontics office to finally get my front top tooth fixed. That will require 2 appts. Been a long time coming. Have had other dental stuff taken care of first.

[greaterexp in reply to bxrmom]

You are awfully busy!

[bxrmom in reply to greaterexp]

Yes, the dentist appointments have kept me busy over the last few months. Hopefully, after the crown, I am done with the regular dentist and can go back to the specialist to get my top front tooth fixed. It's long overdue.

[Kenu]

Visit pc for annual checkup. End of August feeding tube replacement. 🤞👍🙏😊 Ken 🐾🐾🇺🇸

[greaterexp in reply to Kenu]

How difficult is that procedure and recovery? You’re in my prayers .

[Kenu in reply to greaterexp]

It’s pretty easy for replacement, takes 20 minutes. Pretty used to it after 4 years. Keeps me alive and going 🙏😊 Ken 🐾🐾

[BettysMom in reply to Kenu]

Is it a PEG tube? Why do you need a feeding tube?

[Kenu in reply to BettysMom]

Yes, have stage four throat cancer ♋️ to go with MS. 🙏 Ken 🐾🐾

[Hidden in reply to Kenu]

🙏🙏🙏🙏🙏

[BettysMom in reply to Kenu]

Oh, my! I am so sorry. And you've had tube feedings for 4 years? Are you able to swallow anything at all? I'm feeling guilty for all the food I've eaten today without even thinking about how wonderful it is to be able to swallow. In the early days of my MS I had a lot of swallowing difficulties but I rarely have problems any more.

[Kenu in reply to BettysMom]

Not only problem swallowing but no taste buds or saliva doesn’t help. I am able to eat certain items but can’t take in enough nutrients so that’s why the tube. 👍🙏

[greaterexp in reply to Kenu]

Thank you for sharing about this. It does make me more grateful for being able to taste anything.

[Tazmanian]

I have my neurologists appointment the end of August.

[greaterexp in reply to Tazmanian]

I hope it goes well.

[Hidden]

Lol

My neurosurgeon has put off my telemedicine appt. off for a month and a half

Not getting better here!

Called today, the surgeon and neurologist!

[greaterexp in reply to Hidden]

Frustrating! I hope you get rescheduled soon.

[anaishunter]

Had a telemedicine appt with my neuro and one with the research team I'm part of. Not sure how accurate it was done over video conference. Next step is the Ocrevus infusion.

As expected the approval from the insurance came back with the wrong info (being sarcastic). Going for another round of approval and hopefully the infusion will happen early in August, 12 months or so after the last one. Phe

[greaterexp in reply to anaishunter]

Oh, the joys of dealing with insurance. I’m sorry, and I hope things smooth out.

[anaishunter in reply to greaterexp]

all fixed. insurance approval came back today. all good. called to scheduled the infusion. first day available is Aug 29th, unless I get to different infusion center. I confirmed for Aug 29th.

But now I feel some remorse. Can I wait 4 weeks? it's been 12 months since last infusion so I know I'm at risk of a relapse. Head is spinning.

[greaterexp in reply to anaishunter]

I'm sorry about the wait, but glad you at least got something scheduled. I hope the wait doesn't cause any issues.

[janetb1968]

Well I’ve got my Tysabri appt next Friday on the 7th August xxxx 😎

[greaterexp in reply to janetb1968]

Let us know how it goes.

[pamgarner]

i have my annual mri aug 6th,they have postponed it since march!maybe no more holes in my head,i can't afford to lose anymore brain tissue

[greaterexp in reply to pamgarner]

Let's hope and pray for stable MRI's for us all!

[kdali]

Let us know how your visit goes!

Aug is going to be busy. Relapse work up plus next infusion, Vals helmet checks, I think V has a 3yr well visit (gotta check in that 😬), I still never went to see my PCP.

I wish I was going on vacation instead 😭

[greaterexp in reply to kdali]

Yes, it sounds busy. I hope all goes well for you all.

My appointment was all right. I felt my neuro was oddly rushed this time. We discussed Ocrevus, but she is reluctant to put me on it while Covid seems to be a problem. I explained that I really don't go anywhere, but she wasn't dissuaded. I tend to agree with Dr. Boster in that we shouldn't wait for more progression before starting something more aggressive. She does know about the fight I would have with insurance, since they insist on using Rituxan, rather than Ocrevus, even though Ocrevus has a much better safety profile. Her thoughts were that I haven't had any relapses, so I'm doing all right. I have MRI's of brain and T-spine coming up sometime when they call to schedule it.

[kdali in reply to greaterexp]

Ty! I would have the same concerns you do about the drug and not starting it. I hope your scans are boring and unchanged!

[greaterexp in reply to kdali]

Thank you, dear. I’ll hang on a little longer.

[Goldilockssearching]

Starting PT back up Tuesday (after none since March) Neuro Thursday sure she will order annual MRI that is due in Aug

[greaterexp in reply to Goldilockssearching]

I'm so glad you are doing PT and hope you see great results.

[Brindisi1]

Apparentlybeoke hip 2places april. Didnt show up xrays til monday since not gettingbe

[bxrmom in reply to Brindisi1]

Sorry to hear that Brindisi1 What are they going to do for you? or is there anything they can do for you? Are you in pain with it? I would assume so. Keep us updated when you can.

[greaterexp in reply to Brindisi1]

Wow! Sorry to hear this. Are they just going to let it heal on its own?

[CrazyCatWom]

I have a video appointment with my NEW primary care dr. on the 5th. Then on the 18, I have an appointment with my current-but-soon- to- be- fired primary care nurse practitioner. But on the 17th I have to see some vampires for the don't-eat-or-drink-anything-for-a-couple-of-weeks-blood-test for my appointment (that I suspect will be another video visit, despite him saying otherwise) with my cardiologist who will never know what my blood pressuere is, what my heart rate is, or my oxygen levels are because he isn't a pediatric cardiologist so he, like my neurologist, is considered non-essential. And I may get an appointment to have the barrium-swallow test done. Whether I will then get to visit my speech pathologist and my neurologist is unknown. 'cause it ain't COVID!

[greaterexp in reply to CrazyCatWom]

These are surely crazy times.

[Cutefreckles72]

I have eye and dentist appointments in August. Its been awhile since my dentist appointment. I hope everything goes well. Last year, I had my eye appointment before I was diagnosed with MS so I am hoping my optic nerve is still working properly. I haven't had any problems so far. 🦷👀