My husband is typing this for me. We went to a Vintage Fair yesterday unexpectedly, so I did not have my big hat or cooling towel. It was 92 degrees and straight sun, and I got way too overheated. So today I had to run a couple errands, the last one at Costco. I knew I should not go, I was way too tired, but went anyway. I was standing in line to check out, when BOOM! Down I went. I hit my head on the darn concrete floor, my legs just completely went out, no strength left. They were so great to me. I got myself home, but now tonight my arms won't work and I can barely stagger to the bathroom from bed. It is so scary what the heat can do to us, isn't it? So grateful my hubby helps me. Grateful for this forum family. My husband says he wants to delete what I made him type about him 😇. Hope all are doing okay and sending my love. By the way I start Plegridy this week, hoping it is a good fit. Kelly xx
Can't use my arms, legs like noodles - My MSAA Community
Can't use my arms, legs like noodles
So sorry. That's how my experience began. On thurs of the last week I had an mri but as leaving their office my legs have our and I fell in the parking lot. The following Sat I lost the use of my left arm was extremely dizzy and legs weak and wound up in emergency room. 5 days later and e more mris I was diagnosed with ms. Had my first Pelegridy injection2 weeks ago so will have my 2nd one tomorrow. Good luck and God bless. Hope you feel better soon.
Amore55 Kelly, like Doubled51 , I was diagnosed several weeks after being on a trip to Washington, DC in August. The temp was 100 degrees, and extremely humid. I believe the heat was what threw me into my first big exacerbation. I hope you are feeling better soon and are able to avoid the heat this summer!
Doubled51 thank you for sharing your experience and for your kind words. Very much appreciated. I am going to private message you about the Plegridy.
Oh, Kelly - You have to take it easy and not push so hard. I am so sorry that you had this happen. I really worry about you when I read posts like this. Did you get checked out by a doctor to make sure you don't have a concussion? Is there anything I can do for you? I have actually taken to keeping an extra hat in the car so I always have one available. Now that I have received my new cooling towels I will add one of them to the car as well. I bought several for our trip to Vegas the end of August. Yes, I know, we are nuts to go to Vegas then but the trip is nearly free so we can't pass it up. Next time you go to Costco use one of their scooters. It will really help to conserve your energy. Keith and I have both bought scooters for things like the fair, the home show, the gun show, and anywhere else that we need to do a lot of walking. Sometimes we feel silly but it is worth it to conserve energy and enjoy ourselves more.
Please keep me updated on how you are doing.
Jacqui
P.S. I will try to call you tomorrow sometime.
Bygonelines thank you for your kind words. I need to keep a spare hat and towel in the car too. Great idea! Talk to you soon. Love u Jacqui!
Amore55, I feel as though we only have contact when either of us get hurt. When I see your name I crunch, wondering what has happened. MS hates heat, lets face it, ms hates everything we like. Sometimes we have to give in and play along side the ms rules otherwise life sure can be difficult. But then you're like me, I have a rule that my great grandma taught me, ' if it doesn't do anything for you, then don't do anything for it' and most of the time I try to ignore that I have ms and try to live my life my way, not be dictated to. Sometimes it pays off, sometimes it doesn't. Anyway Kelly, rest up, get your energy levels up, and start again. Keep smiling, tomorrow is a new day, love and gentle hugs, Jimeka 🦋 🌈 🙏 🤗 🍫 💐 ☕️
Jimeka, I am so sorry that you are having a rough time. As always you are in my prayers. Much love, Kelly
Amore55 hope you're feeling better today! 😘
Take care of yourself Amore55 !
Oh my! That's scary! I hope you're doing better this morning. It's good to hear that your husband is available to help you out.
I've found that my heat threshold has narrowed over the past few years. I'm glad my husband keeps that in mind also and makes sure my cooling vest is always ready to go when we go out. And on more than one occasion, he's made me stay home.
Take care of yourself and stay cool.
Sorry to hear about that experience. Hope that you're doing better today.
Goodness, hope you are feeling better quite soon. Sounds like your hubby is definitely a keeper!! We're expecting quite a warm up this week. 84 today, up to 104 by Sunday. Planning cool meals and getting ready to stay indoors and cool. Feel better soon🤗🌈
CalfeeChick thank you for being so kind! Like you, we have a long hot summer anhead. The Vintage Fair we went to was here in Salt Lake City. I hope you are feeling good. And, yes, my husband is a keeper for sure!
It's frightening how quickly heat or other triggers catch up to us. I know that certain things will have an effect, but I can never predict at what point or to what extent they will affect me. It always seems to change just when I think I have it under control.
I'm sorry your triggers hit you so profoundly and quickly. I pray you feel stronger quickly and can somehow figure out the tipping point of heat or activity.
Rest well and keep us posted. I'll keep praying.
greaterexp you are so accurate about how quickly the heat can hit us. Thank you for your prayers, greatly appreciated! Take care, Kelly
I hope you are feeling better today. Best to you with the Plegridy medication. You mentioned Vintage Fair, I'm sure there are many shopping centers with that name, but by any chance are you talking about the one in Modesto California? That's only about 30 miles from me!
Amore55 Feel better quickly! I just hope the temperature has lowered!
The past few days have been too hot here...90 some degrees. Sure explains why I've wanted to do nothing, but stay in bed. Thankfully it's 20 degrees cooler today and same for you!
Hugs and prayers to you!
Jennie
Amore55 it's Fancy1959. I thought I responded to your post yesterday but I didn't see it this morning so I guess it didn't send ike I thought. Kelly I was hoping the pain and the MS was getting you a break since I hadn't heard or seen any post from you recently. I'm so sorry that you have overdone it and are now paying the price. Don't be overly alarmed and think that this arm and leg thing is unique to you. I have had periods of time when my arms were so weak I couldn't lift them two push a button that I needed to push. They feel like somebody literally chained 25 lb to each arm and I don't have the strength to lift it up. Then my legs sometimes feel like rubber bands as well. When that happens I know I need to sit down before I fall down.😩
Remember with this monster stalking us we need to take baby bites of the activities we participate in especially on hot summer days or cold winter days. Remember the heat extremes effective very negatively. When you need to go to the event plan ahead and get out the old wheelchair and be pampered and pushed through the event while wearing your heat vest. That will help the buy ou an extra hour or two in the heat without stressing you too bad. Then you need to hydrate hydrate hydrate all day long and stay out of the Sun as much as possible. Please take care my friend. Sending hugs and love through this electronic link! Pace yourself in the heat especially and remember to decide what you want to do then dilute it by 75% and that is the piece of the pie that you will be able to do without overdoing it. I think I combined analogies there but I hope you understand what I meant! Thinking and praying for you to take care. Linda/Fancy.. 💕
Wow sorry that happened.I am afraid to go out in heat. As most don't understand I lose a lot of friends because they don't understand how dangerous heat is to us. I hope you are better soon
rayany65 , welcome! I believe you are new here. It's great to see you jump in and share your experience with MS. The heat bothers me, too, and I have to limit my activities because of it.
We look forward to getting to know you better, and hope you feel our warm welcome. 💕
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