Does anyone have appointments for August... - My MSAA Community

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Does anyone have appointments for August you’d care to share?

greaterexp profile image
57 Replies

I’m still waiting to hear from OHSU in Portland about an appointment. Do you have an upcoming appointment?

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greaterexp profile image
greaterexp
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57 Replies
anaishunter profile image
anaishunter

2nd round of Ocrevus is tentatively scheduled for Friday 8/2. This is my first full dose. The two 1/2 doses happened 12 months ago. I'm more eager than fearful to have one finally scheduled.

Lots of lab results should arrive this week from the EPIC research I'm part of.

kdali profile image
kdali in reply toanaishunter

Awesome! 🎉

Kenu profile image
Kenu

I go next week for teeth cleaning and in couple weeks a crown. PCP at end of the month for pill refills. Need to make appointment for recheck throat and hearing. All in all pretty good month coming up other than heat🥵 Ken 🐾🐾

greaterexp profile image
greaterexp in reply toKenu

Stay cool, Ken!

carolek572 profile image
carolek572CommunityAmbassador

Is it almost August already? I have an O infusion scheduled at the end of month. I am hopeful for you with regards to getting Ocrevus. Let us know of any updates, please? :-D

greaterexp profile image
greaterexp in reply tocarolek572

I will. Thank you for asking. OHSU doctor (if I get to see one) will help determine if Rituxan is what's best for me at my stage of the game. I hope your infusion goes well and quickly.

carolek572 profile image
carolek572CommunityAmbassador in reply togreaterexp

I hope as well. I am wondering about Rituxan vs. Ocrevus and why one would be chosen over the other. :-D

greaterexp profile image
greaterexp in reply tocarolek572

Merely money. Insurance won't approve Ocrevus, but insisted that Rituxan be tried first. That was when my neurologist thought that might be the way to go. But as she was thinking about doing an appeal with the insurance company, she had second thoughts about whether either would be the best choice for me. She wanted to see what OHSU had to say, since she doesn't have many MS patients.

carolek572 profile image
carolek572CommunityAmbassador in reply togreaterexp

It seems that it is all about money :(

erash profile image
erash in reply togreaterexp

U still haven’t heard from ohsu?

erash profile image
erash in reply tocarolek572

Do u get this crap gap thing? Is it fiction or a real phenomenon...feeling more symptoms as approach next infusion 🤷‍♀️

carolek572 profile image
carolek572CommunityAmbassador in reply toerash

Hi erash In response to your question, no, I haven't experienced any more/worsening/new 'ms' symptoms as I approach my next infusion. But this is just me. I am like you, on the petite side, so perhaps that might be the reason. How are you doing these days? :-D

erash profile image
erash in reply tocarolek572

Doing well...some MS days (old Symptoms only) because of stress, crap gap, who knows🤷🏻‍♀️

Glad to hear u are still doing well 👍

carolek572 profile image
carolek572CommunityAmbassador in reply toerash

Stress is a nasty beast, so is this heat, but I cannot complain when the AC is doing its job! Keep Smiling, my friend, and be good to yourself :-D

falalalala profile image
falalalala

Dr. Handsome,the chiro tomorrow AM.

I really need to stop calling him that .I know I will slip one day & it wont be a disc.

carolek572 profile image
carolek572CommunityAmbassador in reply tofalalalala

To be a fly on the wall just to see the look on both your faces when that happens ~ priceless :-D

falalalala profile image
falalalala in reply tocarolek572

I have thought about this happening and will blame it on my friend who also calls him that. Yes,that is it.

carolek572 profile image
carolek572CommunityAmbassador in reply tofalalalala

Whatever works for you :-D

jimeka profile image
jimeka in reply tocarolek572

I want to be a fly too 😂

carolek572 profile image
carolek572CommunityAmbassador in reply tojimeka

To be a fly, you would need to be a pest, of which you are not. :-D

falalalala profile image
falalalala in reply tocarolek572

Another good answer!

youtube.com/watch?v=bjxf-eQ...

greaterexp profile image
greaterexp in reply tocarolek572

...unless we're all flies together.

falalalala profile image
falalalala in reply togreaterexp

youtube.com/watch?v=bjxf-eQ...

falalalala profile image
falalalala in reply tojimeka

Good answer!

youtube.com/watch?v=bjxf-eQ...

greaterexp profile image
greaterexp in reply tofalalalala

Have a good appointment, and bring a little duct tape for when you address the doctor?

kris1973 profile image
kris1973 in reply togreaterexp

falalalala greaterexp Or some poker chips...🤣

falalalala profile image
falalalala in reply tokris1973

🤣 Over my eyes?

kris1973 profile image
kris1973 in reply tofalalalala

falalalala Remember our weeding (on a hill)/wheelbarrow conversation? I’m surprised I do.🤣

falalalala profile image
falalalala in reply tokris1973

No!🤣

I hate when I do that!

kris1973 profile image
kris1973 in reply tofalalalala

falalalala I think you were talking about weeding on a hill...which changed to me using my wheelbarrow for balance instead of my walker...which ended with bringing poker chips to our dr appts bc everything they tell us is “a bunch sh*#”🤣😱

falalalala profile image
falalalala in reply tokris1973

🤣🤣🤣

bxrmom profile image
bxrmom

I have yearly eye doctor on the 5th, chiro on 14 & 28th, and most likely a visit to my family doc for Rx refill.

