I’m still waiting to hear from OHSU in Portland about an appointment. Do you have an upcoming appointment?
Does anyone have appointments for August... - My MSAA Community
Does anyone have appointments for August you’d care to share?
2nd round of Ocrevus is tentatively scheduled for Friday 8/2. This is my first full dose. The two 1/2 doses happened 12 months ago. I'm more eager than fearful to have one finally scheduled.
Lots of lab results should arrive this week from the EPIC research I'm part of.
I go next week for teeth cleaning and in couple weeks a crown. PCP at end of the month for pill refills. Need to make appointment for recheck throat and hearing. All in all pretty good month coming up other than heat🥵 Ken 🐾🐾
Is it almost August already? I have an O infusion scheduled at the end of month. I am hopeful for you with regards to getting Ocrevus. Let us know of any updates, please?
I will. Thank you for asking. OHSU doctor (if I get to see one) will help determine if Rituxan is what's best for me at my stage of the game. I hope your infusion goes well and quickly.
I hope as well. I am wondering about Rituxan vs. Ocrevus and why one would be chosen over the other.
Merely money. Insurance won't approve Ocrevus, but insisted that Rituxan be tried first. That was when my neurologist thought that might be the way to go. But as she was thinking about doing an appeal with the insurance company, she had second thoughts about whether either would be the best choice for me. She wanted to see what OHSU had to say, since she doesn't have many MS patients.
Do u get this crap gap thing? Is it fiction or a real phenomenon...feeling more symptoms as approach next infusion 🤷♀️
Hi erash In response to your question, no, I haven't experienced any more/worsening/new 'ms' symptoms as I approach my next infusion. But this is just me. I am like you, on the petite side, so perhaps that might be the reason. How are you doing these days?
Dr. Handsome,the chiro tomorrow AM.
I really need to stop calling him that .I know I will slip one day & it wont be a disc.
To be a fly on the wall just to see the look on both your faces when that happens ~ priceless
I have thought about this happening and will blame it on my friend who also calls him that. Yes,that is it.
Have a good appointment, and bring a little duct tape for when you address the doctor?
falalalala greaterexp Or some poker chips...🤣
🤣 Over my eyes?
falalalala Remember our weeding (on a hill)/wheelbarrow conversation? I’m surprised I do.🤣
I have yearly eye doctor on the 5th, chiro on 14 & 28th, and most likely a visit to my family doc for Rx refill.
Hi I’ve got another MRI in October and seeing my neurologist also in October xxxx 😎
Ocrevus 2nd full infusion 8/30. And can’t wait. I’m in the proverbial crap gap, if that’s a true phenomenon, and feeling more fatigue, heat intolerance, muscle weakness. Not as bad as a yr ago before O, but still noticing the difference. Bring on the O 🤞
My fourth O infusion is the day before. I am counting my first 2 half infusions as one. I cannot say that I am feeling an increase of my 'ms' symptoms or anything that I can relate to 'ms'. But that's just me.
We seriously need to create the Ocrevus infusion party boat. Sailing twice per year, somewhere not too hot, massages, buffet options from vegan to carnivore, all the latest movies, pet therapy, and of course a pool.
I see my neurologist on the 2nd and get my second 1/2 dose of Ocrevus on the 6th. I suffered from “crap gap” every month I was on tysabri so I figure I’ll get it with O. My neuro told me that with O it happens in the beginning but the more doses you get should eliminate the gap. I hope he’s right. (Mines gonna hit around Christmas 😕.)
We have a level 2 ultrasound for cheese curd on Friday, but will not have the follow up to discuss the findings until the next week. I forgot to make my annual with my PCP, so I assume that will get done next month too 🤣
I hope you hear back from them soon, it’s been a long time! Don’t they want your money!!!!
I hope you hear from them soon. Are you on a waiting list until you get an appointment?
I have my Chiropractor, eyes and teeth appointments.
Leslie
5th with physiologist,8th with my PCP and the 27th I'm having a house assessment done so they can make sure it's safe for me. My nuero had a navigator from the MS Society chapter that's close to his office call me. They only have a 3 hr drive to my house.
My Rituxan infusion is scheduled for August 6th. I’ve had no new lesions and no enhancements so I guess it’s doing what I need.
I have an appointment with my current neuro next week (I think) during which I intend to advise him that as he doesn't seem to have the time sufficiently to care for me, I am going elsewhere. Then I see the neuro who hopefully will become my new treater at Barrows Neurological Institute on the 28th, which just happens to be my and my soulmate's 41st wedding anniversary. So I am expecting good things.
I have a nerve conduction test tomorrow I’ve had one before. This is for my right arm/hand. It’s numb and no grip hopefully it will tell something. If not, more to happen.
I just had one and declined any further ocrevus. Did absolutely nothing for me. Like all others I have tried. Dr was great about it. Made a deal. MRI’s of my head and spine and if I didn’t show any difference he would be cool with meds to help with nerve pain and depression. If it shows progression then back on. But in the 5 years of my dx I haven’t had any change in my lesions. So hoping I can just not go back on.
I have 1 on aug 19
Have 2 make 1 w/ pcp so I can join workout group 4 yoga zumba, n senior chair yoga
I found senior classes 2b easy on me so I tend 2b the only 1 in there who really isn't a senior