Doubled51 profile image
Doubled51

Pain management on the 9th.

Donnie

janetb1968 profile image
janetb1968

Hi I’ve got another MRI in October and seeing my neurologist also in October xxxx 😎

erash profile image
erash

Ocrevus 2nd full infusion 8/30. And can’t wait. I’m in the proverbial crap gap, if that’s a true phenomenon, and feeling more fatigue, heat intolerance, muscle weakness. Not as bad as a yr ago before O, but still noticing the difference. Bring on the O 🤞

carolek572 profile image
carolek572CommunityAmbassador in reply toerash

My fourth O infusion is the day before. I am counting my first 2 half infusions as one. I cannot say that I am feeling an increase of my 'ms' symptoms or anything that I can relate to 'ms'. But that's just me. :-D

kdali profile image
kdali in reply toerash

We seriously need to create the Ocrevus infusion party boat. Sailing twice per year, somewhere not too hot, massages, buffet options from vegan to carnivore, all the latest movies, pet therapy, and of course a pool.

erash profile image
erash in reply tokdali

And Dramamine for me 🤢

kdali profile image
kdali in reply toerash

Of course! The others can have the booze 🤣

Juleigh21 profile image
Juleigh21

I see my neurologist on the 2nd and get my second 1/2 dose of Ocrevus on the 6th. I suffered from “crap gap” every month I was on tysabri so I figure I’ll get it with O. My neuro told me that with O it happens in the beginning but the more doses you get should eliminate the gap. I hope he’s right. (Mines gonna hit around Christmas 😕.)

kdali profile image
kdali

We have a level 2 ultrasound for cheese curd on Friday, but will not have the follow up to discuss the findings until the next week. I forgot to make my annual with my PCP, so I assume that will get done next month too 🤣

I hope you hear back from them soon, it’s been a long time! Don’t they want your money!!!!

erash profile image
erash in reply tokdali

Hope all is 👍 with US

kdali profile image
kdali in reply toerash

Ty!

lbenmaor profile image
lbenmaor

I hope you hear from them soon. Are you on a waiting list until you get an appointment?

I have my Chiropractor, eyes and teeth appointments.

Leslie

dailygrump40 profile image
dailygrump40

5th with physiologist,8th with my PCP and the 27th I'm having a house assessment done so they can make sure it's safe for me. My nuero had a navigator from the MS Society chapter that's close to his office call me. They only have a 3 hr drive to my house.

Kitsey profile image
Kitsey

My Rituxan infusion is scheduled for August 6th. I’ve had no new lesions and no enhancements so I guess it’s doing what I need.

greaterexp profile image
greaterexp in reply toKitsey

Hurrah!

Sukie427 profile image
Sukie427

I have an appointment with my current neuro next week (I think) during which I intend to advise him that as he doesn't seem to have the time sufficiently to care for me, I am going elsewhere. Then I see the neuro who hopefully will become my new treater at Barrows Neurological Institute on the 28th, which just happens to be my and my soulmate's 41st wedding anniversary. So I am expecting good things.

greaterexp profile image
greaterexp in reply toSukie427

Congratulations! Woo hoo!

Sukie427 profile image
Sukie427 in reply togreaterexp

Even better. There was a cancellation so now my appt. at Barrows has been moved up to 8/12!

Dpjinx profile image
Dpjinx

I have a nerve conduction test tomorrow I’ve had one before. This is for my right arm/hand. It’s numb and no grip hopefully it will tell something. If not, more to happen.

greaterexp profile image
greaterexp in reply toDpjinx

I hope it went well. Did you get results back yet?

Dpjinx profile image
Dpjinx in reply togreaterexp

I did get results that day. They found nothing 😞 now for MRI. August 15.

greaterexp profile image
greaterexp in reply toDpjinx

It's good to have things ruled out, but I hope you find out what's going on and why soon.

rlh1974 profile image
rlh1974

I just had one and declined any further ocrevus. Did absolutely nothing for me. Like all others I have tried. Dr was great about it. Made a deal. MRI’s of my head and spine and if I didn’t show any difference he would be cool with meds to help with nerve pain and depression. If it shows progression then back on. But in the 5 years of my dx I haven’t had any change in my lesions. So hoping I can just not go back on.

greaterexp profile image
greaterexp in reply torlh1974

I hope you can be off of them if that's your goal. Here's to no lesions!

rjoneslaw profile image
rjoneslaw

I have 1 on aug 19

Have 2 make 1 w/ pcp so I can join workout group 4 yoga zumba, n senior chair yoga

I found senior classes 2b easy on me so I tend 2b the only 1 in there who really isn't a senior

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